Childrens

[KokoLu]

Does anyone have PD and little childrens? I still don't have diagnose of PD, but if I get it, what should I do? Immidiately tell my daughters (they are 4 and 5,5 years old) that I am ill, or not?

[Court]

My children are adults but I have two young grandcildren of 7 and 3. The elder knows that Nana has to take tablets but has not needed to know more. To the younger I am just Nana. I have a leaflet from the PD Society on how to tell children what they need to know. I would you recommend you get this for when questions are asked. Good luck.

[KokoLu in reply to Court]

Did they asked you why are you shaking or something?

[Court in reply to KokoLu]

Children seem to accept us as we are. I just felt I should mention my tremor to my elder grandchild as I knew she had noticed it. I did not go into any great detail but said I had an illness that caused the shake and I could not control it. I have a book to give her from the PD Society, but feel it is a bit early to burden her with details. I will answer her questions as and when they arise. Other people will, I am sure, do things differently but I am lucky in that my tremor is controlled by my tablets for some of the time.

[soup]

It's a very personal thing but Parkinson's UK has books pitched at children of a variety of ages to help aid the process.

[AndyC]

Hi my name is Andy I am 49 and was diagnosed with PD last October. I have 3 young children, Twins at 7 (boy & girl) and a little girl of almost 5. I see them once a week since i was divorced but I havent told them much yet as they dont really ask much about it or notice it really (I have a tremor in my right hand) apart from one time when my eldest girl asked "daddy why is your hand shaking?" I told her that there is something wrong with it and doctors gave me some tablets to help it...she went away happy with that. If my kids start asking me more questions then I will tell them, i see it as if theyre old enough to ask then theyre old enough to be told. Kids that age are very accepting of things like ilness and bereavement (my dad died in 2009 and they were brilliant at accepting that) so if they ask you then be honest with them

Cheers

[KokoLu]

I am much afraid that they friends will notice something's wrong and you know how other childrens seems to be cruell.

[Joealt]

If you have children who can use a computer tell them to come to this site.

I have two adult children. We had a talk. I told them, if they have any questions, come to me.