Testing the doctors

[johntPM]

PwP want to know if their treatment is as good as can be expected.

In respect of PD, do hospitals keep track of the performance of doctors. Of course, this is not simple, there are issues of the reliability of the measures used (e.g UPDRS), statistical significance and bias (you may want to give all your worst cases to your best doctor ) that need to be addressed if the process is to be meaningful. But, yes I do think that knowing that one doctor has kept 80% of his/her mobile 20 years after diagnosis while another has kept only 20% mobile, is useful information.

[Smittybear7]

Good question? I'm trying to find a dr who is not just pushing medications. I'm also looking for someone to guide me through trying alternative methods.

[Hmop in reply to Smittybear7]

Me too where could I find some information, please..

[Despe in reply to Hmop]

My husband's Vanterbilt MDS never pushed for meds. He actually helped us with MP, our choice of L/C. He was on top of Fava Beans and Mucuna Pruriens. Just couldn't believe it!

[Hmop in reply to Despe]

Fava beans capsules, please?

[Despe in reply to Hmop]

No, there are no capsules.

[Hmop in reply to Despe]

Thanks, and which kind?

[Despe in reply to Hmop]

favabeans.parkinsonsrecover...

If you open the link you will find all the information you need.

[Hmop in reply to Despe]

Thanks a lot!!

[Godiv in reply to Despe]

He sounds wonderful! I wish I could find someone like that.

[Despe in reply to Smittybear7]

Doctors may be pushing meds, but ultimately, the decision is yours and yours alone! Your body your decision, Smitty.

[HekateMoon in reply to Smittybear7]

I have a very good spanish neuro. I see him online. He wrote Parkinsons vs Mucuna...

[Moondaughter in reply to HekateMoon]

Does he speak English? I tried contacting him before with no response but perhaps should try again-am 28 years into symptoms and wondering what his long term strategy frame of reference for what to do when MP becomes more hazardous than helpful.

[HekateMoon in reply to Moondaughter]

Hi. He does speak english. He taught Neurology in London...

[Despe in reply to HekateMoon]

Very interesting! Does he accept new patients? Means of contacting him? I have had his book for some time.

Thank you!

[HekateMoon in reply to Despe]

I googled him. For a while he was working with 'Top doctors'. I have his number but no permission to share it. I can send his secretary number and you can inquire. My email is [e-mail] He is good!

[Despe in reply to HekateMoon]

Thank you! I have googled him several times, got his book, and tried to contact him some time ago. No response. May I PM you for all the information you need? Thank you!

Just like you, my husband takes very little Sinemet with MP (based on his book).

[HekateMoon in reply to Despe]

Please do PM me, Despe. I also left u my email address up in this conversation in case u missed it.

[Despe in reply to HekateMoon]

Yes, thank you! I will PM you soon.

Love Ireland!

[MBAnderson]

The VA does. They send me a survey every time I see a doctor.

[MBAnderson in reply to MBAnderson]

Best health care possible. All you have to do is join the Army and spend a few years in a place like Afghanistan or Vietnam and get disabled.

[HekateMoon in reply to MBAnderson]

Thats very sad, Art...