We've halfway through 2016! What have ... - CLL America Support
We've halfway through 2016! What have you done in 2016 to help yourself grow as a "Powerful Patient"?
tclementi11 Voters9
Read and learned more about my illness
4
Made lifestyle changes, like diet, exercise and stress reduction
3
Sought out support through family, friends, support groups
2
Considered/enrolled in a clinical trial
1
Attended in-person events about my illness
1
Other (I'll explain more by leaving a comment)
0
Made more frequent appointments with my GP/cancer specialist
1 Reply
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As an ibrutinib patient of 2+ years, I am very interested in other options including clinical trials if ibrutinib loses its effectiveness. I did attend an in-person conference in October 2015, and I will again when the opportunity presents itself. I just saw my dr in June & the frequency of dr visits is changing from every 3 months to every 6 months, and CT scans from 6 months to 12 months.