My day: LoI am new here, but not to pd... - Cure Parkinson's

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My day

ShakeDaddy profile image
25 Replies

LoI am new here, but not to pd

Had it for ten+ .years. I am 59 yo n things are ok for now. I take meds 4x a ofday, keeps me moving! Mostly try to maintain each day, got great support @ home. Each day a new challenge.,but gotta keep shakin! Any one needto vent or just talk, send me a private message for contact details. Thanx for listening.

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ShakeDaddy profile image
ShakeDaddy
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25 Replies
AndyC profile image
AndyC

Hello and a warm welcome to this site. We are an awsome worldwide community. On here you will enjoy stories, jokes and anecdotes....and as you have probably already noticed, a bit of poetry. I`m a regular on this brilliant site but new to Parkinsons (I was diagnosed Oct 2011.

Anyway a warm Yorkshire welcome from Sheffield, England

Andy :-)

ShakeDaddy profile image
ShakeDaddy in reply to AndyC

Thanx for the welcome,Andy. I'll be on as much as I can. Great to talk to people that can relate to what pd people have to contend with. thanx again n "shake~a~leg" !!! Shakedaddy from sunny California

AndyC profile image
AndyC in reply to ShakeDaddy

Hi Shakedaddy

Told you this was an awesome community didnt I?.....I see you`re in sunny California...well here in Sheffield its currently very frosty with temps dropping to -5c overnight and a good chance of snow tomorrow! guess where I wish I was right now? lol :-D Anyway I hope you have a great weekend

Andy :-)

lotty profile image
lotty in reply to AndyC

Hi I'm Lucinda. i am 43 and was diagnosed in Oct 2011. I take Madopar 4 times a day x

jazzfan53 profile image
jazzfan53

Greetings and welcome. I was diagnosed at 49 and I am now 58. I'm better since having the DBS surgery in 2010. There is a wide variety of people here and everyone has something interesting to say or observe. This site has been great for me !

shasha profile image
shasha

hi there - i am 65 and live in france with my husband and daughter mims - soon to be going to live with her fiancee steve in the auverne.. i love everthing about this site but esp the people ,, so welcome !

Welcome I am 63yrs old and from Yorkshire This is a great site. I was diagnosed 11yrs ago and told I was very lucky to have the slow form of Parkinsons. I am also v lucky to have a super pd nurse who supports me and my husband when needed and helps me with most of my problems But most of all its good to talk and realise Im not the only one with parkinsons.All you with the poetry etc please keep us going I may even come up with something myself who knows Its surprising what thoughts come into your head 3am onwards

Hi Shaky,

A very warm welcome from Scotland, i was dx nov 2011, al though been told i have had Pd for 10 years , , will not give in to this pice of crap , you have came a cross a wonderful site with some awsome people

Regards

Al

ShakeDaddy profile image
ShakeDaddy in reply to

Hey Al...I like ur attitude.! Piece of crap is an understatement! it may slow me down but pd will never break me down! Just shake~a~leg n keep on keepin on. Be strong ! " Daddy"

ops ment to say iam 52 years young and turn 53 next week

Al

Bambi profile image
Bambi

Hello from me here in North Wales, I was Diagnosed in October 2011 with mild early onset of PD I am 52 years of age, I think I speak for most people on this sight by saying they are all a warm friendly bunch of people who keep us all going with their poems and thoughts.

Oh and Happy Birthday to Al for next week .

Bambi xx

ShakeDaddy profile image
ShakeDaddy in reply to Bambi

Thanx Bambi, i feel welcome because of all the response I got from my 1st blog! I love this site. I thought I was alone for a long time, but this has given me a lift in spirit. talk to u soon........"Daddy"

Joealt profile image
Joealt

PoweringForward.org

CheriH profile image
CheriH

Hi Shaky, Welcome from the great state of Tennessee, USA! I was diagnosed in June 2011, and am fairly new to PD and this site. I hope you will be as happy as I was that I found this wonderful community. It has been a blessing!

ShakeDaddy profile image
ShakeDaddy in reply to CheriH

Thanx Cheri nice of you to reply!! Nice to have real people that understand pd. hard for my family to wrap their head around this thing but they are learning. (ha ha) Hang in there ok? talk to u later, i hope. "Daddy"

Court profile image
Court

I agree with all the above comments. This site is brilliant. Welcome. I feel as though I have made new friends.

If you need to know anything, ask. Someone will have the answer or if not, will know how to find it. There is always someone there night or day.

We are a community and all support each other.

Sue

parkey profile image
parkey in reply to Court

hi shakey im parkey i also have had our little friend for over 12 years,take msds every 4 hours to keep moving,im from washington state USA.where are you from?

ShakeDaddy profile image
ShakeDaddy in reply to parkey

Hey Parkey' Twelve years n seems like my whole life! I am from California n my whole family live in Port Orchard, Kent n Seattle.

larry33b profile image
larry33b

Welcome, I was dx over 11 years ago and am very lucky that I Mstill able to get around, albeit slower than before. I just moved from Oregon to Benicia, CA to be closer to my dear friends,

larry33b profile image
larry33b

Oh I forgot to say I am now 66.

PatV profile image
PatV

Welcome! I'm in NYC . We're really nice here but don't want anyone to know. Gotta keep up our rep, ya know:) I'm 71 with PD 9 yrs. Dx 7 years ago. This is a greaat site to vent. I get a chuckle in the middle of the night. Love the international flavah:D

parkey profile image
parkey

ok im from cle elum live at the lake i go to booth gardner in evert thats were my dr for parkinsons is

srarndt profile image
srarndt

Hey Shake,

A belated but warm welcome to the site! The folks who use this site are wonderful and caring. I never sign off without having learned something new.

Dx almost 7 years ago, age 58 now.

Chat more later!

Steve (Bisbee, AZ)

jillfd profile image
jillfd

Aloha and welcome! I was diagnosed 10 years ago at the age of 45. I am not the " shaky" sort so often folks are surprised that I have PD. I have a lot of muscle stiffness and, this I don't like to admit, pain.

Retired due to disability and moved from Califonia to Hawaii to be near my daughter and grandkids and be warm. I can't tolerate the slightest bit of cold.

I hold down the last bit of "night shift" here for those of us who don't sleep well at night. It's a great community with lots of support , information and an occasional online party.

My best advice -- keep moving.

gran5- profile image
gran5-

Well said alla youse guys. That's for all the people who think that people from Brooklyn, NY talk thatway. I moved to Santa Fe from NYC 3 1/2 years ago, love the beautiful views, the clean air and the slower pace of life. Visitors welcome. About PD, Frustration, fatigue, multiple Dxes, medication, new symptoms when I've just made peace with the current ones ....another time. Right now I need a nap.

so, welcome. Feel free to bring up whatever is bugging you, it might be PD related, or not. I've tried several online groups, this one wasthe best. Oh I was Dxed iin 2007, I think and just passed my 72nd birthday. Philosophically I call myself a Jewwitch!! Blessed be.

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