Just beautiful and brought tears to my eyes. I guess I have a lot to learn about this PD I've only been DX'd with for four years. Your love is gratefully accepted and mine is here for you whenever you need it.
What you wrote with that pen on paper came from the heart flowing out of your own mouth as I read it. It is exactly how I felt before I had the DBS surgery. I felt like I was all alone, a spirit shifting from this world to a world of extreme pain from the Dystonia I got Dystonia from the Parkinson's. I used to shake from my feet all the way to my neck. It was if I was a human vibrator, only in human form. However, I had the DBS surgery 14 weeks ago, and anything that have gone wrong did, but by the grace of GOD I am doing awesome now. I attibute it all to GOD, my faith, my family & friends who loved me for me. I NEVER let it get in my way of going out with my friends and they knew what to do when I needed my meds (that made me sick daily). I write down in words as you do, it is my way of thelling the world what I feel without saying the words.
I am extremely impressed with your poem, as if an Angel help you write it. I say write away, and I promise I will continue to read it and then you may write a book that others can read and know what you are feeling and it is ok. A+ to you.
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