Who assigns you a parkinsons nurse in the... - Cure Parkinson's
Who assigns you a parkinsons nurse in the uk and who prescribes your medication, gp or neurologist?
Assignment of a PD nurse depends on were your located,its as bad as none at all and as good as 4 plus pd nurses providing a daily phone consulting service and running there own hospital base clinics.So essentially its a were you live lottery at the moment.I should add that every patient has the right to subscribe to care in another area should they wish.
The neurologist prescribes as does the Parkinsons nurse specialist,the GP can of course prescribe but given the small number of patients with PD most have on there case load and the complex regimes GP prescribing is based on neurology and nurse practitioner guidance as the norm
It's a bit of a lottery whether you have a PD nurse in your area. If you are not assigned one, I would ask whether you could be. Mainly the neurologist will prescribe, and make changes in your prescription, though the nurse specialist may have some input into that. If you have had PD sometime and your medications are stable then your GP will renew your prescriptions. PD nurses are a wonderful resource in the UK, and a model of excellence in PD care. They are however usually attached to a hospital and their role is by no means a secure one. If you are interested in supporting the cause of having PD nurses Parkinsons UK has played a pivotal role in maintaining them in the community, I think there may be a campaign relating to this on their website.
hi can you please tell me where in the uk you live - both of you please x
Hi, I am down the coast from you in South East Hampshire. We have a PD Nurse who looks after the whole NHS Trust area - as others have said, it is a postcode lottery.
In my case, after diagnosis by a PD consultant, I see a Geriatrician (I'm 76) who is also a PD specialist twice a year. She prescribes my meds, although I am allowed to make minor changes, e.g. take an extra Stalevo if I feel I need it that day.
My PD Nurse can also make changes to the prescription, though nothing major.
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Oh, I forgot to add, my repeat prescriptions are provided by my GP.
Hi
I have a parkinson's nurse who is a great support.
My neuro decides what to prescribe, writes to my GP who then prescribes it for me. Trouble is, it takes 3 months to send the letter and in the meantime I am left to cope with PD symptoms / side effects etc.
I have a great parkinsons nurse dont know how I would cope with out her .I am from manchester
i live in N.WALES in gwynedd i found out about my parkinson nurse by accident someone mentioned about her my partner got the number rang it & she was in my house within 2 hrs she is an angel i wouldnt have managed without her .so far she has controlled my drugs & managed my illness my neuro takes her advice the gp just prescribes the drugs
I live on the Wirral and we used to have two Parkinsons nurses, down to one now and not so easy to access. My Consultant prescribes and changes my meds and prescriptions come from my GP who is lovely, but may be retiring before too long. I have no interaction from the Parkinsons Unit other than 6 monthly appointments. But I have access to a Parkinsons physiotherapist at about 6 monthly intervals. This is mostly to keep a check on any changes in my condition.
It really is a postal lottery as it would appear that others are provided with a better system of care than I am. I could possibly be transferred to a specialist centre in Liverpool, but this would involve a fair amount of travelling.
