a poem

[SuKas]

sukas-myworld.blogspot.com/...

[PatV]

Xcellent! thanks

[SuKas in reply to PatV]

Thanks much

[Lillee76]

I read all your poems and enjoyed your humor and courage.

I hope I will be able to have your "I can do it!" attitude when

I encounter the coming trials of having PD.

[SuKas in reply to Lillee76]

o h thanks for me humor is one of the ways i deal with PD

[oldskool49]

We all have to have something to help make it through the day, or night. Still to many that think they know what we feel or think on a day to day. Our frustration to what we are becoming vs what we were. Guess that is why I try to joke about my battle. No need in seeking out sympathy.

[SuKas in reply to oldskool49]

Very true, it is upto us to decide how we feel and how we express it....Frustration is constant....and u aare right we do not need pity, rather empathy will help take care

[oldskool49]

I have to look down or focus myself in another direction when dealing with people that "claim" that they know what we are faced with day to day. It always is not the next day that we worry about but the day that we rise to and we can now longer function in ways that we did the day before. Those of you that have a strong partner to help you through I hope that you know how blessed you are. Well 2 hours till pt for my new knee. Nap time.

[SuKas in reply to oldskool49]

oh yes things change minute to minute, hour to hour...it took some time for my partner to get it, but he did and he is still with me, and says will stay till the bitter end? Yes I am very thankful for that...

[oldskool49]

I have a 22 year old son. And when he said that he would be my caregiver he did not know what that meant. And he has not said but I can feel it inside that he wished that he had not. It is a lot of work and understanding when you are having trouble sleeping when everyone else is and something happens and u are calling for them to wake up and help. I can hear it in his voice.

[SuKas in reply to oldskool49]

It is tough for anyone to be a care giver...it is a big responsibility. I hope and pray that he comes through:))

[one-w-pd]

i liked the part in the poem where you still want to live, be at ease in nature, stay in your roles of mother/daughter/sister/partner.

i often think of children with handicaps and disease- they don't know enough to not be joyful and inquisitive; may we all, unencumbered by words, be so.

[SuKas in reply to one-w-pd]

yes...cos inspite of not being able to do stuff, the yearning to do it does not go away......