Hi i’m John, 71 from upstate NY in the USA - Cure Parkinson's

Cure Parkinson's

26,439 members27,854 posts

Hi i’m John, 71 from upstate NY in the USA

Johnny_joe profile image
13 Replies

Diagnosed with CLl in 2004. Prostate Cancer in 2016 and Parkinson’s in 2018. A result of being exposed to Agent Orange in Vietnam

Written by
Johnny_joe profile image
Johnny_joe
To view profiles and participate in discussions please or .
13 Replies
Johnny_joe profile image
Johnny_joe

I’m prescribed 1.5 mg of Pramipexole. Not sure if it helps PD but it helps me sleep and cured my restless legs

Motherfather profile image
Motherfather in reply toJohnny_joe

hi johnny joe have you tried cannabis oil yet.

Motherfather profile image
Motherfather in reply toMotherfather

youtu.be/YvvaUdh1VFg

Johnny_joe profile image
Johnny_joe in reply toMotherfather

Yes it helped me sleep prior to pramipexole

wifeofparky profile image
wifeofparky

Hi. Are you near Buffalo or Rochester? Both cities have a local PD chapter offering support, symposiums and information. They also have support groups.

Johnny_joe profile image
Johnny_joe in reply towifeofparky

In Fairport by Rochester

wifeofparky profile image
wifeofparky in reply toJohnny_joe

Go to Parkinson.org. They will have the contact info for the Rochester Chapter. Also go to veterans.ny.gov. They have local liaison offices that can help you get assistance with your medical bills. My Buffalo contact says as long as you had one day on the ground in Nam you qualify. Good luck Johnny_joe.

Johnny_joe profile image
Johnny_joe in reply towifeofparky

Thank you

facebook.com/groups/2322600...

Parkinson's Relief, Questions and Answers

zadok459 profile image
zadok459

Hi

I'm in the same situation - South African Army- got contaminated in the Congo(DRC0 resulting in PD

Johnny_joe profile image
Johnny_joe in reply tozadok459

How long diagnosed? What are you taking?

Sorry you're having to go through this, but hang with us...it's a great group that understands.

Johnny_joe profile image
Johnny_joe in reply to

Thanks

Not what you're looking for?

You may also like...

I Stand Corrected, A New FMT/PD Study Originating In the USA!

It is just a small (12 participants) pilot trial, but it is definitely a step in the right...
chartist profile image

The side effects from the medications that I’m on have destroyed my life

The motor symptoms and physical side effects are the easy part to manage everyday It’s the...
k100 profile image

This is the best, most unbiased straightforward daily briefing I have yet found -- from John Hopkins.

In this episode they review all the studies of hydroxychloroquine. A lot of excellent info....
MBAnderson profile image

The John Pepper controversy and Chapter Two in the Brain's Way of Healing by Norman Doidge

I just finished reading this chapter and am appealing to everyone on this forum to read it! We have...