DAILY PARKINSON'S DIARY & ETC.: All of the... - Cure Parkinson's

Cure Parkinson's

26,511 members27,917 posts

DAILY PARKINSON'S DIARY & ETC.

Casey profile image
6 Replies

All of the responses that I have received to my post here have been wonderful...I want to answer each one and I will...but the past couple of days has been busy crazy. I had the dr. appt. today and mentioned his blog and how helpful you have all been and he said THAT' FANTASTIC!!!!

I am going through some serious changes right now with the PD and starting a new medication tomorrow but the dr also asked me to keep a daily PD diary for at least the next 6 weeks...until I see him again..and once again I find myself here asking for help and your wonderful advice. I have kept a handwritten journal since i was 10 yrs old...52 yrs of notebooks in the attic...but I have no idea what I should be writing in my PD Diary day to day...any ideas or hints???? What is the most important things to keep track of...what's not imp. if anything? I can sure use all of the help I can get.

Another thing at the dr today that really grabbed me...symptoms that overlap...from PD...to Diabetes...to a thyroid problem...weight...sleep apnea...I don't know anymore if I can tell what is causing what...reaction to meds...it's a real job trying to figure all of this out...I thank you in avance for any info and insight that you might share with me...casey in NH

Written by
Casey profile image
Casey
To view profiles and participate in discussions please or .
6 Replies

Keep track of:

when you take your meds, how soon they "kick in", how long they last, the times you eat...are you taking your meds on an empty stomach and waiting an hour to eat? taking them with your meals?

Write down any problems you are having and how that relates to when you took your last meds...emotions, feelings, movement...

I had blood pressure problems until I get the right combo of meds for me.

Write down how much sleep you get and when you sleep (I slept all the time before my meds were changed).

Hope this helps!

Court profile image
Court

I agree with Di. Would also add if your tablets show a reaction to any particular foods, in particular proteins.

I was advised to take meds on an empty stomach as Di said and I have noticed that they don't work as well if I don't stick to this advice for any reason.

Also, keep a note of the time of day you are at your best.

It really is important to keep a note of even the smallest change even if it seems unimportant. Your comment about diabetes is interesting as I have recently been diagnosed with Diabetes 2 and wonder if this could be affecting my meds. Have not seen my Consultant since this diagnosis was made so will see what she says.

Good luck.

Sue :-)

jillannf6 profile image
jillannf6

Hi you r doing. Great just by hip keeping a journal

U know what to do

Lol Jill

Casey profile image
Casey in reply tojillannf6

Hi how are you? Always good to find a note from you. I hope that you are doing well...I think I read that you are going to be are have recently moved...what an experience that must be!!! I am starting my new med and that 6 weeks of a daily diary for the dr and heaven knows what he'll think when he reads what I a sure that I'll have written for him!!! I am on Facebook and this week-end has been an experience talking with friends (mostly folks in my everyday life that I don't see as often now)...and the discussion has been overlapping symptoms from one ailment to another...and I fund myself tid up in knots crying more than I care to admit. Pure craziness. I came here tonight/morning to read over all of the post that I have goten here as I find them al so helpful & calming...Have a great week and do keep in touch!!!!!

nicfin profile image
nicfin

Hi there, check out the PD diary at parkinsonsdaybyday.net or facebook.com/daybydaypddiary. The Day by Day with Parkinson's disease diary is an all in one aid for people with Parkinson's disease. Record your symptoms, track your medications and learn about the Parkinson's disease.

tlongmire profile image
tlongmire in reply tonicfin

$19 to mail a $27 dollar book is a little much. Maybe it can be purchased in the U S. Anyone know if it is?

Not what you're looking for?

You may also like...

The Fight Against Parkinson's Disease

Most of you on this site know I’ve been doing Rock Steady Boxing (RSB) for 10 years now. This is a...
laglag profile image

Does STRESS cause Parkinson's disease?

I have had Parkinson's disease, (Pd), since 1963. I was in a very stressful work situation, which...
JohnPepper profile image

Parkinson's and gastroparesis

I have had PD for about 7 years, i was officially diagnosed end of 2013. I have been managing the...
lauralizzie profile image

Understanding Parkinson's

Unless you have Parkinson's, you can not possibly understand the impossibility and frustration that...
pjackson profile image

Boxing and Parkinson's

My husband andi just had an amazing experience in Indianapolis, IN at Rock Steady Boxing. This...
DGrif profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.