Dialysis

[Sabuj]

Is there anyone who is on dialysis for 5+ years?

[clem556]

yes, I have been having dialysis since June 2007. How can I help you?

[Sabuj in reply to clem556]

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

[clem556 in reply to Sabuj]

Hi Sabju,

I have had high PTH results in the past, I have never taken anything for it. I had my parathyroid glands removed March last year, for almost a year my PTH has been low, <4. It has started to creep up and my latest reading was 52.7 this was 5 days ago. My consultant says, they may have missed some or the hormone is being produced by the thyroid glands?

I dialyise on twilight, as I still work, I do Monday, Wednesday and Friday, that's for work and dialysis.

I re-started dialysis in 2007, when my transplant failed, it worked for very nearly 17 years.

[CeeBee]

Hello

I have been on dialysis for 21 years continuously (I'm a 55 year old Man) and have maintained a reasonably normal life throughout. If I can help you with anything please ask.

Colin

[Sabuj in reply to CeeBee]

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

[CeeBee in reply to Sabuj]

Hello

I had my parathyroid glands removed approx. 6 years ago when they became over active, this is relatively common in long term dialysis patients.

[Skabenga]

Hi, yup I've been on heamo dialysis for just over 25 years. I've still managed to live in 3 countries since starting and also run my business full time. I'm 43. Any questions feel free to ask.

Cheers, James

[Sabuj in reply to Skabenga]

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

[Hidden]

Yes, been on heamo, mostly at home since 2005

[Sabuj in reply to Hidden]

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

[Hidden in reply to Sabuj]

No I had my parathyroid glands removed a long time ago when my calcium levels rose to to dangerous levels.

I'm on home heamodialysis 4 times a week (Tues Thurs Sun, Mond Wed Friday.

I take 2 prescribed vitamin supplements and phosphate binders.

3 Previous transplants, and cancer and meningitis..

[minimaggot]

Hi.

Was wondering if any other long-term dialysis patients suffer from fatigue?

Some days I can hardly get out of bed, and yet, reading these posts, some people seem to have a normal life.

[Sabuj in reply to minimaggot]

What is your Heamoglobine level?

What EPO do you incject?

[Hidden in reply to minimaggot]

Yes, much seems to depend on my Hb.. I managed a whole day out, kite flying, and then shopping in the afternoon later with a mate. (A whole day for me is RARE, usually I'm knackered after lunch)

And I woke up the next day feeling fairly OK.. That's rare, but my Hb is at 12 on last blood results. And I feel more focused.

[micar6024 in reply to minimaggot]

I am a 55 year old male and have been on Dialysis nearly 6 years and do experience extreme fatigue which is extremely frustrating when you hear of others being able to carry on life just about normal when on H/ dialysis

Regards Mike

[micar6024]

Hello

I am a 55 year old male

I have been on H/dialysis for 6 years in feb.

I certainly have my up days and down days

I you want you can mail me [e-mail]

Regards Mike

[TamekaS]

On dialysis since 2009...do u have a question about something