Switzerland News

[eschneid]

From Dr. Gallay

On Friday we received the green light from the investor and will start negotiations with Insightec in order to buy the MRgFUS ExAblate system.

[Grumpy77]

Thanks for this update. This is the first time I'm hearing of this. Before now, my understanding was that SoniModul shut down at the 3end of January. So is this buying the MRgFUS ExAblate system from the now closed SoniModul clinic to make it fully functional for MRgFUS PTT procedures again in another clinic else where?

[eschneid in reply to Grumpy77]

Grumpy,

The team, minus Dr. J (retiring) has been searching for ways to continue since December time frame.

Looks like an investor has been found, whether private investor, academic institution, not sure. Today's news gives them the ok to find an acceptable price for the FUS machine and hopefully get rolling, somewhere in Switzerland.

[Grumpy77 in reply to eschneid]

That's great news! Let's also hope they'll find or have found neurologists skillful enough to replace Dr Jeanmonod

[lenamm in reply to Grumpy77]

Dr. Galley has been working with Dr. J I think for about 10 years. He is highly skilled and did many of the surgeries done in the past few years at Sonimodul. I had Dr. J do my two surgeries but I would 100% trust Dr. G.

[Grumpy77 in reply to lenamm]

In that case he could have easily handed the 'baton' over to Dr Galley without having to close Sonimodul, but he didn't. That probably means there's still some skills gap that is yet to be covered by Dr Galley

How long ago did you have your surgeries done? And how effective was it? I mean what were your symptoms like before the surgeries and what improvements did you experience? Was it sustained? And do you feel there's a trajectory of continuous improvements?

[Grumpy77 in reply to Grumpy77]

Or maybe Dr Galley is as good an expert as Dr J and its merely a matter of insufficient numbers that forced them to close

[lenamm in reply to Grumpy77]

It's money issues as the machines are about 5 million each and the one at Sonimodul is on its last legs. 5 years and 3.5 years and still going strong. Before I had convulsive quality tremors 6 hours a day, couldn't walk, work, drive etc because of severe dystonia. I got down to 105 lb because the tremor would burn my calories. I was in pain all the time. Now I work, drive, walk. Have some voice issues with second surgery but I have a good life! No pain! Cleared up about 90% of my symptoms. I still have PD but 100% worth the money for the two surgeries. I improved for about a year after surgery and now am holding.

[Grumpy77 in reply to lenamm]

Wow! I'm glad that FUS procedure had been a great success for you. I think the surgery works better for those of us with tremor dominant PD. Let's hope and pray the buyout is successful

[lenamm in reply to Grumpy77]

I agree and it worked super well for dystonia dominant people (which is not an official category but is what I was). Although I know some folks with no tremor it helped.

[Todd-pw]

what is this regarding?

[CuriousMe12]

Eff Pl67 DRT...xx#$%

[crewmanwhite]

Another extremely expensive treatment to treat only symptoms rather than having any positive effect on the causes of PD.

Waste of money that could be spent of helping people recover.

[eschneid]

Everyone is entitled to their opinion. Your story, John, is a great one, but not duplicated very often anywhere.

There are those of us who have tried fast walking, meditation, major diet changes and many other life changes without getting well.

While not many love their neuros and other medical people because they can't do what we really need, the ultrasound brain zap is a way to find some good quality of life where it didn't exist earlier.

It's another option for all of us people with different varieties of PD to consider.

Eric