Diagnosed in 9/13 no melds yet just exercise and diet. Recently my Dr recommended Mucuna in a low dose. Should I do it? I have tremor, rigidity and slowness......
Mucuna pruriens: Diagnosed in 9/13 no melds... - Cure Parkinson's
Mucuna pruriens
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nourilo
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I take Mucuna at night before bed. It helps me sleep better get more rest. Does nothing for my symptoms though
What was your doctor's reasoning for sourcing your levodopa from Mucuna and will she/he be giving you the carbodopa to help the levodopa pass though the blood brain barrier.
What is the low dose, and how often? I know a couple of people who have had some success but I believe that for effectiveness with your symptoms you will have to find how often you need to take it by trial and error. One dose per day isn't likely enough....but you need to get some guidance and then work with it for your personal results. It's not a quick fix.
I think you have good Dr. I was diagnosed in 2010 , my Neuro Surgeon also advised me to go for Ayurvedic Meds and stay away from allopathy as long as possible. I also never took any Meds till 2012 Dec, managed well with Yoga, Exercise and Walking. In 2013 May , I took 21 days oil treatment at Kerala INDIA ( Land of Ayurveda ), since then I am on Kappi Kachhu ( Indian name for Mucana ) , it gives 2 hrs ON time. It is important to take MP in empty stomach 1 TBS mucana + half fresh lemon juice gives quick action. Please take / check from your Dr. ; about Ashwagandha Tabs 250mg after food.
If you need any help, please let me know
I am trying to wean my self off sinnemet (25/100) down from 6 to 3 and supplement with MP quick release 3 x a day ,I will add barcopa,
Okay, but I have been on raw MP ( Kappi Kachhu ), which more effective, from Vaidyaratnam Kerala INDIA. They ship world wide. Please see online link.
vaidyaratnammooss.com/pages...
hi does the ayurvedic treatment help in reducing your tremors ???
Please advise as I am taking Mucuna without any other medication but my tremors are not reducing.
Yes it does help reducing tremor to great extent, but as long as it is working i.e ON, say 2.5 to 3 hrs. While weaning - off tremor will re-appear and also induces dyskinesia, when you take frequently. So I have reduced Kapikachu ( Indian Mucana) from 1 TBS x 3 times - 4 times to 1 TBS i.e which I take when I go out to work.
You can try Amantadine, 100mg x 2 times ( 1-0-1) or 3 times (1-1-1 ) daily, which helps in reducing tremor , but it has many side effects, the major one is urine retention !!, to over that one has to take lot of Barley water.
I tried to order from your INDIA web site...how do you find Kappi Kachhu (mucuna pruriens) in that long list??
Simple, Go to : keralaayurvedamedicine.com/...
CtrlF : Type in Box : Kapi , cursor will sit on Kapikachu , proceed further for Purchase.
Short cut link : keralaayurvedamedicine.com/...
If you still have problem, please send me your e-mail, I will send you screen shots
Thank you so much for your reply! I was successful with your link, but now payment says INR 85.00, and since I use USA currency, I don't know what that means!
I've used it when Carbidopa/Levadopa loses it's abilities (which happens.) It's a natural or Ayervedic medicine that is pretty stinky but you'll think it's a miracle the first couple of times you use it.
About 2 - 3 years...A woman who is a massage therapist suggested it because C/L had stopped working well and I was in too much pain (I also have fibromyalgia) to have her touch
me...I only take Mucana when C/L doesn't work right...I can tell. Keep trying...I am...I just wish they'd get stem cells working ...that and elect a democrat (who believes in stem cell research) so we don't have to worry like we did with 'W"
People are doing the stem cell therapy from their own stem cells harvested from their own fat . I have a friend who did it in CA. If you want more info I can send you some. He says it worked for him quite well, but you still l have to exercise.
Can you please give me more information about stem cell treatments here in the US? Thank you!
This is a e-mail message from a friend of our daughter explaining how stem cell treatment works.
"My Parkinson’s Disease is stage one, which is relatively mild. In an effort to keep it from progressing to stage 2 (which will happen sooner or later), I will be going to San Diego this coming week to receive a relatively new treatment approach. This involves harvesting my own stem cells from my abdominal sub Q fat layer—yep, liposuction!! They concentrate the stem cells same day, and infuse them back in my system by IV drip, and by direct intranasal injection-which gets them close to the brain, where they are needed. That happens on Thur, Oct 13.
How does this work? Parkinson’s Disease happens when an area of the brain (substantia nigra) that contains dopamine producing cells begins to have these cells die. Don’t know why. Dopamine is a substance essential for the electrical neurotransmitter system in the body to work normally. So slowly (and sometimes rapidly) the patient begins to lose control of things dependent on normal electrical function—like fine motor skills, like writing; gross motor skills, like normal walking and posture and arm movements; certain automatic skills like swallowing, voice changes, even taste and smell; facial muscular action. Severe cases are practically immobile. There are a few medicines that can be temporarily helpful, but there is not a cure. A procedure called Deep Brain Stimulation, inserting a couple wires deep into the brain, and activating them with electrical is sometimes helpful, but that is pretty complex surgery, and results can be iffy.
A word about stem cells: These are cells we have in our bodies that can develop into different kinds of tissue. For instance, a skin cell will always be a skin cell, a muscle cell will always be a muscle cell, etc. But a stem cell is “multipoential,” ie, it can change into different kinds of tissue. It can sense from the chemical or electrical environment it finds itself in, what kind of cell is needed for repair, and it can become that kind of cell. I think the Creator had that in mind when He created stem cells. In Parkinson’s, for example, the stem cell apparently becomes a dopamine producing cell, as best we can understand it. How long it will function that way is still an unanswered question.
The Parkinson’s stem cell procedure, using one’s own stem cells is about 5 years old. It is low risk, and has some quite good results at slowing the progressive deterioration that is part of Parkinson’s"
Also check out this; youtube.com/watch?v=NLUWe5E...
StemGenex is the group doing this. There are probably others. Lots of info out there. Pretty expensive though. Texas just signed a bill into law to make it a recognized medical option.
Yes why not, If you don't like it or you get intolerable side effects stop taking it.
Mucuna Prurians is only a plant that happens to include Levodopa, in its seeds if I remember correctly.
Levodopa, first used in the 1960's and remains the best PD drug available.
The only thing that you should take into account and then only really if you have been using Levodopa for a long time and / or you have been taking large doses is the possible risk of NMS (Neuroleoptic Malignant Syndrome). This is unlikely and you may reasonably expect to avoid NMS if you wean yourself off Levodopa slowly.
Probably best to avoid Mucuna Prurians if already prescribed Levodopa. Mixing the two may result in an uncertain amount being taken
Pete-1, I read about Neuroleoptic Malignant Syndrome, since I was unfamiliar with it. Wikipedia said, "At the molecular level, NMS is caused by a sudden, marked reduction in dopamine activity, either from withdrawal of dopaminergic agents or from blockade of dopamine receptors." So, I don't understand how taking a lot of levodopa over a period of time could cause such a withdrawal or blockade. If anything, the large doses would increase the the dopaminergic agents. Can you explain your statement please? Thanks.
Hmmm, I don't think any of these statements are mine as such?
I wonder, which statement are you referring to?
Anyway, at a guess, If you have taken Doperminergic drugs, either large quantities or for a long time then you would be more susceptable to NMS. So taking them then suddenly stopping may well cause the NMS condition as described
Perhaps rephrasing the text from wikipedia may help?.
The trouble occurs when someone is used to taking a lot then suddenly stops or reduces by a large amount - I think.
Hi Nourilo. I am sorry it has taken so long to respond to your question. I have no experience with natural levodopa, but it sounds like a good alternative to medication, which has so many side effects. Have you looked at my website - reverseparkinsons.net - in which you will find a lot of useful information on FAST WALKING and the effect of producing GDNF in the brain when you walk fast. if you would like to talk to me about this then contact me on johnpepper@telkomsa.net.
I will be coming over to England on 14th September to give talks in England to Pd. support groups in Shaftsbury, Bristol, Richmond, Ashford and hopefully Romsey, where I used to live during and after the war.
I will then go to Holland for a week of talks there.
If you live elsewhere I am planning a talking tour of North America and Australia next year or even sooner.
Good luck
John Pepper
John, I don't know how to write to you directly. When are you likely to come to Romsey? sheila_34.at.tiscali.co.uk. Are you in touch with our local group?
• in reply toJohnPepper
How can i wak FAST when walking in general is difficult, due to balance problems? I live in BC, Canada.....do you have Canada on your talk schedule?
We have also gone the Ayruvedic route. Started on Zandopa 1/4 tsp three times a day mixed in 1/2 cup water....started very slow so that there would be no gastric problems...He is now taking 1 tsp three times a day...along with aswaganda and bacopa...He has been on this course for over a year and has done so well. Not totally free of issues...still working on "seeing" people....which could be an adjustment in the dosing ...which I have done... Just went to an Aryuvedic doctor last week. She said that because he has only been taking these "meds" he has no motor issues...she tweaked what he has been taking, added some other herbs and medicated oil for nightly message and brahami for head massage 4 times a week. just started that...I wish you much luck and congrats that you are taking this path...like our neuro, you have a forward thinking and open minded doctor...we are both very fortunate....best to you
mktbob55... Seems Sally relies on MSNBC for her particular warp on reality. Members of both parties support stem cell research, but GOP prefers autologous stem cells derived from one's own fat/tissue, marrow, umbilical cord, etc., versus fetal stem cells. Meanwhile, she and her fellow liberals continue to shut their eyes ever tighter as late term abortion and wholesale fetal organ harvesting continues to take place unchecked at Planned Parenthood facilities nationwide.
Please let's leave political comments off this board. It is definitely not the place for them especially since most are not backed up by facts.
I wholeheartedly agree that this forum should stick to the subject at hand. With that in mind, maybe you should have addressed this to SallyS who first floated the absurd notion that only dems support stem cell research(?).
I simply pointed out the moral distinction between where conservatives draw the line on creating/harvesting stem cells, tissue, and organs, and where the dems FAIL to draw any lines (as US taxpayers continue to pay for harvesting tissue/parts from viable life forms).
I was compelled to insert a dose of fact into her fiction (*Note: Following FACT is for those able to open their eyes and consider inconvenient truth only!): centerformedicalprogress.or...
Check out "Center for Medical Progress" - Wikipedia. Adding additional fake data to your post is just more proof that you are committed to your political agenda.
I was diagnosed with PD 4 years ago and have been taking levodopa/carbidopa for 3 years. The LC has worked well; however, I'm finding that I need to take it more and more often to get the same effect. Some people in the forums have said that taking Mucuna in addition to LC gives them more relief than just adding additional LC. There is speculation that there may be additional and as yet, unknown, substances in the Mucana that help with the symptoms. On the other hand, I have read that at least one batch of Mucuna that was for sale to the public was found to be contaminated with lead from the soil where it was grown. My question is: has anyone researched this purity issue with Mucuna? Are there certain brands or certain sellers that you have reason to belief sell a pure product? For that matter, are there certain brands or sellers that you suspect sell an impure product? Thanks for any of your wisdom.
And, I would like to add, the plant from which the Mucuna Levodopa is taken, does that have any chemicals that may be described as toxic but we have yet to fully investigate this plant in detail.
If you investigate tobbaco say, you would find many substances, about 5000, that are present in the plant prior to smoking or as a consequence of smoking.
If the Mucunna plant had similar numbers of chemicals, or even a lot less, how would you evaluate the content sourced from the plant rather than synthetically produced Levodopa which should be more pure?
Or taking the Leveodopa from the plant will contain so many other substances that we know nothing about. What long term toxic effects may lurk in those seeds / leaves?
I can see that you are determined to continue this political discussion. I have lost a lot of respect for you and since there is not one bit of truth in this, why would I think anything else you have to say has any value?
Your inability to distinguish "politics" from issues of morality is troubling. This, together with your baffling definition of "truth" and "fact", indicates severe synaptic misfiring.
Are you suggesting that the videos have been faked... or are you just unhappy that undercover methods were used to expose the perpetrators? Or perhaps - as is typical of useful idiots everywhere - you're drawing your conclusions without even viewing/considering the evidence(?).
Squeezing your eyes shut won't change the FACTS... it simply exposes one's status as a willing shill.
Pete-1, your questions are all good questions. I doubt that we'll ever find exhaustive research on Mucuna, since it's a plant and not a drug that is patentable and therefore not highly profitable for any drug company. However, I think I remember reading that it was used in Indian Ayurvedic medicine for several hundred years to treat Parkinson's-like symptoms. Surely, these Ayurvedic doctors kept notes on what worked, what didn't work, and side effects of substances. I've been searching for such notes, but haven't been able to find any. Does anyone know where to find Ayurvedic doctors' observations about the effects of Mucuna on people with Parkinson's-like symptoms?
Hello, Heartsong, I am new to the group. My husband was diagnosed with PD 3-1/2 years ago, and is on Azilect only but we have been discussing Mucuna with his Movement Disorder specialist. She said he could try it, and stay on Azilect but I am concerned about the possible interactions.
In my research, I found an excellant book on Amazon, written by neuro specialist in Spain. It has been translated into English and it reads a little rough, but the info is detailed, with supplement names, dosages and lots of info on the benefits of a natural supplement, affecting several brain neuro-transmitters, rather than one synthetic chemical (levodopa). Much less dyskenesia, too, depending on what drugs you are on, and the weaning down process.
Dr. Maldonado strongly recommends using Mucuna under a physician's supervision, and not taking it with Azilect. We have found an Ayurvedic doctor to help when he is ready to try it.
"Mucuna versus Parkinson: Treatment with Natural Levodopa" by Dr Rafael Gonzalez Maldonado
First edition 2014; I bought the Kindle version
Hope this helps!
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