Finally received a “proper” full diagnosis (by someone who actually spent more than 3 seconds with me) for everything I have spent so long suffering: Hemiplegic Migraine with Fibromyalgia. Also known as “FHM” (Familial Hemiplegic Migraine), and “Migraine Varient Syndrome”. Causes both numbness and chronic pain – a walking, confusion oxymoron that has make no sense for years now.
I had never heard of this before, but I must admit when you put the two together, it covers everything... which is maybe why no one saw it before. It's taken 3 1/2 years jut to get answers. Unfortunately, those answers seem to come with more questions, because there's really nothing that can be done about it, especially if you have zero tolerance to most medications.
It's an answer and that makes a difference, but there is no miracle cure. I take comfort that I at least know what's going on now. Answers matter and are comforting, especially when you've spent over 3 years wondering what on earth had taken your entire life away from you.