Posts - Down's Syndrome Support | HealthUnlocked

Down's Syndrome Support

322 members • 41 posts

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Healthcare Research Opportunity

As part of our work to make healthcare information inclusive and accessible, we are undergoing research on "How the NHS communicates research and healthcare...

As part of our work to make healthcare information inclusive and accessible, we ...

SustainabilityJohn

•1 year ago

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Down's Syndrome Support

Please let me know if this facebook support group is active. Thanks!

Please let me know if this facebook support group is active. Thanks!

•2 years ago

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Down syndrome.

The correct spelling is Down syndrome, no 's. Named after founder Langdon Down.

The correct spelling is Down syndrome, no 's. Named after founder Langdon Down. ...

•2 years ago

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Hello

My son who has Downs Syndrome is in his last year of college and wants to live independently. We live in London and he wants to work with animals, so any...

My son who has Downs Syndrome is in his last year of college and wants to live i...

•2 years ago

Happy in Florida, USA

I have one daughter with Down's that would have been 48 yrs old, this year. I have another daughter with Down's that will be 43 next month. What is so...

I have one daughter with Down's that would have been 48 yrs old, this year. I...

•2 years ago

Covid Vaccination

Yesterday I just had my Covid Vaccination. It feels like a big weight has been taken off my shoulder.

Yesterday I just had my Covid Vaccination. It feels like a big weight has been ...

•3 years ago

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Hi I'm new...

Last week I just got my letter that I have been added to the shielding list because of my Mosaicism. I got upset because it has never been addressed before.

Last week I just got my letter that I have been added to the shielding list beca...

•3 years ago

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I'm New... To people with the same condition as me or people who know someone with the same condition as me.

I was born with Mosaicism. It was discovered when I was a baby. I was born with small different ears at each side.

I was born with Mosaicism. It was discovered when I was a baby. I was born wi...

•3 years ago

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Volunteering

Hi, Im a student in sixth form looking to volunteer with children with Down syndrome. I’m looking forward to studying special education at university. I’d like...

Hi, Im a student in sixth form looking to volunteer with children with Down synd...

•4 years ago

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Learning disability and down syndrome

Are learning disabilities prevalent in people with Down syndrome? How severe can these disabilities be? What sorts of therapies can help with coping with Down...

Are learning disabilities prevalent in people with Down syndrome? How severe ca...

•4 years ago

Can Coronavirus effect people with Mossaicism?

I have mossaicism.

I have mossaicism.

•4 years ago

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DSActive - Pre-Survey 2020

DSActive is a programme run by the Down’s Syndrome Association (DSA). DSActive are looking for anyone caring for someone with Down's syndrome to take part in a...

DSActive is a programme run by the Down’s Syndrome Association (DSA). DSActive a...

•4 years ago

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Hi I'm New

This has taken me a long time to admit to my self. So here it goes, I was born with Mosaicism. The doctors discovered this when I was born with two...

This has taken me a long time to admit to my self. So here it goes, I was born...

•4 years ago

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Want to be a Community Ambassador for Down's Syndrome Support?

What we are looking for We accept all applications, but ideal candidates are members that have been active in the community for at least 6 months. ...

What we are looking for We accept all applications, but ideal candidates are me...

HealthUnlocked•5 years ago

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Community guidelines

Welcome to the Down's Syndrome Support Community for support of Down's syndrome! We’re very glad you have chosen to be a part of our community. The Down's...

Welcome to the Down's Syndrome Support Community for support of Down's syndrome!...

HealthUnlocked•5 years ago

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A message from Down's Heart Group

We want to let you know that as of next week, the Down's Heart Group will no longer be moderating this community. Over the past 7 years, we have enjoyed...

We want to let you know that as of next week, the Down's Heart Group will no lon...

•5 years ago

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Breast Feeding and Liver Disease

As its #BreastFeedingWeek we are talking about the challenges of Breast Feeding your baby with Liver Disease. Join the conversation....

As its #BreastFeedingWeek we are talking about the challenges of Breast Feeding ...

•6 years ago

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Suitable Jobs for someone with Heart Condition?

Hello! My name is Emma, I am 21 years old and as of right now, I am currently doing my Childcare Level 6, but as the reality of actually applying for jobs...

Hello! My name is Emma, I am 21 years old and as of right now, I am currently do...

•7 years ago

Amelia

After 20 years of trying for a child my wife and I are overjoyed to find she's pregnant naturally after doing ivf etc. My wife is diabetic and is 41 so we've...

After 20 years of trying for a child my wife and I are overjoyed to find she's p...

•7 years ago

Community Guidelines

As a member of HealthUnlocked you're expected to follow a few basic guidelines to ensure that every member feels safe and comfortable engaging with others in...

As a member of HealthUnlocked you're expected to follow a few basic guidelines t...

•7 years ago

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Happy 21st Birthday Callum

Hi, I found myself this morning looking on the net with a need to connect to others who share my experience. Callum was born on the 5th June 1992 with a...

Hi, I found myself this morning looking on the net with a need to connect to oth...

•10 years ago

Looking for families with a member with Down's Syndrome and sick sinus syndrome and pacemaker, contact sarah@dhg.org.uk

I have been asked by a mum to help her find other families that she can be in contact with regarding Down's Syndrome and sick sinus and pacemakers. It seems...

I have been asked by a mum to help her find other families that she can be in co...

•11 years ago

Seb, 4, is the first child with Down's Syndrome to model for Marks & Spencer

Check out this link: http://www.thesun.co.uk/sol/homepage/features/4617845/seb-first-child-with-downs-syndrome-to-model-for-marks-and-spencer.html...

Check out this link: http://www.thesun.co.uk/sol/homepage/features/4617845/s...

•11 years ago

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Designation of services for adults with congenital heart disease (ACHD)

Partly as a result of the review of peadiatric heart services, the process to improve future NHS services for adults with congenital heart disease (ACHD) in...

Partly as a result of the review of peadiatric heart services, the process to im...

•12 years ago

Safe and Sustainable - The future of children’s heart services

On July 4th 2012 a Joint Committee of Primary Care Trusts met in public to decide the future configuration of children’s congenital heart services. The JCPCT...

On July 4th 2012 a Joint Committee of Primary Care Trusts met in public to decid...

•12 years ago

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My daughter aged 23 with DS and an AV canal defect (repaired at 9 months old) has now moved from cardiac child services into adult provision

my question is this - because of improvements in heart surgery our children with DS and heart defects are living longer (thank goodness) I have heard that...

my question is this - because of improvements in heart surgery our children with...

•12 years ago

Where to Start?

Ok So I figure before i go into Much detail about my Son, Maybe The overall Story Would be a good place to start so here it is! Jamie Robert Alexander,...

Ok So I figure before i go into Much detail about my Son, Maybe The overall Stor...

•12 years ago

How do we ensure we are getting the best medical treatment for our youngsters?

Treatments change and develop all the time and it can be hard to keep up with them all, and of course not everything works or is appropriate for all. So it's...

Treatments change and develop all the time and it can be hard to keep up with th...

•12 years ago

Sources of Information about Down's Syndrome

Many of you are probably aware of NHS Choices as a resource for information about Down's Syndrome, but if you aren’t you can find a basic overview...

Many of you are probably aware of NHS Choices as a resource for information abou...

•12 years ago

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Antenatal diagnosis - can you assist?

In light of the indications that ante-natal blood tests to detect Down's Syndrome will be available in the UK in the near future, we are looking for...

In light of the indications that ante-natal blood tests to detect Down's Syndrom...

•12 years ago

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If you care for someone over the age of 16 who has Down's Syndrome? Are they getting their Annual GP checkup and do you feel it is of benefit?

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