I see so many symptoms on here that I also have, yet never see those symptoms listed anywhere else. Has anybody on here done, or could do, a more comprehensive checklist. For example, my skin is really oily, other people on here mention that as well. I think if we had a checklist that includes every possible symptom, it might be beneficial. Thanks.
Nancy
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My doctor specifically asked about oily skin. I also have that symptom.
Wow didn't know about the oily skin. My husband is pretty bald but his head is so oily.
I'm super oily all over, there has to be a connection. I've been that way my whole life, has anybody else?
Well from a suggestion I got somewhere here from someone I cannot remember who - they suggested I start making a diary. So I went online and created my own with all the symptoms I could find etc. Since my husband is recently diagnosed I fill this out for each time we visit to see if the meds are making any difference. Happy to share with you or anyone else who needs it. If you see anything that should be added let me know!! Thanks.
Medications
Started on:
Name of Meds:
How I take my meds:
Motor
_____Tremor
_____Dyskinesia – uncontrollable movements usually caused by medicine
_____ON-OF fluctuations – periods of time when my medicines are working (‘on) that I can move better than when my medicines are not working (‘off) and I have difficulty moving. “Off” periods are usually end of dose so I must get my medicines On time, I MUST HAVE MY PD MEDICINES ON TIME TO REDUDE THIS PROBLEM.
_____ Ortho Static Hypotension (dizziness)
______ Balance problems
_____Freezing or gait or motor initiation problems (feet stuck to floor)
_____Swallowing problems.
_____ coughing with phlegm
Non- Motor
______Communication Problems
______Constipation
______Depression
______Anxiety
______Apathy or trouble self – initiating tasks
______Moods Better / Happier
_____Bladder Problems
_____Nausea
Cognitive
Problems:
_____ Memory problems or mild thinking difficulties
_____Dementia
_____Hallucinations or sensitivity to hallucinations with certain medicines
_____ Drooling
______Fatigue
_____Energy increased
_____Impulsivity Problems
_____Loss of smell
_____Loss of taste
_____Loss of appetite
Sleep Patterns:
_____ Trouble staying asleep
_____Restless Legs Syndrome
_____Restlessness
_____Sleep Apnea
_____REM Sleep behavior Disorder: Vivid, active, physical dreaming
______ Daytime sleepiness
______Hand Writing
______Bradykinesia - Slow movement
______ Pain: List where on body
______Sensations: Tingling, Aches, Pain, Cold Hands/Feet
_____Sexual Dysfunction
Other:
Current weight:
Comments:
Questions:
How do I save this?. I use an iPad. I want to show it to hubby with PD tomorrow. It's almost 2am. I saw a symptom of biting inside if cheek or tongue. I do that and I think the inside of my mouth is a little puffy from a medication for Fibro. I also bite my lip. Could these be from PD meds?
You could copy and paste this to a word document if you have that on your iPad or to notebook if you have that. Or, copy and paste this to your email and email it to yourself. That may work if you don't have the other options.
I think the biting is from awkwardness using the muscles involved. Paying careful attention to the eating process is required to stop it.
Some lists are more imagination than what is really PD Tiger but yours is a good list and accurate. The only thing I wondered about is energy increased - I wish!
You may like to look at these also Tiger and Nancy This is a page with links to a number of PD questionnaires.
This is my list of what I believe are all related to my Pd. Some of these symptoms are related to lack of coordination, which manifests itself in many ways.
List of Symptoms
from my Book
Bad Posture and Limping ………………………………...
Biting the Inside of My Mouth and Tongue ………..
Clumsiness ………………………………………………
.........
Confusion with Left and Right Sides ……………….
..
Constipation …………………………………………….
........
Depression ……………………………………………….
.......
Difficulties Swallowing and Choking ……………….
.
Dribbling …………………………………………………
.........
Dry Mouth ……………………………………………….
........
Falling Asleep During the Daytime…………………...
Fatigue ……………………………………………………
.........
Flexed Calves, When Sitting ………………………….
...
Flexed Toes, When Driving …………………………..
....
Foot Cramps …………………………………………….
........
Frequent Night-Time Urination ……………………..
..
Frequent Urges to Urinate ……………………………
...
Hands Freezing in a Flexed Position ……………….
.
Inability to Concentrate ……………………………….
....
Inability to Handle Conflict Situations ……………..
Inability to Maintain Balance …………………………
..
Inability to Manipulate My Fingers …………………
..
Inability to Multi-Task…………………………………
.......
Inability to Walk on Uneven Surfaces ……………..
..
Inability to Write Properly ……………………………
.....
Insomnia ………………………………………………..
...........
Intermittent Memory Loss …………………………..
.....
Involuntary Movements (Dyskinesia?) …………..
..
Irritability ……………………………………………….
..........
Itchy Head and Torso ………………………………..
.......
Lack of Awareness ……………………………………
........
Lack of Facial Muscle Control ……………………..
......
Lack of Feedback (My brain does not pass on
information it gets from my eyes, to the part
of my brain that controls the movement of
my legs when I am walking....………………..
.........
Lack of Muscle Co-ordination ……………………..
......
Legs Freezing ………………………………………….
..........
Mood Swings …………………………………………..
..........
Profuse Perspiring ……………………………………
.........
Respiratory Tract Infections ……………………….
.......
Restless Legs at Night ………………………………
.........
Rigidity …………………………………………………
.............
Social Withdrawal …………………………………….
.........
Speech Irregularities ………………………………….
.......
Tremors …………………………………………………
...........
. Uncontrollable Emotional Occurrences …………...
Watering Eyes …………………………………………..
........
When do you have dyskenesia John?
How can have dyskinesia? I took the list of symtoms from my book. That symptom related to involuntary movements I experienced, long before I was diagnosed. You will notice the question mark after the bracketed dyskinesia. My right elbow used to flick up in the air, mainly whilst driving but occasionally at other times. I only found out what causes dyskinesia, long after the book was written.
? What causes your dyskinesia?
You know as well as anybody else! It is caused by too much levodopa in the brain, or is that wrong?
I have read in some studies that it is caused by damage to the B6 receptors from use of Carbidopa.
heres an expample
ncbi.nlm.nih.gov/pmc/articl...
I've never taken any Carbidopa. There might be another cause. Maybe we should add to the checklist at some point which medicines people are on or have taken in the past. Speaking of which, I haven't gotten too far with that yet, I work full time and I am extremely tired.
Nancy
Are you compiling a list of what people think are non motor symptoms so a bit like self diagnosis?
There are already well defined lists on the non motor symptoms of PD which I think are much more credible.
They are based on patients experience backed up by the science of what happens to our body in PD.
Trouble is it seems some specialists / doctors dont keep up to date so knowledge and care is patchy.
My husband's "sebum" began to stain the under zip cover I put on our pillows at least 10 years ago. Dark brownish yellow. I knew something was up. He washed his hair everyday. There was just no reason for it. He was diagnosed 2.5 years ago. You guys remember the Scottish lady who can smell Parkinson's ? It's the oily sebum she can detect. I just came across this article also linking in Rosacea - which my husband also has. (Though it never gets as bad as the photo herein.) scienceofparkinsons.com/201...
My skin is extremely dry and split!
So is my husbands to the point it's flaking white stuff!! Especially on his chest, and legs and his head is oily.
Forgot to add that his primary care doc prescribed Ammonium Lactate Cream 12%. It's not cheap. This was before he was diagnosed with PD.
The only thing that works for my dry body and limbs is Norwegian Formula Deep Moisture Body Lotion Dry & Sensitive. But nothing works on my hands.
My husband has flaking skin and he uses dandruff shampoo on his face while he is in the shower. This is good for flaking and rosacea also. He lathers his skin with it and lets it stay on while is in the shower. It has pretty much eliminated the flakes and reduced the redness.
I've never seen the oily skin mentioned before but my husband has that on his forehead and it goes into his eyes. I gave him a soft headband to wear. Yes, I think there's a list of symptoms on this site somewhere.
Mine goes into my eyes, that only started within the last year. I had to stop wearing eye makeup.
Oily skin is a classic sign of Lyme disease, or one of the coinfections with Lyme disease (e.g bartonella). Search the web for “oily skin Lyme disease. ”
Infrequent eye blinking
If you want another long list of symptoms, I recommend chapter's 10 and 11 of Dr. Janice Walton-Hadlock's book, Recovery From Parkinson’s, which is available for free download here pdrecovery.org/recovery-fro... . Chapter 10 (pp.139-154) addresses the many specific symptoms that have a specific location in the body. Chapter 11 (pp. 155-170) addresses body-wide symptoms.
Given that Dr. Janice employs a different modality (combining Chinese medicine with information from western medicine), I think you would do well to read the rest of the book, and her other work, too.
Does regular driving have a positive impact on the PD?
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