I had my diagnosis of CMT when I was 13 and it is not until now, 33 years later that I finally realise how it has always affected me.
Last night my husband and I took are 2yr old little dog to the beach for a walk. this was the first time in my life that I have EVER enjoyed a walk on the sand...because it was my first time with two splints. I was able to actually 'walk' beside them both, without worrying about falling over, or concentrating on the tilt of the ground, and only walking a short distance due to the extreme hard work of being able to walk.
This has been a revelation to me, a good one, but i now realise what I have missed out on all these years. I've never considered myself disabled before, but being able to suddenly walk 'normally' at 46 years old, has made me realise that exercise can actually be fun.
I won't resist help when it is offered to me again - i withheld getting my splints until I was having trouble walking more than a few steps without either falling or being knackered...don't make the same mistake. Take help when it is offered as it might just make you 'more' abled than 'dis' dabled.