Can anyone share how to hide their body or facial rigidity so as not to invite help from good intention strangers or friends?

[cheerspark]

[Hidden]

PT for the body and massage! And just smile BIG all the time!!

Blessings,

Carol. <><

[wifeofparky]

If people care, it is hard to stop them. Speak to your Movement Disorder Specialist. My husband's mask and rigidity were less noticeable when he took his meds on time and correctly.

[ronn]

Grow a beard and smile through your eyes......(Not recommended for the ladies).

Best Wishes

[muttie]

GRIN AND BEAR IT!!!

[Pete-1]

I find if I stagger a little people sometimes come up to you to help prevent you falling BUT when they come closer its like being in a confined space that makes moving even more difficult. Naturally they usually have no understanding of this. Apart from this I don't find a particular problem with allowing others to see that I have something strange going on.

[cheerspark in reply to Pete-1]

It upsets me to think that I am strange and look awkward. Probably I need time to adjust my self image.

[PatV in reply to cheerspark]

I'm getting over this. I had to give a lecture yesterday seated on the floor so I could stretch my legs and sit on feet to stop them dashing about

[Hokuto in reply to PatV]

I had something similar happen recently; I had to give a 30 minute address at a seminar celebrating my university department's ten year anniversary. I was okay beforehand, but when I stood up at the lecturn my meds went completely, totally OFF. My right leg started dancing around so badly I couldn't read my notes, and I finally had to give the remainder of my presentation from a chair. I was embarrassed, but what else is to be done? Stress is a real no-no.

[PatV in reply to Hokuto]

good for you for carrying on !

[Pete-1 in reply to cheerspark]

Perhaps you don't look strange and awkward even if you feel it and maybe you don't feel it yet either ?

[PatV in reply to Pete-1]

I'm sure I did look strange sitting on floor with everyone in chairs, but I was too uncomfortable to feel "awkward".

[froggatt55]

Hi - I was taught to screw up my face as tightly as I could then release opening your mouth as wide as you can and raise your eye brows opening your eyes as wide as you can - repeat 5 to 10 times - and this will relax your facial muscles

Warning - joke - don't do it in your car because I did and got the finger from the driver in front who thought I was shouting at him to go faster!!

[cheerspark in reply to froggatt55]

Thanks for your tips. I will pick the right time to try it out.

[jernor]

I am so thankful to those who have helped my husband get home after a walk to the barbershop, they have become friends, and have shared their stories about their relatives with PD. My husband feels more independent when he can choose when to go to the barber, but sometimes his meds aren't working on the way home. I worry when he chooses to ride his bike without a helmet--he does have a stubborn streak.

[landman]

I gratefully accept assistance from anyone that offers, if I need it. If I do not, I thank them for their kindness. I offer assistance to anyone in need. I choose not to be embarrassed by my PD. I accept my condition as okay. I refuse to be stressed over what I have no control over. I tell people I have PD, not as an excuse, but a reality. GOD bless.

[cheerspark in reply to landman]

I wish I could pick up enough courage to speak of the word PD in front of unacquaints. I would tell them I have motor or joint pain which is true by all means.

[landman]

Get over it!

I suggest this great site to give you encouragement

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