Have Questions about Duopa: My brother was... - Cure Parkinson's

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Have Questions about Duopa

Lmahaffey profile image
5 Replies

My brother was diagnosed w/PD about 9 years ago. Last week he had the surgical procedure to insert the tube for Duopa. Yesterday they programmed it to start pumping his C/L. It think it might have been his worst day since being diagnosed. He tremored almost the entire day. He did the extra dose every 2 hrs with no change in the tremors. He was freezing (not cold freezing, but unable to move freezing), which is something he normally doesn't have a problem with. His swallowing was affected. Literally, he could barely function. The doctor says "it's a process." Now...my question. Can anyone with Duopa tell me about their first experience and how long it took before the dose was regulated properly. I don't think my brother will tolerate a "process" that feels like torture in order to get the dose right. Thanks in advance.

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Lmahaffey profile image
Lmahaffey
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5 Replies
park_bear profile image
park_bear

That sounds like he is not getting any medication at all. Ordinarily it would not be a question but in this case I have to wonder if the pump was loaded with active ingredient and if the pump is working properly.

How much levodopa had he been taking orally?

Lmahaffey profile image
Lmahaffey in reply to park_bear

He has been taking C/L 25/100 every 1.5 hrs and his symptoms have been controlled.

luba1 profile image
luba1

Hi, My surgical procedure was done in April, and I still struggling with the dose! I feel much better with pump, but my biggest problem is leg dystonia.It is something wrong if your brother had to have more then 5 extra doses.

Drugs.com

Lmahaffey profile image
Lmahaffey in reply to luba1

Thank you for your reply. We can't get back in to see the doctor until next Tuesday.

luba1 profile image
luba1

Drugs.com explain how to calculate the dose, but it should be done by professional!

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