Mob Rule: Were does all the data that we... - Cure Parkinson's

Cure Parkinson's

26,582 members27,897 posts

Mob Rule

anthonyjohnrobinson profile image

Were does all the data that we summit to trials, questionnaires, specialists, general practitioners, other health care professionals, insurance companies, welfare workers and amongst our selves go? Who coordinates the information? Is it coordinated? If, as I expect, it all ends up on different desks, databases, filing systems or on the cutting room floor then we are swimming against the tide. Enter stage left, crowd computing, all the data available to all the people all the time. It is a bit like Wikipedia, with the data supplied by machines, by experts or by us the crowd, the data can be questioned added to or subtracted from by any data supplier with almost instant feedback. For example, a questionnaire submitted by a health care professional may not ask the right questions, they may not be needed for their research, Get the crowd involved, including other experts then questionnaires that have a large percentage of similar data requests can also have more specific data for all to use. If we ask questions we may get conflicting answers but if all the answers are visible then the conflict can be worked through. With the experts on-board to ensure that misinformation is avoided, the crowd to put their personal slant on things and machines to do the tedious stuff.

Written by
anthonyjohnrobinson profile image
anthonyjohnrobinson
To view profiles and participate in discussions please or .
8 Replies

This is the machine/expert side of things. Not the crowd of sufferers, carers, family, friends and so on. If I have a bad few minutes they are my bad few minutes, but somewhere in he world someone else may be having the same bad few minutes. How would I know? I could post it on this message board, FaceBook, Twitter or any other social site. But it is a slow to react system, if the input can be modified in real time, in a real specialist environment, then I may find my long lost brother of situations.

honeycombe3 profile image
honeycombe3

Hi there,

I love the suggestion but have no idea how practical it may be. In the words of the song "there are more questions than answers".

Hikoi profile image
Hikoi in reply tohoneycombe3

Agree with honeycombe re practicalities Anthony unless you can persuade with more detail. I am imagining conspiracy theorists having a heyday over centralised data control.

anthonyjohnrobinson profile image
anthonyjohnrobinson in reply toHikoi

Hi,

I am not an expert on this crowd stuff, but there seems to be some interest. An athlete sponsored by his or her fans. A problem outsourced to the crowd instead of one consultant. Information verified by the crowd. ...................

Hikoi profile image
Hikoi in reply toanthonyjohnrobinson

OMG a whole new thing to find out about, thanks Anthony

Is this sort of what you mean? The questions at the end are particularly relevant I think.

phys.org/news/2014-01-crowd...

anthonyjohnrobinson profile image
anthonyjohnrobinson in reply toHikoi

Yes that's what I mean. Any contribution small or large makes a difference, whether it be a sponsorship, problem solving, research or experience.

anthonyjohnrobinson profile image
anthonyjohnrobinson in reply toHikoi

It beats one department not sharing information with another and missing out on a solution.

anthonyjohnrobinson profile image
anthonyjohnrobinson in reply tohoneycombe3

Hi,

I agree there are more questions than answers, but it would be nice not to have to keep repeating ourselves. Just think how many times you have had to provide the same information and multiply that by the number of people in the world doing the same thing. Of cause I am not talking about personal information, more on the lines of comparing notes with the world.

Not what you're looking for?

You may also like...

Results of Mannitol Repository from Clinicrowd

Dear Friends, some of you were very helpful in filling up the repository about the effect of...
Ranico profile image

Categorize Differences ?

I have said before, my first neurologist , a world recognized doctor in the field of PD told me 20...
Gymsack profile image

Coconut Oil for Parkinson's - "non-clinical" trial. Please Participate

Many of us have become impressed and have experienced personal benefits from adding a few...
fwes profile image

New Rule on My Blogs

Look if your going to comment on my blogs . Please have the courage to write a little about your...
Captsteve profile image

Please add your voice to the Flash polls

One of the central strengths of patient led communities is their ability to tap into the patient...
JonStamford profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.