Hellooo everyone.. I have a family member showing symptoms of resting tremor. The neurologist have still not given a proper diagnosis but I wanted to know how long have you all been living with PD ?
What was your first symptom how long did it take for the diagnosis after the onset of first symptom
I was diagnosed 18 years ago at the age of 46. I thought I had carpel tunnel so I went to my internist and he noticed I had a drag in my leg and I wasn't swinging my arm. He sent me to a neurologist and they diagnosed me rather quickly. I've been doing Rock Steady Boxing since 2007 and I'm still doing pretty well, progressing at a very slow rate. rocksteadyboxing.org
Rock Steady started in 2006 and now has over 800 affiliates all over the world. I highly recommend it. Let me know if you have any questions. 🥊
Laglag, I don’t feel ready for RSB bc I’m so young and (46) but do you think a form of martial arts could emulate it? I’ve been looking for the right form that is strenuous. Regarding resting tremor; my Dad had intermittent subtle resting tremor for 10+ years before untimately being diagnosed and needing meds.
You saw the report on Tai Chi? healthunlocked.com/cure-par...
Yes! Thank you Bolt! I’m definitely going to seek it out for relaxation , meditation. But I need something strenuous too.
This study is about pilates and Parkinson’s ncbi.nlm.nih.gov/pmc/articl...
I’ve always wanted to start Pilates, they have reasonably priced machines on Amazon. I may treat myself soon
yoga helps.....bolt has a good idea....tai chi, i try use both...hang tough ..cheers!
Sorry I didn't get back to you earlier. Rock Steady Boxing (RSB) had a Month to Move fundraiser walk/run yesterday and I did the 5K.
Exercising is good in general and I believe Martial Arts would give you a good hand/eye coordination workout, as well as some footwork, but I truly believe RSB is the best for PD. It gives you a heck of a workout with non-contact boxing and boxing training, weights, Tabata, stretching, jump rope, Pilates, Yoga, Pound, fine motor exercises, etc. In the 15 yrs I've been attending, there has never been 2 workouts the same. Being young is actually an advantage because you are able to do more and work harder. There our PwP's from the 30's thru the 90's. One gentleman was 102. The coaches are trained and certified and know just how much to push you. The guy that started it, a Prosecutor in Indianapolis, had PD & his friend that was a lawyer, got him off the couch & taught him some boxing moves and after a short time realized it was helping his symptoms. I could go on & on....🥊
try karate - gives you cardio, strength, left/right coordination, balance, speed development, hand/eye coord etc etc - you can go as hard as you want - kata for cardio/balance and kumite for everything as well.
Holy smokes I had the exact same thing but I was 41. Everyone asked if I had a stroke, it's been 19 yrs.
That is quite similar. What meds, supplements, exercising are you doing? Do you still drive?
I'm currently on 9 25/100 and 2 50/200. The hardest part is my cognitive issues are very bad. Yes I still drive how about you?
I still drive. Meds are: 5 C/L's, 1 Azilect, 2 Go covri (extended release Amantadine). I try to stay away from stress (difficult to do), exercise, I eat healthy chocolate, coconut oil, Emergen C regularly and Protandim, Krill oil and D3 on occasion. Keep fighting! 🥊
I thought I had had a stroke too. I was 44 at the time.
have had pd for 20 yrs first symptom 25 yrs ago im 54..1st symptom dragging right foot only noticed because right bootheel would wear down faster then the left began tremor at age 33 hang tough cheers!
I am 73 yo and was diagnosed in 2013. I know people that have been having for 20 years. Two things I have come across to be true: If you know one person with Parkinson, then you know "one person with Parkinson (each person's symptoms, treatment and progression are unique. 2) exercise is the only thing that seemed to be proven to slow progression or help symptoms.The noticeable symptom was tremor in my right thumb; however, looking back my swimming slowed down before that and may be even some constipation.
First symptom was slow eye focus in 4th grade (about 1964 until 2010 when taking a dopamine supplement for the first time) in 8th grade , after diving accident, many other symptoms arise. Right foot turned and dragged, balance was gone, had problems with too much saliva at night, had slow reaction time and it really bothered me to drive a car, I became painfully shy and didn't like to make eye contact, etc...With dopamine, all of this dissapeared for several hours at a time and driving didn't bother me anymore. It was like starting life all over again! I am still doing well, gardening, playing music, driving, baking, researching, etc
Hi
You may be interested in all these articles and videos.
The Mayo Clinic Report and the Pd Patient’s Progress in Japan are a MUST-READ for EVERYBODY stories!
Fact: Pd medication does nothing to slow the progression of Pd. So, you continue to get worse. Medication is possibly capable of temporarily hiding one or two symptoms for a short while. Then you have to take more and more to get some relief, but you will get to the point where it hardly works at all and you may well have to take other medication to deal with the side effects of the first medication. Why not try Fast Walking, which has been scientifically proved, in the Mayo Clinic report to produce GDNF, which repairs damaged brain cells and the brain then produces more dopamine and the Pd symptoms slowly disappear?
If you want more information then go to my website reverseparkinsons.net
My book, ‘Reverse Parkinson’s Disease’, has the answers to most of our movement problems and a few of the others as well. It tells you how I went about beating this horrible condition. I have lived since 2002, completely Pd medication-free. I walked every second day for 8 Kilometres in 70 Minutes up to the age of 74. Then after several medical problems I walked 5 kilometres in under 50 minutes, up to the age of 84. Now at age 87 I am still able to walk 4 kilometres in 40 minutes. Other health problems often prevent me from walking for a while, but as soon as those problems have been attended to, I start walking again, starting at 10 minutes a walk and working my way up to whatever time I possibly can, but never more than one hour.
If you have not read my book yet, then give yourself a treat and find out how I managed to overcome most of my movement problems and live a ‘NORMAL’ life since 2002, “Reverse Parkinson’s Disease?” is also available in eBook format at the following link”
amazon.com/Reverse-Parkinso...
Don’t be shy to ask questions.
Good Luck
John
Diagnosed 2 years ago.......was seen by about 5 GPs all saying i didn't have PD. Eventually after a severe frozen shoulder and erratic strumming on the guitar a specialist confirmed PD. Just coming out of my melt down stage and having to face up to an uncertain future 
Diagnosed at 28; ten years ago, primarily fatigue, gait disturbances and loss of arm swing
I have resting tremors pd. I was diagnosed 3 years ago. Its mainly stayed in my right hand. The Rytary I take has caused my restless leg syndrome to get worse at times. My right foot gets real bad when I drive some times or when I am relaxed. Sometimes its both of my feet twitching like mad. I walk and cycle and have done a bit of yoga. I looked into RDB but because of my work schedule I can't make the classes. I also just finished a PEMF mat trial /test for a friend who has a clinic that provides alternative therapy for ptsd and other emotional issues. I am her guinea pig for things. I will be posting those final results here shortly. I am 53 this year. If your looking for exercise try cycling , yoga, swimming or even tai chi. Even power walking. The idea is just keep moving and find positive ways to deal with stress. Don't feel alone, I did at first but this group of people here has been great for that.
Living with PD and enlarged prostate.
How long have you had parkinson's and can you still walk? 
Pain with PD 
How did you get diagnosed?
Living with diagnosis of PD 
