confused : why is it so hard to get a... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,678 members666 posts

confused

xxyy profile image
xxyy
3 Replies

why is it so hard to get a doctor / nurse to hear you when you say c.m t

they never heard of it

Written by
xxyy profile image
xxyy
To view profiles and participate in discussions please or .
3 Replies
beachwine profile image
beachwine

Have you had one to say "consult your dentist"? Yep, it has happened.

jjnanna profile image
jjnanna

You have my sympathies, my Grandaughters husband has this as does his Mum ... he is a chef in a busy pub so suffers for his wages poor kid.... but loves what he does and refuses not to work, just wish he could do it sitting down !!

CMTUnitedKindom profile image
CMTUnitedKindomPartner

If you want some information to give to people you meet like this, please email enquiries@cmt.org.uk and Yvonne will send you some... obviously, include your address. We can also write directly to your GP with information.

You may also like...

Do Nordic Walking Poles help for CMT drop foot?

top of my foot which is used to launch forward when you walk really does not work well any more....

Having trouble accepting

Doctors are wanting to do surgery on both feet. .to correct high arch..hammer toes..and fuse things...

Is my CMT (1A) masking other medical problems?

torso is also cold to the touch and when I get out of the shower I get intense itching of the skin...

Hi can you please answer to my question. It will be very helpful for me thx

Marie tooth, the question is with the ages it will get worse my foot and my hands. Please answer...

Personal Independence Payments

all the unfortunate stories I've heard! Don't give up is all I can say.