Neuropathic Pain

[Curious_Fred]

I have 16 years of Parkinson's and live a full life and Parknson'ss is under control. After a back operation (nothing to do with Parkinson's) I have chronic Neuropathic pain in both feet. This I cannot control and is making my life very difficult. I have tried all the drugs (Gabapentin ecc) even had a Boston neuro stimuator implanted (but then removed when they could not find a program that worked). Anybody got any experience with this. I am trying Biowave now.

[Thal]

Barefooting and toe stretching help me.

[MBAnderson]

Has your doctor ordered an MRI to check for spinal stenosis?

[park_bear in reply to MBAnderson]

Stenosis or radiculopathy (pinched nerve due to compressed disk)

[MBAnderson in reply to park_bear]

My thoughts, too.

[chartist]

Does icing your lower back off and on for 3 days offer any relief? If so I am in agreement with park_bear and Marc. If not, you can consider trying the basic supplements for PN of alpha lipoic acid + acetyl l carnitine, B1 (Benfotiamine), B6(P5P) and B12 (Methylcobalamin). These will lower homocysteine and help with the nerve damage among other health benefits associated with their use. If you use Benfotiamine, consider supplementing Lysine with it as the Benfotiamine tends to significantly lower Lysine levels, which is not healthful, especially for PwP who already are known to have lower Lysine levels than healthy controls. Alpha Lipoic Acid is an absolute minimum for PN.

Art

[Sydney75]

My HWP had back problems before diagnosis. His surgery unfortunately made his pain worse, straight down his left leg, now with numbness too. We did a followup CT and MRI his pedicle screws have movement. This usually causes back pain not leg pain, likely his has nerve damage. Considering revision surgery in future, not really sure.

Because your pain is in both feet and not radiating down your legs, not sure if would be from stenosis as that generally follows a nerve line down a leg. I would get MRI and if you have any hardware in your back a CT.

What helps my husband is icing, we do it every day, his back, entire leg and wrap his one foot. Make sure you have a barrier between ice and skin. We purchased multi size ice wraps that we keep in the freezer including foot sox that we place an additional small ice wrap and strap to his foot with velcro. Yes this certainly makes traveling difficult!

Gabapentin does not help much for him either, have tried multiple supplements they may take edge off it. Did change the shoes he wears and sometimes that does help. Many people take umPEA for nerve pain. He is overweight, many times he has been told lose weight, pain makes exercise more difficult. Looking into chair aerobics. PD his difficult to manage, adding chronic pain from another issue makes it double trouble.

I will post any useful info I find. I have researched the spinal cord stimulators, they will do a trial first, newer devices help both back and leg pain. Sorry to hear that it did not work for you.

-Syd