Hi guys.i am returning back. The last couple of years have been very hectic. One thing after another. PD finally took over my life. Yes took my job , my self respect, my strength and more my spirituality. It has crippled me. Can't walk , always in pain. Everything suddenly came the slowness, especially mobility. Couldn't face the world , especially meeting my friends where I used to work .people looking at me with pity . I knew want they were thinking . I stopped going. 3 yrs ago I was energetic active then the slowness came with severe back pain and finally the company retired me 2017. Life went downhill. I started to get up late , doing things I woudnt have done before. Getting up late , taking shower in the afternoon, eating breakfast at lunch , staying up all night , creating unnecessary jobs in the house constant organising and reorganizing over and over again. Even my children got fed up. I loved cooking but now I cannot peel a potato. Now i get frustrated and angry. Getting dressed even is time consuming. It seemed that problems only saw and came to my door.just then in October I was hospitalised and diagnosed with pulmonary embolism. Great just a week before I was due to fly to India for my cousin's engagement. Why why why me? I know the answer to this question it's karma. Thank God that PD can't take away my faith the only thing that I have left. I am fed up people telling me that how bad luck keeps following me. I have been told constantly it's one thing after another. The worse is that why God is doing this to me. That makes me mad but I have an Answer to that because God loves me , and that he is very kind he is helping me to surrender to him the only way I can achieve him, and moreover that when God likes someone he gives them everything but when God loves you he takes everything but he gives himself to you. But now nobody asks me. Finally i am able to walk with my head held high. My confidence has come back and now I do the things that I used to at a slower pace. Now I can get onto a bus without feeling people are looking at me. Hence why I am returning back to this site. Now I make time for myself. If I can't finish a task I leave it. But PD has given me good friends and neighbours who are always encouraging me and helping me.I thank God that PD hasn't taken my faith in God away.
Returning member: Hi guys.i am returning... - Cure Parkinson's
Returning member
Can't peel? After B1 you wll. Search Doc. Costantini, parkinsons
There was nothing in the post about peeing. She did say she "can't peel a potato."
The recommendation for her to try B1, however, may still be a good one.
You are correct. God would not put ths disease on you. He is your Father, and he loves you. If you know God loves you, then you can get through anything. Just wake up every morning and cast your cares on him. Then trust Him to carry you through. Don't ever let the enemy steal your hope or joy brcause it is your strength. God bless you.)
Message me if you like.
have you talked to your Neuro Dr about DBS?
Hi Niludi,
Glad you discovered that God loves you and that you are his beloved! He is with you 24/7. Don’t be discouraged. Read up on vit B1 and read Roy Prop’s Facebook on B1.
Wish you all the best
Thank you Niludi for sharing your experience and spiritual insight. We can learn from and encourage each other to trust in God's love for us in the face of seemingly overwhelming challenges.
Niludi,
This forum is a very good place to be if you have PD because it offers the latest research information as well as practical solutions to working with your PD meds, it can offer hope at just a time when you are feeling hopeless, years of practical experience by members, moral support when the going gets tough and a knowledge base that continues to grow with each passing day and of course there is always the possibility that God reminded you about this HU forum at just the time when you were in need of it!
Good luck moving forward and always post your questions because you never know when a forum member may have just the answer you need when you need it!!!
Art
Hi Niludi, try the b1 you're still in time. It won't heal you but it could help you like three years ago.
Thank God for your faith, friends and this site. Try the B1 as Roy says.
God is amazing. PD not so much. I'm glad your back. Don't let people get to you. God will deal with them in his time. You are loved.
Praise the lord and welcome back!
Personally, I may feel like dung most days and 28 pounds lighter (Not such a bad thing 8) but I'm still fighting the good fight until Jesus says "service complete", then life truly begins!!
Meantime, were all still here for each other, not planning on checking out anytime soon milady!
GOD BLESS ...GOD SPEED! Priase Jesus!
Mark
PS... Some of the most important words in your post, and there are many, are the last 30 or so....Amen and Amen!