COVID risk to CLL Patients with the reopening ... - CLL Ireland

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COVID risk to CLL Patients with the reopening of schools in Ireland

Irishcll profile image
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Hello all

We are wondering if any other CLL patients are having the same issue or taking the same stand as we are here in Ireland.

As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an Ibrutinib trial in Leeds in 2014. Thankfully bloods are good now but her immune system never recovered and she has repeated infections and must have IVIG's monthly since 2012.

This is our problem, the schools in Ireland have reopened and we have made the decision not to send our teenage children back due to the increasing COVID numbers in the community. This has not been an easy decision as we know school is important for mental and emotional wellbeing.

Our HSE (NHS equivalent) has stated that a person that is extremely high risk can avoid going to school and a remote learning plan can be provided but the children of an extremely high risk parent must attend and are denied a remote learning plan.

we disagree with this approach and see it as a complete lack of understanding of CLL and the risks that COVID presents.

We were fortunate that a politician has taken up our cause and I will post what he said in our parliament last Friday. I think it was the first time ever that the words Chronic Lymphocytic Leukaemia was used in our parliament.

We would love to know is there any other CLL families in a similar boat and also should we push for the guidelines to be changed to protect high risk family members.

irishtimes.com/news/educati...

twitter.com/1GaryGannon/sta...

Click on 3 minutes to hear Gary Gannon TD

Michael and Jan

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Irishcll
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