Paint

[Healthnut03toNow]

Definitely have trouble getting out of bed but worse just turning over or changing position in bed.

[Hidden]

Diagnosed 2012

My regimen:

The positives: no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...

Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.

New schedule, now I follow this regimen:

3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.

2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

[flyingfoxone in reply to Hidden]

So is that a total of 1000 mg 2x a day? (2- 500mg tablets each time?

[Hidden in reply to flyingfoxone]

2000 mg 2x a day. 4 - 500mg capsules of thiamine HCL each dose.

[faridaro in reply to Hidden]

Do you take any other B vitamins, Roy?

[Hidden in reply to faridaro]

No

[faridaro in reply to Hidden]

Thanks!

[Hidden in reply to faridaro]

Varies. For me, two weeks no constipation to one year no micrographia. Everything in between but generally four months.

[Healthnut03toNow in reply to Hidden]

I’m going to try the B1/ Thiamine protocol first. How much time does one usually try.

[faridaro in reply to Healthnut03toNow]

I think Roy gave me the answer to your question - "Varies. For me, two weeks no constipation to one year no micrographia. Everything in between but generally four months."

[Healthnut03toNow in reply to faridaro]

Thank you. Your response is helpful. Do you also take a magnesium supplement?

[faridaro in reply to Healthnut03toNow]

Yes, I do take a few types of magnesium - malate, citrate and glycinate.

[Hidden]

Will this help with the entry and exit from the bed?

walmart.com/ip/Medline-Tool...

Art

[mannp in reply to Hidden]

I have one similar and it helps. Thanks for sharing this.

[Ramondo]

I purchased a bed rope ladder from Uk website for a few pounds, very helpful for your problem.

[Hidden]

My husband is experiencing the same as you. He has been having difficulty turning over so I assist him with that, and also getting up and out of bed. He also has difficulty getting up and out of chairs. What meds are you on and how long have you been diagnosed?

[Healthnut03toNow in reply to Hidden]

DC 2 years ago. On CArb/ 3 x daily

[Healthnut03toNow in reply to Hidden]

2 years

[mannp in reply to Hidden]

I would recommend the b1 Thiamine hcl protocol. It helps. Check out Facebook group “Parkinson’s Thiamine hcl”. It is full of information on this. It stops progression and reverses many symptoms.