Testing the doctors: PwP want to know if... - Cure Parkinson's

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Testing the doctors

johntPM profile image
21 Replies

PwP want to know if their treatment is as good as can be expected.

In respect of PD, do hospitals keep track of the performance of doctors. Of course, this is not simple, there are issues of the reliability of the measures used (e.g UPDRS), statistical significance and bias (you may want to give all your worst cases to your best doctor ) that need to be addressed if the process is to be meaningful. But, yes I do think that knowing that one doctor has kept 80% of his/her mobile 20 years after diagnosis while another has kept only 20% mobile, is useful information.

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johntPM profile image
johntPM
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21 Replies
Smittybear7 profile image
Smittybear7

Good question? I'm trying to find a dr who is not just pushing medications. I'm also looking for someone to guide me through trying alternative methods.

Hmop profile image
Hmop in reply to Smittybear7

Me too where could I find some information, please..

Despe profile image
Despe in reply to Hmop

My husband's Vanterbilt MDS never pushed for meds. He actually helped us with MP, our choice of L/C. He was on top of Fava Beans and Mucuna Pruriens. Just couldn't believe it!

Hmop profile image
Hmop in reply to Despe

Fava beans capsules, please?

Despe profile image
Despe in reply to Hmop

No, there are no capsules.

Hmop profile image
Hmop in reply to Despe

Thanks, and which kind?

Despe profile image
Despe in reply to Hmop

favabeans.parkinsonsrecover...

If you open the link you will find all the information you need.

Hmop profile image
Hmop in reply to Despe

Thanks a lot!!

Godiv profile image
Godiv in reply to Despe

He sounds wonderful! I wish I could find someone like that.

Despe profile image
Despe in reply to Smittybear7

Doctors may be pushing meds, but ultimately, the decision is yours and yours alone! Your body your decision, Smitty. :)

HekateMoon profile image
HekateMoon in reply to Smittybear7

I have a very good spanish neuro. I see him online. He wrote Parkinsons vs Mucuna...

Moondaughter profile image
Moondaughter in reply to HekateMoon

Does he speak English? I tried contacting him before with no response but perhaps should try again-am 28 years into symptoms and wondering what his long term strategy frame of reference for what to do when MP becomes more hazardous than helpful.

HekateMoon profile image
HekateMoon in reply to Moondaughter

Hi. He does speak english. He taught Neurology in London...

Despe profile image
Despe in reply to HekateMoon

Very interesting! Does he accept new patients? Means of contacting him? I have had his book for some time.

Thank you!

HekateMoon profile image
HekateMoon in reply to Despe

I googled him. For a while he was working with 'Top doctors'. I have his number but no permission to share it. I can send his secretary number and you can inquire. My email is lunabrujisima@gmail.com He is good!

Despe profile image
Despe in reply to HekateMoon

Thank you! I have googled him several times, got his book, and tried to contact him some time ago. No response. May I PM you for all the information you need? Thank you!

Just like you, my husband takes very little Sinemet with MP (based on his book).

HekateMoon profile image
HekateMoon in reply to Despe

Please do PM me, Despe. I also left u my email address up in this conversation in case u missed it.

Despe profile image
Despe in reply to HekateMoon

Yes, thank you! I will PM you soon. :)

Love Ireland!

MBAnderson profile image
MBAnderson

The VA does. They send me a survey every time I see a doctor.

MBAnderson profile image
MBAnderson in reply to MBAnderson

Best health care possible. All you have to do is join the Army and spend a few years in a place like Afghanistan or Vietnam and get disabled.

HekateMoon profile image
HekateMoon in reply to MBAnderson

Thats very sad, Art...

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