Sleep Aids

[katescape]

I am wondering what supplements everyone takes. I have been taking 6 mg of melatonin but if I get up to use the bathroom I can't get back to sleep.

[Bolt_Upright]

I take Magnolia Bark Extract to help with my REM Sleep Behavior Disorder:

Magnolia Bark Extract healthunlocked.com/cure-par...

Neuroprotective Potency of Neolignans in Magnolia officinalis Cortex Against Brain Disorders 2022 ncbi.nlm.nih.gov/pmc/articl...

I take 400 mg at night before bed. I get mine from Swanson swansonvitamins.com/p/swans...

[Deforel_Ch]

You can try Lithium Orotate. Start with 5mg before going to bed and increase to 45mg as needed.

[chartist]

Try adding 200 mg of L Theanine to the melatonin at bed time.

Art

[katescape in reply to chartist]

I tries it but it makes me nauseous.

[chartist in reply to katescape]

If you can't tolerate theanine try magnesium glycinate one hour before bedtime. Another form of magnesium that I have found slightly more helpful for sleep is a combination of 3 types in one. Here is a link to a typical product :

amazon.com/MagEnhance-Suppl...

Read some of the reviews under the tab, " fall asleep".

Art

[Smittybear7 in reply to chartist]

I take magnesium complex before bed.It seems to help.

[JohnPepper]

There ios ONLY ONE WAY TO REVERSE PARKINSON'E DISEASE AND THAT IS TO START DOING FAST WALKING, IT REPAIRS THE DAMAGED BRAIN CELLS,

I have had PD since 1992, but now you would never know I ever had it.

DO YOURSELF A FAVOUT AND START THE FAST WALKING , EVERY SECOND DAY, IMMEDIATELY.

[katescape in reply to JohnPepper]

I wish I could but I have dizziness upon standing.

[Esperanto in reply to JohnPepper]

If only it were so simple John. Exercise is indeed very important, for some that will certainly be fast walking, but the most important thing is from my own experiences stress avoidance. Stress can completely break down your good situation in seconds. No Sinemet or fast walking can compete with that. As a good second is your sleep regimen. Without good sleep, you end up in a negative spiral that dramatically worsens your PD symptoms. However, exercise can sometimes help reduce stress and insomnia.

[JohnPepper in reply to Esperanto]

I agree! There is no ONE CURE or ONE TREATMENT for PD!

[Esperanto in reply to JohnPepper]

Reading your book, I see that you too are not limited to fast walking. You also try to get your whole lifestyle PD friendly with hard work and were quite ahead of your time in doing so. One thing you don't really mention is the importance of being outdoors, especially sunlight in the early morning and evening before sunset. Given the climate in South Africa, I can imagine that's when you just do your exercises. It might well reinforce each other. You may have already seen the video of Dr Roger Seheult that Rufous2 recommended. Given my recent experiences, I am very enthusiastic about it:

healthunlocked.com/cure-par...

[Blue-color in reply to JohnPepper]

Hi John, do you have a book or manual about I can get fast walking that indicates to me, how fast walking are you talking about, how many times a week, etc., etc.

[healthabc]

I take magnesium at bedtime, then when I wake to use the bathroom, I take Unisom 50mg.

[Missy0202]

Have you tried sustained release melatonin? I take 6mg and it does a better job of keeping me asleep than immediate release melatonin

[Parkinsunny]

My neurologist has me on Mertazapine for sleep. It helps tremendously and is also an anti- depression med.

[Hamlet22 in reply to Parkinsunny]

Agreed - Mirtazapine has really helped my husband sleep well for the last 2 years (he also takes sinemet 4 x a day) He was diagnosed 4 years ago - the sinemet helped with most of the other symptoms, but his night time sleep was very disturbed until the mirtazapine)

[Parkinsunny in reply to Hamlet22]

Yeah, the CL is amazing for me but not for the insomnia I have had for many years!!

[Jean-louisVLR]

Isn't there any conflict between melatonin and L-Dopa ?

[katescape]

I don't take L-Dopa.

[DR650SE]

I am using an Apollo Neuro vibrating wrist bandWorth googling

Made in the US

Blue tooth's to phone

[jimcaster]

This may seem insane, but due to the research contained in posts by Chartist (Art) and videos by Dr. Russel Reiter, I now take 125 mg of melatonin per night. I've been doing this for at least 6 months. My sleep is dramatically better and I have not had any side effects.

[katescape in reply to jimcaster]

I have alot of dizziness so I have been hesitant to go high dose.

[Akita4me]

Try glycine and theanine.

[CRMACK1948]

When researching melatonin for my husbands sleep problems I discovered that the minimum amount recommended was4 mgs.His Parkinson’s nurse had prescribed 2 mgs and it did nothing.6 mgs is a very small amount.I upped the amount to 15 mgs,comprising of 3 tablets of 2 mg each slow release on prescription,one 10 mg that I buy ( legally!) from US.from Piping Rock,which dissolves under the tongue.It’s solved his problem.

[Esperanto in reply to CRMACK1948]

Nice that your husband can catch the oh-so-important sleep with 15 mg of Melatonin, but I would like to make the caveat that 6 mg is not a small amount. In France where citizens are well protected, 1.9 mg is the maximum over-the-counter amount. For me this was even too much, because it gave me a headache, but 1 mg works fine for me. My advice is to start low anyway.

[katescape in reply to CRMACK1948]

I took 9 mg the other night and was groggy in the morning...

[CRMACK1948 in reply to katescape]

I imagine all kinds of facts can make a difference to what can work best for you. My husband is 75.diagnosed in 2020!and inspite of his stubborn refusal to give in,exercising daily,taking supplements etc has deteriorated at a rate of knots,lost 3 stone in weight and has chronic fatigue but can’t sleep,For him the higher dose is needed for him( and me,,) to get some nighttime rest.Your circumstances will be completely different,and so any supplements you take will be at a different tolerance level to his.Sorry thay you felt groggy though,I manage that without melatonin!

[CRMACK1948]

thank you for your comment.Here in the UK it’s prescription only,in the USA the FDA has approved it as a supplement and it’s freely available in Walmart and most grocery stores! It’s very confusing when different countries give such different advice.I did lots of research before upping the dose,and our Parkinson’s nurse said it has no side effects and larger doses are well tolerated,but the guidance has much to do with monetary concerns of supplying.

[BeedieBird]

I take quite the cocktail:

100 mg of GABA

200 mg of Theanine

10 mg. of Lithium Orotate

600mg of PEA (sleep.biomedcentral.com/art...

300 mg of Gabapentin (for neuropathy but helps with nerves and sleep)

5 mg of sustained release Melatonin

I sleep all night without waking up, unless I'm worrying about something that keeps me awake. jj