So lots of things are hard in life, and mine has pretty tough, I won't go into details but having PD is just one of a few life changing shockers that I have had to deal with. All of it has challenged my morale, confidence, self esteem and at times it has felt impossible. But thats it, it has felt impossible but in another strange way it isn't. I bang on about making a plan all the time, and I know it seems geeky but it so works. On my plan I make sure I have equal amounts of stuff, and I make sure that PD only accounts for around 40% of my available time. I plan for being well and happy. I fill up my time with radio, drums, bands, cooking, painting and generally having a full and enriching time of it. So yes it is hard but its not impossible. Give stuff a go, you might be really surprised to pick up a camera and mini tripod... its still possible to take a great shot, to make a great cake, to dance your booty off and find love. (click the 'send' button whats the worst that can happen.)
Kindest C
12 Replies
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We all have to make the best of it and try new things to keep that interest in life going strong.
Impossible is not a word to my mind either I think in any chronic illness you have to try to be relentless in making each day a new and positive one
Forget tomorrow make it today.
Just what I am going to do, make Christmas cakes today!
I have just enrolled on a part time textiles course. I got PD around the time I got pregnant with twins and had just given up my career as a web designer to do a degree in textile design. 10 years later I'm getting back to following that dream and ignoring the voice in my head that's saying "why invest you time and energy in something you might not have the manual dexterity to do in a few years time. I'm excited!
Trixidee your news is fabulous. I qualified as a yoga instructor shortly after diagnosis. It was the best thing I ever did for lots and lots of reasons.
starting yoga Monday/Wed Tue/Thur paliate 1/2 hr each sponsored a PD awareness 5k walk in the South Dakota Badlands so you are limited by yourself trying and not succeeding is not failure I may not be as good as I once was but I'm as good once as I ever was
My philosophy H-H. Every day I have fun. The only time that's not fun is this stabbing pain in the lower left ab that's ruining my life and makes my kids mad (because they don't know what to do). Good news: I found a new GI doctor who is sympathetic, has made suggestions for diet changes and PT for constipation (!) who knew? Otherwise I have fun every day. I'm starting to do some of the things on my "bucket" list. Number one? a summer camp for parkies! wouldn't that be FUN? yes, it would
I just had to chime in: I'm married if that is what you want to call in. He is a rude inconsiderate selfish person who happens to be bipolar. We have four young adult children. Our oldest is 23 and bipolar he is mean and violent sometimes(no husband is not violent husband is just an ass). He beat up me and my youngest a year ago last June. Then I have our three youngest have muscular dystrophy and major heart conditions. Our youngest who is 18 had his second pacemaker surgery last February. He received his first pacemaker in 7th grade. I was diagnosed a year ago this past May. Our youngest daughter ( 19 at the time) was raped a year ago this past April. while on a college So I had the rape in April and I was diagnosed in May. I had been mission trip was on her way home from middle east when she was raped in Greece). I was passed around like a football trying to get diagnosed for over 1 year. I never told my family I had PD till in the fall. It was no big deal considering my daughter was going through. Anyway I guess what I'm trying to say I understand wanting to throw your hand in the air (shaking as they may be) and say I give up. It is during that time that I step back take a hard look at everything then I pick up my still legs and say lets get moving. I do like the summer camp for parkies idea. My kids use to go to Muscular dystrophy camp for a week. I would though like better food and sleeping arrangement then they had at camp If is so funny my kids come home from camp begging for fruit and veggies and home cooked food. I find that having a spiritual side and a humorous side helps so much. Like when my youngest and I were in the kitchen baking a cake, the earthquake came and shook everything. We usually dont get earthquakes. I lifted my son out of his wheelchair (while he was holding the fish bowl )and our three dogs and three cats huddle under the kitchen table Jimmy looks at me and says "hey mom now we are all shaking as much as you" We were both laughing. God gave me a sense of humor for a reason he knew I would need it. Yes there are times I have felt like isolating myself from the world but I always realize when I begin to do that and push myself out the door. So yes sign me up for Parkie Summer Camp what should the theme be: Elvis..."Whole Lot of Shaking Going On"
I'm amazed that your "name" is blessed4431, you have a lot of guts and yes, the sense of humor does help. I too have very serious family problems beyond PD. My mother used to say "Everyone has their cross to bear". So true, although I used to roll my eyes at her when I was a teenager. Sending you a hug and prayers.
The reason my named is blessed 4431 is because I have 4 children, 4 dogs, 3 cats and 1 husband anymore more then 1 husband would throw me over the edge
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