Has anyone tried cannabis and found relie... - Cure Parkinson's

Cure Parkinson's

26,039 members27,333 posts

Has anyone tried cannabis and found relief? Please let me know as I refuse to take the meds that doctors like to prescribe. Thanks

58 Replies
58 Replies
larry33b profile image
larry33b

Absolutely. I use the edible type one hour before bedtime to help me sleep.

compucure profile image
compucure in reply to larry33b

Hi Larry

Where do you get these?

Tony

Barbie18 profile image
Barbie18 in reply to larry33b

What edible type is that ?????

Norton1 profile image
Norton1

Hello Girl,

Am I missing something here? Why would you refuse dedicated medications for alleviating

PD symptoms and take cannabis instead. Do you think that cannabis is a like for like substitute but with added benefits?

Norton

lethe profile image
lethe in reply to Norton1

Because eventually, if not sooner, these meds will start giving you other bad symptoms (distonia) etc that the good Dr.. will prescribe more meds to deal with it. Soon you will be taking a bunch of meds not originally needed for PD, and these in turn will cause more bad symptoms or haven't you noticed? I know many people who were able to get off liver-killing. addictive meds or lower the amount needed using MM.

MM couldn't be safer!

scottyt profile image
scottyt in reply to lethe

Hay Lethe, I tried a vaporizer today and WOW it was just great, I highly recommend!!

lethe profile image
lethe in reply to scottyt

Do you remember the name of the vaporizer? A few months ago I bought a Plenty when my Herbalaire died but quickly found it was too strong, to "busy" - it would bag my eyes and made me feel too wrecked for day activity. I prefer something more subtle and relaxing. I bought the herbalaire again 2 weeks ago and right away I noticed that the hebalaire as far more gentle a n relaxing.

Now I usually use the Herbalaire for daytime and the Plenty for nights.

scottyt profile image
scottyt in reply to lethe

Slick by Vaporotics…its inexpensive and I use for oils...

Emily1957 profile image
Emily1957 in reply to scottyt

Hi, ScottyT. I want to get a vaporizer for MM– don't have oil yet. Is the Slick Duo Black Wax/Dry Pen

$69.99 good? Is there a vaporizer I can use for the plant now, and for oil later, when I figure out where to get the oil? I just need to go from smoking it to vaping it now. Thank you...

scottyt profile image
scottyt in reply to Emily1957

I take for granted you live where MM is legal and if that is true there should be plenty of Smoke shops that sell vaporizers and they can advise you about oil, shatter, wax and bud friendly devices. My regimen now is ingesting oil orally and vaporizing a super concentrate called shatter. Check youtube videos and type in ''Vaporizing Marijuana'' for a more microscopic detailed overview of the best way to consume the herb. Good luck and do the research, Its all on the internet. In an emergency you can always smoke a joint. Good luck in your search and I will share what I can.

I am asking a question as to if anyone has and had any positive results from the plant. The research and the information concerning current Parkinsons drugs that my Neurologist presented to me are not the choice I want. Side effects from most of the drugs used for the alliviation of PD symptoms are greatly unknown as most are new and have a limited history. I am seeking a more natural approach with diet,exercise and a positive outlook. If others want to take prescribed meds that is their choice as is mine to seek alternatives.

Pete-1 profile image
Pete-1 in reply to

Canabis smoke - even more carcinogenic than tobacco..

Tobacco is believed to minimise the risk of getting PD. Tobacco, a fine herbal treatment, must be better than drugs available from the pharmacist because it is "natural"

tedwright profile image
tedwright in reply to Pete-1

Can you show me any proof that cannabis is more carcinogenic than tobacco?

Pete-1 profile image
Pete-1 in reply to tedwright

This not proof but remember well seeing on a TV documentary (probably Horizon) that asserted that cannabis was more carcinogenic(that is carcinogenic for lung cancer) than tobacco but then with cannabis one has the option of using oil and I imagine there is no risk of lung cancer developing from that.

tedwright profile image
tedwright in reply to Pete-1

Pete,

You might be interested in this article:

washingtonpost.com/wp-dyn/c...

Here's another approach:

youtube.com/watch?v=hTpmusc...

It's not the plant that contains carcinogens. It's burning the plant matter that has potential to produce carcinogens. Even then, there is little evidence that burning cannabis is directly connected to cancer. However, in the interest of full disclosure, I would be interested in hearing any evidence to the contrary... Ted

Hikoi profile image
Hikoi in reply to tedwright

An argument that will continue for many years im sure.

psychologytoday.com/blog/th...

Pete-1 profile image
Pete-1 in reply to tedwright

Sorry I left this for a while and then forgot all about it. I have now started to compile some lists of relevant sites. Again this does not constitute proof. What does? But it is all part of what is out there on the Interweb that may stimulate debate. So watch this space and perhaps something interesting will emerge.

lethe profile image
lethe in reply to Pete-1

Totally wrong!! Please take a look at the videos I posted. Any carcinogenic results are from the smoke is caused by the burning of the plant material, NOT the compounds. And tobacco IS worse!

Pete-1 profile image
Pete-1 in reply to lethe

Exactly, burning of the plant material, that is smoking. And when smoked quite often tobaco is used as an accompaniment.

Walhalla50 profile image
Walhalla50 in reply to

I love your approach

maryalice profile image
maryalice in reply to

You go girl! i agree with you about the medications. There's a lot of natural treatments to try first.

Hikoi profile image
Hikoi in reply to

Hi Girl i just lost my post grrhhh

Firstly i am not opposed to MJ, i think it should be decriminalised, but i think the side effects need to be considered as we do with any drug. The long term side effects of mm are as unknown as standard drugs or maybe more so because it has not had the rigorous testing drugs go through.

Not sure about PD drugs being new. L Dopa our main med (now as sinemet) was first used in 1951. and agonists in the early 70' s. they are still far from perfect i know but they keep us active and certainly improve my quality of life.

This is an interesting site for anyone wants to learn about MJ effects on the body.

science.howstuffworks.com/m...

Hikoi profile image
Hikoi in reply to Hikoi

This is some of a patient information leaflet.

rockyroadrx.com/medical_mar...

MECHANISM OF ACTION: THC, the main active ingredient in marijuana, binds to and activates specific receptors, known as cannabinoid receptors. There are many of these receptors in parts of the brain that control memory, thought, concentration, time and depth perception, and coordinated movement.

SPECIAL POPULATIONS:

• Diabetes: Cannabis extract (in the presence of insulin) was shown to induce cells to take up glucose.

• Chronic Hepatitis C: Cannabis use should be discouraged in patient with CHC.

• Renal insufficiency: No available data.

• Hepatic Fibrosis: Medical Marijuana has been shown to have a beneficial effect on delaying or even reversing hepatic fibrosis.

• Geriatrics: No available data

CONTRAINDICATIONS: Using Medical Marijuana during breastfeeding has been shown to decrease motor skills in children at the

age of one. Pre-Natal use has been associated with increased risks of childhood leukemia, astocytoma, and Rhabdomyosarcoma.

Although marijuana use has not been associated with mortality in other populations, it may pose particular risk for susceptible

individuals with coronary heart disease (CHD).

SIDE EFFECTS: dry mouth, Impaired perception, diminished short-term memory, loss of concentration and coordination, impaired judgment, increased risk of accidents, loss of motivation, diminished inhibitions, Increased heart rate, tachycardia, hypotension,

anxiety, panic attacks, and paranoia, hallucinations, respiratory damage, reproductive, and immune system damage, increased risk

of cancer & psychological dependency. Chronic or Heavy users may have an increased risk of chest colds, bronchitis, emphysema, and bronchial asthma, and sleep disturbance. First episodes of Psychosis have been attributed to High Potency Marijuana use in some patients.

scottyt profile image
scottyt in reply to Hikoi

I can appreciate your typing skills but Medical Marijuana is fantastic. Period

Hikoi profile image
Hikoi in reply to scottyt

Scotty not typing just cut and paste. An American patient info pamphlet.

tedwright profile image
tedwright in reply to Hikoi

"respiratory damage, reproductive, and immune system damage" & "First episodes of Psychosis have been attributed to High Potency Marijuana use in some patients";

I'd like to see your proof...

Pete-1 profile image
Pete-1 in reply to Hikoi

This post relates to an earlier post by Hikoi that quotes some of the patient information leaflet for medicinal MJ.

But isn't it "natural"? Why are there all those side effects? Surely natural treatments don't include side effects.

I'm not anti MJ either, I'm just very skeptical when it comes to natural remedies and the assumption that because they are natural they are safer and don't need to be rigorously tested. And the assumption that belief about a remedy is rightly discounted because the placebo effect doesn't apply.

export profile image
export

I have more than try it. I have grown it and answer to your question is yes are you planing on eating it or smoking it . Why not test it first .IT NOT DO ANYTHING FOR PD . IT HELP YOU TO FOR GET ALL ABOUT IT AND RELAX. I wouldn't recommend anything that is green.

why drink and drive when you can smoke and fly............

yours EXPORT.

Hokuto profile image
Hokuto in reply to export

I have seen two or three Youtube videos that purport to show that it helps suppress the shakes; if I ever get the chance to visit Colorado, Washington (state), or Amsterdam, I definitely will give it a try.

tlongmire profile image
tlongmire in reply to Hokuto

Arizona now.

Susie01 profile image
Susie01

I am not in an state that is legal. It does seem that folks who live in an area where it is legal have had very positive responses, I could never "smoke" it, but might be willing to try in other forms if it was legal in my state.

Barbie18 profile image
Barbie18

WELL I AM GOING TO GIVE IT A GO TO SEE IF IT WORKS HA HA

supermom profile image
supermom

cannabis has a component calledtch or thc cant recall llookit up,and cannabodides,they r natural the substance was leagal and sold otc in every drugstore,it has a remedial effect on many illnesess,as it rebuilds and fixes the ability of our bodys 2 cure themselves,the pharmacutical giants appealed to the goverment to declare it an illeagle substance ,and therefor we dont have it available today,where i live its leagle if you have a medical issue u get a license to purchase it ,they say hat smoking is the best ,it takes the edge off the pain helps tremors ,relaxes rigidity,god luck

Jimshasky profile image
Jimshasky

YES, it works wonderfully in conjunction with all the usual meds that are prescribed. It does NOT work alone.. Helps my walking and joint and muscle pain, especially during my afternoon "off time".

export profile image
export

YES IT DOES HOKUTO STOP YOU FROM SHACKING BUT ITS ONLY TEMP .ALL CAN SAY IS SUCK IT AND SEE.

yours EXPORT.

PatV profile image
PatV

No but I'd be willing to be in a clinical trial. Want mine in Brownies. Or bran muffins! :) I don't shake but have painful off dystonia.

MGirardi profile image
MGirardi

Here in Colorado MMJ is legal when prescribed by an MD. I would highly suggest trying an edible or a puff or two of a good strain of INDICA. The strain of Indica, which has many varieties, is somewhat sedative. It knocks out a tremor in less than 15 minutes. No other

RX drug side effects whatsoever. If you get the right variety you can have great success

and take a break from prescribed drugs with the consent of your MD. Best of luck!

4809cats profile image
4809cats in reply to MGirardi

It also comes in capsule form!

judam9 profile image
judam9

i tried it one evening while the kids next door were smoking pot. i do smoke other wise . i took one drag, and couldn't stop coughing . then they told me to take another, i did, and the coughing started all over again. i wasn't sure if my feet were touching the driveway. they said yes they were. that's all i wanted. the guy said it was the paper cause that was top of the line he said. i'm sure happy i didn't try a bad batch. my jeans were sopping wet, down to my knees, was happy that it was dark out. and no one could see the flooded driveway.

I enjoy a few puffs several times a week. I don't think it really helps my symptoms though.

I have yet to try Indica or any variety especially recommended for PD.

lethe profile image
lethe in reply to Parkinson_Schmarkinson

Don't you feel more relaxed after smoking, or sleep better? I read that some people (PD patients in Poland study) said it takes about 2 months of regular use for it to ease tremors and a couple of times I was unable to use it much - once for about 3 weeks I was too sick to make the effort (!) and another time I was too busy looking for a place to live and only smoked twice a day. Both times I noticed that my tremors increased within a week, and I didn't know why until I realized that both times i had cut down considerably on my usage. For things like stress or sleep a small amount when needed will do the trick, but for more ingrained symptoms like tremors a greater amount is needed, regularly, and it takes time for the body to respond.

The last 10 days I (and others) have noticed that my tremors etc have greatly increased, especially in bed. My HerbalAire vaporizer gave up the ghost 2 weeks ago after 5 years of intensive use (I also dropped it at least 10 times a day until recently found a stable place for it). I switched to my Solo but the glass stem broke and I can`t replace it until the first of Feb. And last week I ran out of grass and am now using a simple 4 inch pipe to smoke the duff (what`s left after you vaporize). In two days i am going to break the bank and buy the Plenty ($350 before taxes, but my MM club membership means I don`t pay the tax- $52).

I can't wait!

Indicas affect the body more while sativas affects the mind more. We say - below the neck, indica, above the neck, sativa..... :)

Joealt profile image
Joealt

I smoke pot because it helps me in a theraputic way. I go from feeling doomed to feeling better. The information on the internet and other places seems to support the use of "medical marijuana" in the treatment of PD. I don't know why it is illegal. If it were legal the medical science industry could produce strains that address specific illnesses. I suppose keeping it illegal makes more money for people on both sides of The Law.

CathyS profile image
CathyS

I think you hit the nail on the head Joesalt. It's all about $$.that the drug manufacturers would loose by patients using naturally grown treatment. While it may be more carcinogenic than tobacco, I don't believe anybody smokes 2 packs of pot/day! :-)

Joealt profile image
Joealt in reply to CathyS

The pot I smoke gets me where I need to be in one puff.

Walhalla50 profile image
Walhalla50

I have a greenhouse and will try growing cannabis. If it survives I will provide you with an update

srarndt profile image
srarndt

I have had success with using MJ to help me to sleep at night. Works great for me!

Well girl........what I like about your attitude and therefore your question is this. You are taking responsibliltiy for your life and and how you want to live it. We come into the world alone and we are going to leave alone - no matter what religion, how many loved ones , or how much education you end up with. Look what has happened to our country because we as a people when we trusted the entities in power. Anywy, its the conclusion I reached for myself. Diagnosed 11 yrs. ago. As a result, moved out of the US because I started worrying about the lack and impossibility of affording long term healthcare for people w/ degenerative diseases. Then, it became a much bigger issue than the fact that I can have a helper in the house or a nurse further down the road. The issues became what I can put in my own body and how I want to live my life - w/ or w/o an illness.

I now have the choice of using mj tea ( 1 joint in a pot - can last 3 nights for sleep - for me), I cook it w/ water and coconut oil - the only oil I have in my house) Also, I'm not using it to get high - just to relax and sleep. My housekeeper buys it for me. She even puts it in chicken soup, if I wanted her to.... A small amount is legal to have on you or to grow for yourself.

I use mucuna from India and only 1/2 a sinemet 3x a day. It gets shipped to my house.

I walk the dog - helps me out of bad moods and I meet wonderful people in the park who are happy and not debating anything and the country is not split in half.

Most produce is organic w/o the Whole Foods prices. I like going to the city's huge farmer's market. This is big for me because we used to live just blocks away from the farmer's market in Seattle.

I have very good cheap medical insurance - cutting down much of the stress in my life - and don't even plan to use it - but it's there for emergencies. I might visit the neurologist once a year - just to humor him and he's happy for me that the mucuna has worked so well. My meds if I wanted to use them are free, and what's not can be purchased over the counter.

I can turn on CNN if I want to get depressed and listen to endless debates about what our country chooses to legalize or not - while in complete denial that the debates are all moot, because it all comes down to $$$$$ for a select few.

I know that not everyone wants to or can leave the US - and I realize I'm goiing on about issues that you didn't ask about - but for me - it's the whole picture - it's alwyas the big picture that I like to look at.

4809cats profile image
4809cats

DID YOU ALL KNOW YOU CAN GET IT IN TABLETS? IT COMES IN A CLEAR CAPSULE WHERE THE POT HAS BEEN BAKED AND GROUND UP. IT HELPS A TON FOR SLEEPING AND A BAD DAY OF SHAKING. GOOD LUCK!

scottyt profile image
scottyt

Hash oil...for those with Parkinson's...better sleep...less tremor....fewer pills...

tedwright profile image
tedwright

I have been working towards implementing a "therapeutic use of cannabis" bill in my home state and am trying to include Parkinson's Disease as one of the illnesses that would make a patient eligible for qualification. Your question is a good one, and I look forward to hearing the responses you get here...

I started actively supporting the therapeutic use of cannabis for my wife, who has stage iv, metastatic breast cancer, several years ago when we discovered how beneficial it was for the side effects of a clinical trial she was participating in. Frustrated by the lack of legislative response to our plight, I ran for state representative so that I could get my point across! I won and was a co-sponsor of HB 573 "The Therapeutic Use of Cannabis" bill, which was signed into law on July 23, 2013, here in New Hampshire.

Along the way I have learned a great deal about this plant and how it can help so many people. As I understand it, cannabinoids are a neuroprotectant and can help with neuropathic pain and can help you sleep. This has helped my wife with the peripheral neuropathy she experiences as a side effect of chemotherapy. The following article may shed some light on the subject of cannabinoids and PD:

sciencedirect.com/science/a...

I'll keep learning and discussing this issue, so that patients everywhere can learn the truth about cannabis...

tlongmire profile image
tlongmire in reply to tedwright

See phoenixtears.com and google "Rick Simpson"

lethe profile image
lethe

People,

Finally we have reached the time when hard science is proving that MM is beneficial, and all you have to is a bit of research - type in marijuana and PD on youtube. There is overwhelming evidence from reputable researchers! 100 years ago it was used in many over-the-counter preparations. The reasons it was made illegal and demonized was to benefit Big Pharma, new artificial fiber companies, etc

NovaLee profile image
NovaLee

Hey yeah cannabis its going make you relax... and possibly question the meaning of life as a kicker. Expect a radical overhaul of your world view as a side effect, a revaluation of your goals and ambitions, maybe intense joy and appreciation of nature. The best products are hand pressed Afghani pollen, expensive but a clean elevation of thoughts, mood and scenes. I refer to it as dope you can go shopping on, meaning going to the supermarket and doing your weekly shop is not going be a problem for you because it doesn’t incapacitate you or lead to the classic preconceived side effects of being stoned. Its really expensive and difficult to get, but what you want is a reliable consistent product and, cannabis or grass varies widely in its consistency and effects dependant on many factors. Amsterdam is a place to purchase such a product (expect to pay 15 Euro a gram) its worth it. If you want to test for cannabis novadetox.co.uk/acatalog/ho... you can with a simple home urine test kit. Be aware that it can be picked up months after use as unlike some other types of drugs it can be stored in fat deposits and be released periodically in to the blood stream months after use, whereas some other types of drugs are excreted rapidly .

chirodoc profile image
chirodoc

I get dizzy from the THC so I have tried CBD and THCV without the psychotropicTHC.. benefits stopped after 4months. Back to more experimenting

tlongmire profile image
tlongmire

See Phoenixtears.com and google "Rick Simpson"

scottyt profile image
scottyt

I eat some oil every night so I can sleep and I sleep and when I wake up I have the extra added benefit of very little pain and stiffness and I also feel relaxed till evening comes and once again I ingest a little Pot oil and the world is good.

caseyjones profile image
caseyjones

I Was getting really bad cramps in my legs,During the day,Which I usually can deal with it,But at night.Pretty much I know I am going to have a hard time falling asleep,I try putting my knees up to my Chin, which is hard to do to start.I inform my Doctor about the cramps and write a script for muscle relaxer.I get a reverse effect of muscle relaxer and Painkillers that would giving after surgery,Not sure of the correct spelling Paradoxel effect the keep me awake,My Father- Inlaw use to get the same effect.Besides them effects,They could become very addictive and then leads to another Problems.I am really getting a dislike for prescribe Meds,Except for Sinement that kept alot of 12 years with this disease medical MJ as a treatment and he was on board with the idea and registered for me and MS Patient,But he said to me,We will have to come up reason to submitt to the State of NJ, Why it would benifit my needs.I was a bit confused and amazed how many people and doctors,Still don't understand Parkinsons and the Pain thats involed.But Painkillers are given out like candy with horrible things to come.My hear tgoes out to patients with MS.But upset at the same time,That parkinsons is treated like the common Cold.Well with that said, I tried MJ, from a friend that I knew for years and asked if he would give some to try,I'll tell you,I tried it and been doing it for 2 months now and no cramps in my legs and sleeping much better.I take two hits of it.At my age of 56,I can't handle more then that,One night I took more than 2 hits and couldn't function very well,So I don't go to the point to get high.Just everything just relaxes,Better than benso's or muscle relaxes and actually got me off benso, thank god!So people seem to believe th MJ will lead onto other drugs,Only if you want to.My safer than benso's..Parkinsons should be on the list as a needed medical reason to register for legal MJ.In a way it's a cheaper way I get, but would like to have the legal part behind me,I am happy I tried it and it helps,At this point I don't care what people think about or there views against it,It's helping my life

scottyt profile image
scottyt in reply to caseyjones

Please if you can do updates on your MJ insights, I think it's important for the readers of this blog to be made aware of any and all alternatives to Dr. prescribed meds that have mixed reviews. I have never shared this but my brother had PD and after 14 years he ended his own life, I blame some of the Dr. prescribed drugs, I am positive they helped push him into his obviously acute depression and his twisted decision to end his life. I got PD eight years after his demise, Life throws some curves...

Not what you're looking for?