PD fatique: I was diagnosed with PD approx... - Cure Parkinson's

Cure Parkinson's

26,583 members27,899 posts

PD fatique

SlowhandJake profile image
13 Replies

I was diagnosed with PD approx 7 years ago. Things had been going fairly well until 3 weeks ago and then it was if I hit a brick wall with extereme fatigue. Anyone have sugggestions on how to deal with this fatigue?

Written by
SlowhandJake profile image
SlowhandJake
To view profiles and participate in discussions please or .
13 Replies
jimcaster profile image
jimcaster

I am one of many who benefit from high doses of thiamine. Thiamine, along with Tru Niagen (nicotinamide riboside), and Vitamin D seem to help me with fatigue and other symptoms. Good luck!

SlowhandJake profile image
SlowhandJake in reply tojimcaster

thanks jim what mg is considered a high dose of b1

jimcaster profile image
jimcaster in reply toSlowhandJake

Anywhere from 2 grams to 4 grams 2000 to 4000 mg). Search for posts regarding thiamine and Dr. Costantini and then email him for advice if you're interested. There are many posts and comments on here regarding thiamine.

Astra7 profile image
Astra7

Fatigue is a problem. What are you currently taking?

jeeves19 profile image
jeeves19

Try Whey Isolate every day. Recommended. Also even though it sounds counter intuitive, exercise seems to give me more energy as well.

bassofspades profile image
bassofspades in reply tojeeves19

I second that! Whey Protein Isolate and B1. Have a cup of coffee around mid day, too, for a good pick-me-up.

LAJ12345 profile image
LAJ12345

I find my husband is most fatigued when stressed or if he has something to do that he doesn’t want to do. When it is something he enjoys he is less fatigued. I think for him it is lack of motivation so having to do something he doesn’t enjoy requires more dopamine than something he enjoys. Also when there is a lot of noise or people especially the kids around he is more fatigued. If he has an argument or is cross with the kids he is often in bed all day the next day feeling ill.

Routine with exercise and bright light first thing in the morning and quietness help. Also the thiamine and other vitamins seem to help but he can be fatigued some days and not others on the same supplements.

alaynedellow profile image
alaynedellow

Mannitol is superb for apathy and fatigue. Www.syncoelin.com

luba1 profile image
luba1

Did you write in English or Italian? Thank you.

Dangmoo7021 profile image
Dangmoo7021

I take Barley Sugar lollies when you need that little kick

SlowhandJake profile image
SlowhandJake

thanks cincinnato, what mg is considered a high dose of b1

LAJ12345 profile image
LAJ12345

I have written several times and he is not replying. I told him my husband has not started taking c/l so he might not want to advise until he is. We are gradually increasing B1 anyway and up,to 2g 2x per day so far and he is a bit better than he was, although also on various other supplements also.

PDGal4 profile image
PDGal4

When I was diagnosed 6 years ago, I was extremely fatigued. A wonderful doctor who also did medical acupuncture did a blood test for B12 level. I was off the chart low and had B12 shots and oral supplements for 2 years. Levels have improved so that I take only orally now, 4,000 mcg every morning. I also take D3, 4,000-6,000 IU per day. Unfortunately doctor has moved away.

I would have blood tested for both B12 & D.

Not what you're looking for?

You may also like...

PD and Fatigue

My husband is probably at the beginning of stage 3 and his biggest problems are extreme fatigue. He...
arwenmark profile image

PD and Pain Pills

Had knee replacement on July, 2015. The surgery was successful but pain pills were used and I had...
Fredzu profile image

Grief or PD?

I was diagnosed with PD in 2018 at the age of 49. My neurologist prescribed Sinemet (2 pills 3x a...
al315 profile image

PD and Sleep Apnea

I was diagnosed with moderate sleep apnea in the fall of last year (cronic fatigue), but the...
SAGoodman profile image

Psychogenic PD

well ,I was diagnosed with possible Parkinsons about 4 months ago , then sent for a DATscan , which...
Pezo profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.