and if so what was the outcome
I actually have Parkinsonisiam,yet we are... - Cure Parkinson's
I actually have Parkinsonisiam,yet we are treated with the same drugs as PD.Has anyone ever stopped taking the medication completely
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Crosshalls
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17 Replies
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No, I haven't. And I wouldn't because I don't think I would be able to function at all if I did.
The point about medication is, surely, that it is treating the symptoms, not the actual condition. That would apply for PWPs and non-PWPs alike. None of the drugs we use will cure the condition, that is the goal all the research is aimed at but we aren't there yet.
Just gone from bad to worse practically overnight,can hardly walk,needs help dressing ,bathing etc,its scary,only last week he was driving walking reasonably well,but now all gone.
He hasn't got an infection has he? Urinary infections are quite common and can do that. So can dehydration.
Has he changed any of his medications recently?
As Hokoi mentioned, have him check immediately for a UTI . This happened to my mom. Urinary tract infections cause these symptoms
As Hokoi mentioned, have him check immediately for a UTI . This happened to my mom. Urinary tract infections cause these symptoms
Do you know what type of Parkinsonism he has?
I would be very careful about stopping medication, depending what he is on and for how long it can be harmful to stop suddenly.
No urine infection,and definitely parkinsonisiam,he does not have a tremor,but not all do,but will see our doctor on Tuesday must get to the bottom of it,legs red and swollen,and skin flaking off,my poor man is in a mess,sleeps most of the time,but then he is 86.
I have been diagnosed with atypical pd and none of the drugs seem to help.. so I don;t take any and seem to be doing quite well. I have got no tremor. but do freeze quite often my handwriting has become so small it is illegible and my speech is bad but this often depends on the day. I had a positive DATsan for dopamine depletion but the ct san of the brain is normal because I don't fit into any catergorie the neurologist just says wait and see if anything happens I have been looking at my symptoms and the nearest thing is pure akenesia with gait freezing which is a type of psp but the neurologist
says no.
your symptom are just like my husband,and that's why I think drugs are not helping him,plus he had a fall and hurt himself,which was a trauma,the doctor gave him a 2nd lot of anti biotics,which did not go with his meds.His speech is bad,so is his writing,and he has that deadpan facial expression,he also has difficulty turning round.But the latest phase has come on so fast and suddenly,having to order stairlift adjustable bed,and wheelchair,take care ,.and thank you for your reply
I think it can be a mixed blessing comparing to others, for example Steph is 20years younger and may have a completely different parkinson condition to your husband.
I would be very wary of stopping his meds. If I stopped mine i would be likely to fall alot, have trouble turning, no smile, not able to write and trouble talking so i wonder if crosshall has enough meds especially if he is on antibiotics. They can really mess things up and sometimes meds dont work at all when you are taking them.
Sounds to me that you have the same condition as me PSP. See my post on herer
why to suffer.Take medicine and enjoy life till you are good.Taking no med is not a solution
I was diagnosed with PSP (progressive supra-nuclear palsy )about 6months ago after being told I had idiopathic PD for four years. My symptoms are freezing, poor speech, small illegible hand writing and cannot open my eyes very easily. I am not on any medication as the side effects are worse than the benefit. There is no cure for this condition and no treatment so I just grin and bear it and try and make the most of each day. luckily I don't seem to be getting much worse.
Parkinsonisim means Parkinson of an unknown origin, Which when I had that diagnosis my insurance chose what to pay and what not to pay. When I changed Doctors, the first thing they notice was that diagnosis. When she changed to to Parkinson, insurance was happy and my bills where paid. I would wonder if your well enough to stop meds if you have PD> I would get a 2nd opinion.
Thank you all for your replies,seeing our GP tomorrow,and hopefully get some answers,and will let you know the out come.
Hi Crosshalls. I think you mean, 'Parkinsonism'! This is a term used by medics when they cannot determine which movement disorder a patient has.
I had been able to overcome Pd, ten years after I was diagnosed. At that point I stopped taking the Eldepryl, which I had been prescribed, with no ill effects. No Pd medication has any proven positive effects on the progression of Pd, so whether you take any medication or not, your Pd will continue to get worse. Medication can only hide some of the symptoms for a short while. That supposedly makes patients feel better for a while, but that period of time also gets shorter and shorter until the medication has no effect whatsoever. You are then left in the situation where you are unable to move and there is nothing you can do about it.
The only proven way of slowing down, or even reversing Pd, is to do hard walking for one hour, three times a week. You will obviously not be able to do hard walking for one hour to begin with, but you can slowly build up from five minutes to an hour over a period of six months. You will feel a lot better with that exercise, than you may expect. It is hard work, but it s worth it.
John
Ken now much worse,gets confused,and has started having hallucinations,doctor visited yesterday,and gave him more pills,also falls getting more frequent,its scary
