Looking for families with a member with Down's Syndrome and sick sinus syndrome and pacemaker, contact [e-mail]

[SarahSmith]

I have been asked by a mum to help her find other families that she can be in contact with regarding Down's Syndrome and sick sinus and pacemakers. It seems quite rare for people with Down's Syndrome to have sick sinus syndrome so the family is feeling quite isolated. Please get in touch if you can help on 0844 288 4800 or [e-mail] Thankyou

[marykhall3]

how about my son with mito disorder and all of the above

[SarahSmith in reply to marykhall3]

Hi Mary, I haven't heard of mito disorder before. I put the request out on behalf of one of our families (Down's Heart Group members) as they have been unable to find others to tlak to about the condition. Would you be willing to email/talk with them?