Hello: Hi I am new here - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,688 members667 posts

Hello

lordie profile image
2 Replies

Hi

I am new here

Written by
lordie profile image
lordie
To view profiles and participate in discussions please or .
2 Replies
John1945 profile image
John1945

Hello to Lordie ....

Welcome to the HealthUnlocked website, which is mainly used by people who have Charcot Marie Tooth Disease (CMT) : Always call CMT a 'DISEASE, not a condition, or an abnormality :

This great website allows Cmt sufferer's to ask questions, and seek further information, and most importantly 'SHARE' with each other their ongoing experiences:

CMT is an inherited disease, usually 96% of sufferers, the defective gene(s) is passed on from a parent to their offspring : Its symptom vary tremendously from person to person, each individual case stands alone : Some symptons occur in childhood, but mainly present themselves in the teenager years :

Currently their is NO cure for CMT : Your damaged 'long' peripheral (near to the surface) nerves, which carry very weak, and slow electrical signals "to and from" your brain to your affected muscles cause them to waste :

Cmt is a progressivly worsening neurological disease, its not an orthopaedic defect, but does cause many bone "pes-cavus" (high-arches) etc, that may require attention :

You must use POSITIVE MANAGEMENT to your own symptoms in a positive manner : Accept, and adjust your mental outlook, and including your lifestyle accordingly to suit your ongoing, and ever changing circumstances !

Best of luck ....

John (Glasgow)

lordie profile image
lordie in reply toJohn1945

Wow interesting

Not what you're looking for?

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.