confused : why is it so hard to get a... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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confused

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xxyy
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why is it so hard to get a doctor / nurse to hear you when you say c.m t

they never heard of it

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beachwine profile image
beachwine

Have you had one to say "consult your dentist"? Yep, it has happened.

jjnanna profile image
jjnanna

You have my sympathies, my Grandaughters husband has this as does his Mum ... he is a chef in a busy pub so suffers for his wages poor kid.... but loves what he does and refuses not to work, just wish he could do it sitting down !!

CMTUnitedKindom profile image
CMTUnitedKindomPartner

If you want some information to give to people you meet like this, please email enquiries@cmt.org.uk and Yvonne will send you some... obviously, include your address. We can also write directly to your GP with information.

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