Hey Floppy, I've been on this blog and never got a response. Nothing new..people talk around me, it's like I'm not here and I don't really care.
I'm by myself and this is not real and I don't depend on anybody I live in myself and never let anybody in because no one really cares. I'm a bother to myself and won't be to someone else. I paint and walk and occupy myself and am happy to be able to do that!
Hello. Sometimes I think that I am all alone in Parkinsonville because PD seems to do that. PD is like an emotional roller coaster. I sometimes wonder what the Future will bring. We are not alone. If we were this screen would be blank. I guess that we depend of our selves because we don't want to impose on other people. I have a daughter who is in college. I often wonder how she feels about PD. Is she accepting me as the same old person I was before I was diagnosed? I hope so. All we can do is try our best. Take care. Keep smiling!
Thanks for acknowledging my exisitance...I'm not emotionaln I'm just alone. I've been expressing myself more lately. I'm letting people know I'm here. They aren't going to leave me sitting in one room and going to the kitchen to whisper about me. They' are very rude.
I'm a very intelligent person, artistic and very nice. I just wish I lived in a larger community where I could make some friends with other PD people. I live in a small town, pop. 500. No restaurant, no theatre. I do go to an auction, 2-3 in town a year.
I just need to get a life....I think I have to move.
hi merlethegirl
sorry for not responding sooner but i've just seen your blog,unlike yourself i am not alone i live with my girlfriend and our 2 young girls who are 6 and 9 but sometimes i too feel alone i think its the nature of the disease that you are left to fight it by yourself because to an outsider you look normal but this beast plays with your mind as in what does the future hold for me if you can control that half the battles won you take care catch you later ps where are you frrom
Maddock, ND. A small community amidst, small and large farms and a lake that is every swallowing the land . It grows every year....hunting and fishing..I lake walking the farm trails with my dog but have after 3 years not found anyone to walk with me. Now I don't go often because I fall down on bad days. Somedays I walk a mile, sometimes a quarter mile. I remember my youth and running down the same trail with me brother flushing prairie chickens and enjoying nature.
I don't think people know how to approach me but it takes more effort than I have stamina, verbally or physically, to deal with them. So, it is me, not them who is holding things up but life is what you make it, so be it.
I am not unhappy. just the pain and lack of mobility, and movement disorder keep me from doing some of the things I love to do. Enjoy what you have today and pray for a cure!
Merle, Enjoyed your memories of your youth. I grew up in Bisbee, 60 miles on the other side of Devils Lake, (the city, not the lake). I was married in 1953 and spent one night of the honeymoon in the luxurious Great Northern
Hotel, in downtown Devil's Lake. We moved to Southern Callifornia in 1957 and have been there ever since.
I have found that having PD tends to isolate you, can only imagine what it costs you as an isolated case in a small North Dakota town. In the end though, we are, each of us, alone. BUT!, we are less alone when we have someone, or a group of someones, who understand how PD affects us. If you have the sudden feeling that part of your brain just fell off, it is nice to be able to share the experience with someone who has been there.
Keep communicating, you have friends.
Ronn
I'm new to the site, about two weeks,, but I'm here to tell u,,, ur not alone,,,we r here 4 u,, anytime,,anytime
I, too, live in a rather small community, although larger than yours. I know of three of us who have PD. The nearest support group is two hours away and meets the same day I have my art class. So I come to places like this to feel normal (never have before, felt normal that is). I, too, paint. And I've taken up bridge again, just to keep my brain working.Good luck with not feeling alone. Just do what you did, speak up. And if we don't respond, ask us to. We need to get outside of ourselves, too.
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