Hello: Hi I am new here - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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Hello

lordie profile image
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Hi

I am new here

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lordie
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John1945 profile image
John1945

Hello to Lordie ....

Welcome to the HealthUnlocked website, which is mainly used by people who have Charcot Marie Tooth Disease (CMT) : Always call CMT a 'DISEASE, not a condition, or an abnormality :

This great website allows Cmt sufferer's to ask questions, and seek further information, and most importantly 'SHARE' with each other their ongoing experiences:

CMT is an inherited disease, usually 96% of sufferers, the defective gene(s) is passed on from a parent to their offspring : Its symptom vary tremendously from person to person, each individual case stands alone : Some symptons occur in childhood, but mainly present themselves in the teenager years :

Currently their is NO cure for CMT : Your damaged 'long' peripheral (near to the surface) nerves, which carry very weak, and slow electrical signals "to and from" your brain to your affected muscles cause them to waste :

Cmt is a progressivly worsening neurological disease, its not an orthopaedic defect, but does cause many bone "pes-cavus" (high-arches) etc, that may require attention :

You must use POSITIVE MANAGEMENT to your own symptoms in a positive manner : Accept, and adjust your mental outlook, and including your lifestyle accordingly to suit your ongoing, and ever changing circumstances !

Best of luck ....

John (Glasgow)

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lordie in reply to John1945

Wow interesting