geoff

[mekewero]

any kiwi s from Upbeat here

[marieboyd]

Yes i am...from whangarei

[mekewero in reply to marieboyd]

hi Marie, i used to live in Kamo,with family40 + years ago.How long has PD with you?

[grower]

From Marlborough, but from upbeat?

[mekewero in reply to grower]

a group that has been formed for sufferers under 55

[trishie]

From nelson.? Upbeat ?

[mekewero in reply to trishie]

upbeat,the group of suffurers under 55....and apologies...hi &thanks for your reply

[mekewero in reply to mekewero]

dahhh,sorry folks, I got the age wrong

[mekewero]

a couple of points to clarify..i am not Maori,but have huge respect and grace with them.I have a little knowledge of Te reo. I hope my nom de plume means much shaking .of hands

[Bolero in reply to mekewero]

Meke means fist, wero means to challenge. With some creative translations you could just about make "much shaking of hands" out of it. A wero is performed mostly at a powhiri (welcome) these days so there could be an opportunity there to bend the rules a bit. But hey I like the look and sound of your nom de plume mate, so no worries at all about what it means. I am Maori btw and my full name is Robson Te Puanui Chamberlin from Auckland, but I lived in Whangarei for a while so I know it quite well.

[gdublu in reply to Bolero]

Thanks for the reply,yep it was a case of guessing,and not researching.I see that it could be offensive so I'll see if I cann edit another n d plume

[Hikoi]

Hi Kiwis

Upbeat - acronym by Dianne of Dunedin a few years ago - understanding parkinsons by education ....

The rules as I understand it, diagnosed before 60 and currently under 65.

[mekewero in reply to Hikoi]

yep that's the one

[marieboyd]

Hi mekewero...i was dx a year ago at age 56

[mekewero in reply to marieboyd]

I cant count ,we were born in 1959,but I age myself as 55 ..lol...oh yea ...must be parkys ay

[laglag in reply to mekewero]

You can always say you are 5 (or 6) years away from 50. LOL

[mekewero in reply to marieboyd]

hows it going for you ,the meds make a difference aye

[marieboyd]

I think they do,,,dont really shake more like trembling at times..but have other symptoms...slowness, ridgety, have problems with throat pressure & bresthing...also feel slighly "dazed"most ov the time...stopped all bar 1 of the entacapone as was causing problems with the pressure in my mouth..sounds wierd i know. .how about you?

[mekewero in reply to marieboyd]

+ropinarol and cinamet..energy level is up ,,and the shakes stop with cinamet ..nuerol has them 3 times daily ,but the shakes come back after 4 hours.i remember me pre medication.cramps/legs ,lethargic..left forearm shake/tremble..wake up in morn with my toungue stuck to

my top gum