I was told that by new neurologist that p... - Cure Parkinson's
I was told that by new neurologist that pd sufferers are paranoid and obsessional? Sensitive maybe but...
I"VE LIVED THE DISEASE FOR 21YEARS YOUNG ONSET 32-53 AND COUNTING
THIS REALLY INSULTS ME .THIS SO CALLED HEALER SO TAKE A WOBBLEY WALK IN ANY OF OUR SHOES. THIS REALLY PISSES ME OFF
TELL HIM TO EMAIL ME AND I WILL SET HIM STRAIGHT
Saying that PD sufferers are paranoid and obsessive is like saying that Doctors have a God complex....
My guess is time to find a new quack.........sorry dr.
This is not appropriate , complain its just not right, it is unacceptable practise and i am in the profession and he needs to be told.
Well typical national health service in england..different dr..no one tells you. I was there to discuss progress on mucuna pruriens. He said it was useless and he would only offer me drugs..didnt listen or look at my recovery plan made from john colemans book plus other things.. Would not refer me for any help with hand, nerve tests etc...
Previous dr was better but has moved to Cambridge.
I told him i was not coming back and will try to get round to writing to the consultant. He asked me if i had nightmares or hallucinations, which scared me...
Its really put me back as do not know where to go. Thanks for your support.
Most doctors don't want patients taking herbs or supplements until they have tried western traditional meds first. I have known a couple of people who have taken Mucuna and felt it didn't work. The comment the doctor made about Parkies was very unprofessional! I do know that some medications, that Parkies take, can cause hallucinations and obsessive compulsive behavior like Mirapex and Requip. Get a new doctor that specializes in PD
My husband did not start on PD meds until over 12 1/2 years past diagnosis. He used a variety of more natural strategies including Macuna which was helpful to some degree for quite a few years.
What we found when we did go to an "old school" Neuro recently is that he basically had no knowledge of any of the things my husband was taking. He just took notes on what we shared and did read through the summary time line I had given him and picked out something he could address because it was another medical condition he had experience or know of. Bottom line, he was respectful and listened and made my husband feel comfortable with starting gradually on a low dose C/L working up to 3 X/day. It has helped with his speed, voice, and initiative among other things. We think his tremor is worse but it was getting worse before he started so don't know if it is actually the med. or just that it is not helping there.
No matter what you go to see a physician for, if he/she doesn't respect you as a person with a problem that needs help, I would look for someone else.
About a month in, I saw CliniCrowd.info with the protocol for Mannitol. Mu husband is still gradually working up to the recommended dose for his weight and hope that he will benefit to the degree that some others have. If it's simple, natural and seems safe, he is game to do what he can to keep himself going.
Its the bloody drugs that can cause ocd and paranoia,this is just more proof how much some neuros understand the illness,i agree with tjas,i,ll put the ignoramus straight too,this really does boil my piss,idiots,i have refused to see my neuro this week because i told him he is wasting his time and mine.
Well if doing everything I can to support my husband and MORE!!!!.. If that is PARANOID/OBSESSIONAL / Well I will put my hands up ...
It just confirms what I have come to think . it's only the person who has Parkinsons really knows what it is like .
What he say's is so cruel and doesn't help at all ..After all there isn't much else you can think about sometimes is there ...
I haven't got Parkinsons but have learned such a lot about it over the past 6 years which was when my huband was first EVENTUALLY DIAGNOSED ....
I say the Dr. should take a walk in our shoes,then he would call us brave and strong! Blesssing to you all.
Realize that this person placed you in a double-bind situation:
(1) if you deny, aha, he's right,
(2) if you agree, aha, he's right again.
Ask him if he knows another way you two might find to discuss this.
The main thing to remember is that few docs admit they don't know everything--they just want to get to the next appointment.
Next time you have an appointment, be prepared and recognize it when the doc places you in a no-win situation.
Stay cool, laugh, and say, "Good one, doctor. How can I handle that statement? If I deny . . . If I agree . . . "
As someone once said, "Just because I'm paranoid, doesn't mean they're not out to get me." When I don't feel well, can't seem to get better, heck, it does feel like they're out to get me. But that doesn't mean I'm paranoid.
Thank you for all your support. Neuros really need a course in people skills. For a disease they cannot find any firm diagnosis for, it is amazing how arrogant and narrow minded a lot of them are.
The first one was more open but he has left his job without a word and
I had to start out again with this one..he wasnt interested. Just hold your hands out and those irrelevant questions and drugs or nothing!
No wonder some of us get depressed!
Still its my birthday today and I had a lunch out with 7 girlfriends, met friends on seafront for a walk. My son is now driving us over to my daughter and son in law and she is cooking me a meal of my choice and I shall see the grandchildren..! I am really spoiled,
Best wishes to all of you..
Wow, the little gods never cease to amaze me. Like everyone else, I would love for all of them to live in our bodies for a while, not a day, not a week but a few months. I will think I have one problem dealt with only to have another all new one surface. Paranoia has not surfaced to this point!
Not to make light on what anyone has said, but there are some studies that show a ":Parkinson's Personality". It did not include paranoia, but certain traits like cleanliness, order, organization, etc. This was years prior to the onset of PD. I did see a lot of that in myself. I have wondered if I did all of the organization in prep for the time when I cannot recall things, but I have everything organized in such a way that I can put my hands right on the infomation. By the time we are diagnosed, we have lost about 80% of the dopamine producing cells in our bodies already, so I think changes have been going on for years.
Hallucinations, yes, I had some very vivid ones before my diagnosis and medication. The optic nerve takes a hit in all of this. I have had one since on meds but it was during a very rough patch, not able to walk, horrible tremors, basically back to square one...
Paranoid? Not I! I fully know how both the disease and how all of the health care professionals are really all out there together plotting how they might be able to make me more miserable and less able than they already have done.
Obsessive? Not I again! I know this because I spend about 36 - 66 hours per week following up on this through numerous web sites and blogs.
The nerve of these plotters!!! =)
My husband has displayed paranoia and obsessive tendencies and they have increased over the last year. Not sure if it is the PD or the drugs but he had these tendencies before he started on meds so I am thinking it could be part of PD. Most people do not recognize these tendencies in themselves but are observed by others.
My husband is acting paranoid and obsessive also. He says I am mean to him. I am at my wits end.
There are enough neuro docs who know little about their specialty areas, never mind a complicated specialty like PD. Sounds like your doc should stick to easily diagnosed and treated neurological diseases, like Benign Essential Tremors.
