Deafness and Parkinson's

[mjpeatchey63]

Has anyone had hearing problems since they were diagnosed with pd? and has it affected your quality of life ?

[Beemacs]

Yes, my hearing is bad, my sense of smell is about gone, my balance. Is terrible, etc. etc. etc.!!!

[Court]

Yes, I have hearing problems. But I have never associated these with Parkinsons. Rather to do with age. However, I would be interested to see if my problems could be related to my Parkinsons.

[libberty21 in reply to Court]

My life is over since having DBS.DONT get up till about 11 and gp to bed at 6 so exhausted all the time.nobody is helping me.

[Hidden in reply to libberty21]

What ? Where are you located? Tell us more and we will help or get somebody to help you. When did you have the surgery and have there been follow ups ? This should not be buried in an answer to a post. Please start your own post click on "write a post orange button" a title like HELP would be good.

[justaninconvenience in reply to libberty21]

Liberty - i have not had any surgery but my daily life is similar to yours. My neurologist retired one month ago but in October when I got A 2n opinion from a Movement disorder dr. he acted hurt and abandoned me and simply put I went from a model PWP for 7 years to a person on the edge of a nervous reakdown in just one month. What led to my demise was Requip Xl fueling ICD hunger. Next the Nupro patch = my last chance at an agonist failed. Now none of either stalevo, Sinemet 25--100 nor 50-200 ER work anymore like before when i used to exercise ten x per week. It is now down to twice /week becuz i walk around like a zombie 12/7 + sleep 12/7. MY 17 yo son doesn't understand and my wife is getting frustrated. Instead of 3 meds i'm up to 7 and my regressing low blood pressure, constip'n and failure to sleep half the nite bcuz i do half the day have got me on the ropes. pls say a prayer.

[Hidden in reply to libberty21]

libberty21 Several months ago, you answered a post about DBS with :"You will be fine. The best thing that can happen to you . wonderful opportunity for you."

How did you get from there to "my life is over since DBS"? What happened in the past few months? Contact the National Park. foundation for help.

[Hidden]

libberty21. I agree with GymBag. Your answer to a post is very distressing. There is always help for you. Please reach out... and please answer.

[Lizzie7]

Hi, yes, I'm a bit worried about this at the moment. At first I didn't think that hearing problems could be related to Parkinson's but if sense of taste is related and ear, nose and throat are linked and we have a brain condition then I suppose it could be.

In my situation, I'm deaf in one ear anyway since birth. I used a wax ear plug recently overnight and when I removed it, my hearing (in my good ear) was affected. Everything sounded muffled. That was about a month ago and my hearing hasn't returned. I'm assuming that the ear plug has affected my hearing, though it's unlikely. I'm seeing my GP on Tuesday. I doubt if she'll know if hearing is connected to PD symptoms but hopefully I'll find out. If I learn of anything I'll report back.

Good luck with your hearing, I hope it's just temporary. As if we don't have enough symptoms to put up with!

[Hidden in reply to Lizzie7]

Hi,

Sorry it's so late on from this was written. But I just wondered how you got on with your hearing?

I have lost hearing in one ear just waiting for cros hearing aid, but I am also now getting muffled hearing in left ear, I wear an ear plug in this ear because my hubby snores.

Just wondered how you get on

[Coblrman]

I've had ringing in both ears since summer. Drives me crazy at times.

[mj2dg in reply to Coblrman]

I've had ringing in my ear for 3 or 4 years and eventually you learn to ignore it most of the time.