CBGD

[Lwag]

Does Anyone know o people in Canada with this disease?

[Lwag]

Thanks to All

[Hikoi]

Try gymbag he is but maybe on vacation. What is CBGD

[Lwag in reply to Hikoi]

CBGD is a brain disorder whe re the brain degreasing g thus Cordial basal- top of brain . The brain is not getting protein. This is before you are born and usually does not show symptoms till you're in your 60's usually, no name given till 1980's. All same family as other neurological diseases, no cure. Google or search under Parkinson's for more info. No cure. Usually 6-10 yrs to live. Each person different. I am told it is so ear only one in 20,000 may have this I guess I am the one. It has been nearly four years for me. I went from using came to Walter and now wheelchair

[gurdeep11]

i might

[grower]

Do you mean CDBG maybe? I can't help with knowing anyone with it though

[Lwag]

CBG D is Cortical Basal GangleaticDegeneration.. Google for better info on this. It is neurological. Way out there from Parkinson's.

[Hikoi in reply to Lwag]

I know you are in Canada but have you tried this US group? psp.org

Also you could ask the psp group on here

All the best