Does anyone notice a preference in body stance by leaning to the right? Especially at the hips. My husband cannot stand upright-constantly leaning. He doesn’t sleep straight in bed either! I am afraid his right hip has atrophied. Mentioned this to the neurologist, she said nothing could be done? There has got to be an answer to this problem?
Ps: he has young pd (since 35 years old)-now 56.
In case you are not already aware the name for this is Pisa syndrome. See here for further medical description: thelancet.com/journals/lane...
Consider high-dose thiamine if he is not already taking it. For more information see the recent comment by Chartist here:
I have both a lean and a stoop. They get worse the further I walk. It varies, but for the first 6 miles of a walk I have no problem, but beyond that things get progressively worse, I feel my balance is more and more impaired and I get back ache.
I have not found anything that cures this for me, but there's a few things that help:
- I put the lean down to dystonia. So, I keep well medicated.
- Stand up against a wall and lay on your back on the floor in as good a posture as possible. This seems to do a partial reset.
- Use a ski pole to counteract the lean.
- Consciously put yourself in good posture. I find that after a few seconds I forget and am back in poor posture.
- I have written an app that runs on an Android smart phone. It detects the lean and stoop and vibrates when you exceed fixed limits. If you use Chrome, you can run this directly from the browser:
parkinsonsmeasurement.org/t...
You wear the phone on top of your head, secured under a tight fitting ski hat.
I sufffeer from this too. I have to brace myself when sitting in certain types of chairs to keep from falling over.
I go to a chriopractor, he's not one that cracks your bones. He realigns my hips by using a vibrator type machine and massages pressure points, etc. It really makes a difference.
High Tech on the Low : You May Not Be Diagnosed Right
Has anyone tried “compassionate use” or “right to try” laws? 
Vinpocetine BUT MUCH MORE: Are you taking your supplements right?
Cuba! - I have been observing NeuroEPO for a long time. Sounds very promising - right? 
Husband's neurologist is weaning him off levadopa carbadopa to put him completely on pramipexol. 
