How Parkinson affects your life? Any young people with Parkinson’s? How your cope?

[Pattz_04]

Hi wondering if there is anyone young with Parkinson’s?

Want to know how you cope and do daily activities and socialise ?

And what it did for your relationship?

I’m 19 and engaged. I struggle with day to day things and walking or even holding a spoon is now a struggle. My friend don’t see me much because they have no idea if I can or cannot do any the activities. I don’t drive and I can’t really go anywhere without my fiancé to help me. I have fits/episodes and I am falling. I feel a bit house bound. My partner tries to do activities with me but he has to work and he is military so he works long shift and can be on a deployment which I then stay with my parents.

[enjoysalud]

Gosh, I am sorry that you are being challenged so young. It would be helpful if on your profile you would list the country where you reside (different benefits and laws in different countries). In addition tell us a little of when your symptoms started, what they were, and who DX you.....a neurologist, a general MD, etc?

The more you share of yourself the easier it is for people on this site to help you. In the meantime you might want to read some of the postings.... and make use of the search bar, SEARCH HEALTHUNLOCKED located on the upper right corner of the page.

[enjoysalud]

Hi, I am back. I put in YOUNG ONSET in the search bar and there is actually a posting with that title and a number of responses.

Good luck!

[Despe]

I have never heard/read a case like yours. I am so sorry, but you are very young and can fight it. Vigorous exercise like fast walking is the best medication for PD. If I were you, I wouldn't start taking any conventional meds. Eating a healthy diet, taking vitamins and supplements will help you a lot! Wishing you the best of luck!

[jrg54321]

Do you have support groups for PD near you? Hit up Google.

[PDGal4]

Google Karl Robb. He has also written a book, A Soft Voice in a Noisy World. He was diagnosed with PD in college and is active in the PD community in the US, a frequent speaker, blogs, etc. He has found alternative therapies like Reiki helpful; is also the first to say we are all different and all respond differently. Might be a start for some resources for you.

I echo the support group suggestion. It took me a few tries to find the right one, but I've been in an all women's support group for three or four years now and have made some wonderful friends.