Rytary: Has anyone ever had bad side... - Cure Parkinson's

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Rytary

Isaiah121 profile image
9 Replies

Has anyone ever had bad side effects from Rytary?

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Isaiah121 profile image
Isaiah121
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9 Replies
JoeKev profile image
JoeKev

Nope

pdpatient profile image
pdpatient

Can you be more specific, please, Isaiah? Maybe, others and I can add perspective if we're given more information.

Isaiah121 profile image
Isaiah121 in reply to pdpatient

High Blood Pressure

Loss of concentration

Anxiety

Restlessness

pdpatient profile image
pdpatient in reply to Isaiah121

Hi Isaiah, no issues with high blood pressure, no issues with concentration, no issues with anxiety but i can say that I have experienced restlessness which I actually dyskinesia. Anxiety is lack of concentration is a hall mark of the disease and treated with medication. Loss of concentration and inabilit to focus is also a Hallmark of the disease.

How much Rytary are you taking now and long ago were very diagnosed? I suspect that you are on too much Rytary. So, you may be experiencing dyskinesia.

Most Parkinson's patients take anxiety medications aa far as I know. Indeed, I do. I take Cymbalta and Clonazepam.

You might have an independent bloody pressure issue that's probably going to need treatment. In fact, Parkinson's Medication causes low blood pressure, not high. I have been on blood pressure medication for a long time and now that I am taking Rytary along with Requip and Amantadine, my pressure gets too low. My doctor is going to decide whether to stop my blood pressure medication.

Parkinson's Medication's are influenced by food, other meds that you might be taking for other conditions and even each person's individual biological make up.

Work closely with your doctor who I hope is a MDS or Movement Disorders Specialist.

Good luck and best wishes for a speedy solution.

OREOLU profile image
OREOLU in reply to pdpatient

Hi pdpatient

It is good to read your post again. On what strength and dose of Rytary did you first experience dysknesia? And did you dose up because you were still having wearing offs? Did you experience dystonia too?

pdpatient profile image
pdpatient in reply to OREOLU

Hi Oreolu, the dosage that affected me was 3 x 195. 4 times a day. Yes, I was still having OFF period issues and still did until I started istradefylline. This is a very expensive disease.

OREOLU profile image
OREOLU in reply to pdpatient

Very,very expensive my friend. I have to cut down on some other expenses,just to concentrate on PD management.May God help us.Thanks again for your kind response.

pdpatient profile image
pdpatient in reply to OREOLU

Have you tried all the foundations and charity organizations? My wife has great insurance. Otherwise I could never afford the cost of the exorbitantly priced meds. You are right. God is our last hope.

horsplay profile image
horsplay

None here, I've been on it since it came out.

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