Please let me know, is sensitive hearing yet another part of parkinsons package?

[nene1]

,or is it just me? I jump at the least little sudden noise, & I can't help but moan about the tv being too loud, then moan 'cos it's too quiet,,there seems to be no happy medium with me & it's driving all of us in the house nuts!! Any answers anyone?

[Hikoi]

Yes Nene, jumping at unexpected noise is part of the package. We seem to have an overactive startle reflex. I've read about it and notice it myself.

[honeycombe3]

Hi Nene,

It certainly is for me - like Hikoi I've read about it and notice it myself.

[maryalice]

I also startle very easily and don't like loud noises. Maybe you could try some wireless headphones and hook them up to the TV. Then you would be able to adjust the volume to suit you. Just an idea. Blessings.

[nene1]

Hikoi,Honeycombe3 & Maryalice.....A big thank you for your answers,,I was starting to think it was just me,,,it is so frustrating trying to explain why I can be ok one minute,then cannot cope with noise the next..Maryalice I'll try the headphone idea,,thanks again!! is there any part of us this parkinsons or medication for it doesn't affect?

[PatV]

Yes it is for me. My hearing is more acute. Taking magnesium helps calm the nerves but don't always remember.

[Hikoi]

nene

I think of Parkinsons as potentially affecting every part of me. I was interested in Jon Stamfords comment in the video on the Parkinsons Movement site when he suggested that Parkinsons was not primarily a motor disorder so much as whole body disorder (I think that is fair to say, he doesn't quite finish his sentence!). This is the link if you are interested. parkinsonsmovement.com/2012...

Best wishes

[maryalice in reply to Hikoi]

I watched the video and it was encouraging to me. Thanks for sharing it. I agree with you. PD has affected every part of my life; physically, emotionally, spiritually. and socially. But I'm still trying to live my life the best that I can and not give up hope. "Hope is the anchor of my soul" We do all need to join together and help each other and those who don't understand the disease, so progress will be made.

I didn't mean to get so carried away with my answer. I just appreciated the video and the attitudes of the people in it. Blessings.

[Hidden]

I have started Wearing a Headset and listening to music that I like and that soothes me. I wear them as much as possible! Even riding in the car! My husband has to have the radio on all the time and I can't stand it! And he's hard of hearing and has the TV too loud. So I just keep on my headphones and listen to my music. And I have started knitting again! I didn't think that was possible with the tremor! But with the music and concentrating on my knitting the tremor is gone! Has anyone else tried anything like this? And I would suggest to people with PD, etc.. to try different things! I have seen videos that when people dance or do certain forms of meditation with movement, or listening to music, painting, their tremor goes away! And helps keep noise outside of your head! Hope this helps.

Blessings,

Carol

[Peaches in reply to Hidden]

I have noticed the same thing. When I am knitting I have no tremor. I am so grateful that I can still do that.

[alllowercase]

Just to give you some hope, if you look up the RNID on google, they have a wide range of devices available to help you and the rest of the household all enjoy tv and radio, etc. And the good thing is that PD qualifies you to order online VAT free (you don't need to claim it back, as you don't pay it in the first place)

Back in 1987, I was fast losing my hearing in my right ear due to Otosclerosis (degeneration of the main Otic nerve that transmits sound to the brain). I had been in the school shooting team in the 60's, when cotton wool was considered sufficient protection from 50 rounds in an army .303 rifle every week. But, thanks to my PD, the drugs have done a wonderful job of improving my hearing. So good, in fact, that I now seldom need to use my hearing aids.

Hope you can find something there that wll sort your problem out with the TV

Adrian

[Peaches]

Hi Nene1. I have the startle thing big time and it drives me crazy. My poor husband tries so hard to not startle me but I just can't seem to help it! Wish there was some way to get rid of it. I feel your pain! LOL

[nene1]

thank you all for replying..my apologies for not getting back to you sooner,i have invested in a set of wireless headphones,,i love them ( although my sons not so happy with my singing!!! haha) and they help me focus on whatever task i try to do,,asthere are no more noisy distractions,although i can still hear phone, dog bark etc...am not quite so easily startled...Thank you once again

[Pearl-Girl]

Carol

I crochet all the time and no tremor.........lots of hats and scarves for the homeless