Dizziness & Sinemet

[adam43star]

Hi, mum has been getting increasingly more dizzy (72 year old, diagnosed last year), is currently on 3 x 62.5mg sinemet. Has had blood pressure checked and nothing untoward. Does anyone have any suggestions?

Dizziness affects her balance etc.. and makes her less mobile and in turn affects her mood etc.

Many thanks

A

[M-o-ggy]

Had a blood test. D solved my dizziness.

[adam43star in reply to M-o-ggy]

Hey M-o-guy, what is D? Sorry don’t understand

[M-o-ggy in reply to adam43star]

Sorry. Should have been “Vitamin D”

[adam43star in reply to M-o-ggy]

Hey Thanks a million. I'll get some for my mum

[M-o-ggy in reply to adam43star]

Would suggest a blood test first. If the results indicate then it is available on prescription in UK.

[adam43star in reply to M-o-ggy]

Thanks very much and sensible. I’ll get get her to do that

[Cagey84]

Dizziness on standing (orthostatic hypotension) is v common in PD. Suggest chat with doctor.

[adam43star in reply to Cagey84]

Thanks cagey84 much appreciated. yes we have raised it with doctor; but she doesn’t have the dizziness on standing thing-has been tried. In addition to the slowly getting up stuff. She was on betahistine but came off as didn’t help. It’s odd; our neurologist not very helpful (another story) said reduce sinemet by 1 pill, suppose its a start

Will keep trying different things

Cheers

[Stazina]

Sinemet can cause dizziness,you can try Meclizine which is in Over The Counter Dramamine try 1 tab first to see if this helps then may be increased to 2 tabs every 4-6 hours for dizziness. Be sure to have a blood pressure machine at home to check her blood pressure; if it's low this could be the cause of dizziness especially if she's also on blood pressure medicine.

[adam43star in reply to Stazina]

Stazina, thanks for this. I'll check it out. Would be good to get a BP machine, because even though she's had it over the 24 hour period from GP probably better to get one over 24 hours. WIll try the medication if I can get hold of it.

Thanks again

[Kaykaykay123]

I was having the same problem.I was checking my bp every day.It was very low! My doctor told me to halve the dose of my blood pressure medication.I'm fine now and my readings are more normal

[adam43star in reply to Kaykaykay123]

Kaykayaky123, thanks for this. What blood pressure medication are you on? Thanks

[Kaykaykay123 in reply to adam43star]

Diovan (valsartan)

[PDGal4]

I get this off and on. Vestibular. Something to do with eye/brain. A PT suggested this. Went to doctors multiple times who were no help. Eye exercises help. Raise thumb and hold about a foot from eyes, turn head to right and left but keep eyes focused on thumb. Helps me when I’m feeling dizzy.

[adam43star in reply to PDGal4]

Pdgal4 thanks very much I’ll be sure to give it a try. This is very helpful

[PDGal4 in reply to adam43star]

Hope so. A very frustrating symptom especially when docs tell you to check your BP but otherwise are of no help. There are other eye exercises too, but that one works best for me. You can also move your thumb from side to side and follow with eyes only, not moving your head.

[adam43star in reply to PDGal4]

Hey PDgal4 thanks for this. Did you get the exercises from the neurologist or your optician? Glad to hear it helps you 😀

[PDGal4 in reply to adam43star]

Neither. From my physical therapist. I take an exercise class with her each week. She's trained in the BIG program and works close to 100% with PD people.

[adam43star in reply to PDGal4]

Oh wow thanks for this that’s so much appreciated. You based in London England as I’d love to get their contact information?

I’ll send you a private message shortly when back from work

Thanks

[PDGal4 in reply to adam43star]

No I am in the USA

[adam43star in reply to PDGal4]

Hey PDGAL4 thanks for this; no problemo. Appreciate your time responding nonetheless. I’ll keep you posted as to how my mum responds

[ladyaudree]

Drink plenty of water. Hydration helps keep blood pressure steady.

[adam43star in reply to ladyaudree]

hey ladyaudree thanks for this- yes am always trying to remind her to drink more, that and salty foods. At the moment, only thing helping is exercise, but thats tricky because she's dizzy and can't move around much

[ladyaudree]

Is it feeling slightly weak and woozy? If it is a 'spinning" sensation that is vertigo and much worse.

[adam43star in reply to ladyaudree]

Hey ladyaudree it’s spaced out feeling my mum always describes. You can see she’s like trying to focus and makes her really unsteady

Thanks though

[Intrepid200]

Am not a medical doctor but since I am living with PD I make it my business to understand every medication I take and there side effects

Currently my BP is normal however if I stand up too quickly or turn around too fast I get dizzy .I am Alizect , Rytary they all contribute to dizziness

Currently if I held my head down to tie my lace with my face facing the ground I get dizzy while if i execute the same movement with my face looking directly to my front I could tie my lace without feeling dizzy

Some Parkinson's disease medication cause dizziness,just before I was diagnosed with the disease I was hospitalized for Vertigo

[adam43star in reply to Intrepid200]

Hey 👋 thanks for this. How do you cope with it now? First ever time my mum took sinemet she reacted so badly with spaced out and disorientation she was taken by ambulance because they thought she was having a stroke. Suffice to say, dizziness has been a recurring theme and seems to have got worse last few weeks.

Seems like it could be sinemet but then again I’m just attempting to tie cause and effect after observing my mum for a while now.

She’s probably going to go down to 2 x 62.5mg sinemet from 4 originally currently on 3

Hope you’re doing better with dizziness thanks again