A question

[SereAve]

Do any of you manage to cope well with Pk's disease and be satisfied with your quality of life? If yes, what does he do on a daily basis in detail to overcome the disease?

[PDTom]

tomparkinson.de

Tom

[00Mark]

Hi SereAve

Well some days I'm better than others, but here are a few things that help me:

• Regular exercise and taichi for Parkinson's

• Humour

• Live in the present, not some imagined future

• Healthy diet

• Rest when I need to

• Give myself credit for good things I do

• Don't beat myself up for my failures

• Try to help others when I can.

Good luck,

Mark

[Coletteflint]

Take your medication as directed and on time. Excercise regularly and with others sometimes to keep you motivated. I swim in lakes, go to the gym and do boxercise and yoga classes. It’s great fun hitting things with friends!

Eat healthily as much as possible.

Stay engaged. I volunteer as an adviser at Citizens Advice. It’s great to research peoples problems and help sort them out. Also you soon realize there are much worse things that can happen in life than PD.

Laugh and have fun with friends! I’m always late for everything and my friends all join in now when I rush in and say (with a twinkle) “I’m sorry I’m late - it’s the Parkinson’s!” Didn’t have an excuse for the previous 53 years!

Enjoy nature and everything you have and live in the moment. Even the healthiest person alive has no idea what might happen tomorrow.

[Edge999]

ketogenic diet. Look up Matthew Philipp’s and Laurie Mischley.

[Coling]

cope well? Yes I was diagnosed 8 years ago and I’m still doing practically everything I did 8 years ago apart from tremors, shaky when cooking, and back ache and stiffness but frankly I’m also 8 years older so yes my life is good it’s a mix of intensive exercise dancing singing and staying social

[Coling]

but Parkinson’s is not one disease and it affects people differently at different rates

[TomGreen]

Have a look at the followig web site:

nutritionandhealing.com/wp-...

This is a reply from a doctor who has Parkinson's Dusease.

[Zella23 in reply to TomGreen]

Interesting about NAC supplements. It was the first supplement I added to my husbands stack, and after 9 years of PD he still takes it among other things he does. I take it occasionally as I have asthma and breathing issues, it definitely helps with that too.

[nabus]

Take the meds and get the book called The New Parkinson’s Disease Treatment Book by Neurologist Dr. J. Eric Ahlskog. I was given the advice by my first Neurologist, who recommended to take the meds and benefit from them while you can and be the best version of yourself. Exercise is very important too.

Waiting to start the meds while you suffer is a lost opportunity in my opinion. A steady regime has given me a relatively normal life for several years and has allowed me to fully benefit from an active lifestyle and to stay strong. I also go to Rock Steady Boxing as well.

That being said, I do have some dyskinesias and some off times but I feel I got the best bang for the buck. I have Young Onset PD. I was diagnosed at 44 and I just turned 60. I am now seriously exploring DBS as the next therapeutic stop in this journey. Be at your best now, waiting, in my humble opinion, causes needless suffering. My two cents. If you disagree, that’s fine. Readers please don’t bother critiquing my post. It’s my experience and what has worked for me. Best of luck.

[nabus in reply to nabus]

Sorry I may have replied to the wrong post. Dang!