What topics would you like to see cove... - CLL America Support

CLL America Support

1,611 members466 posts

What topics would you like to see covered during future Facebook Live Q&A sessions?

tclementi profile imagetclementi5 Voters
4
Clinical Trial Information
3
Explanation of Lab Results
2
Live Coverage/Wrap-up from Medical Conferences
2
Living Well Information
2
Navigating the HealthCare System/ Financial Assistance
1
More background information about Patient Power (Andrew & Esther Schorr, the Patient Power Team)
1
Care Partner Information
1
Other (i'll leave a comment explaining)
8 Replies
Gweidema profile image
Gweidema

I said it before and say it again: thank you for all the hard work to inform patients better then I thought was possible. Your efforts are immensely appreciated!

tclementi profile image
tclementi in reply toGweidema

Thank you so much! Made my day :)

brian_in_Seattle profile image
brian_in_Seattle in reply toGweidema

I very much agree! This site is fantastic. Thank you all so much for your hard work on our behalf.

tclementi profile image
tclementi in reply tobrian_in_Seattle

Thank you Brian!!! So glad we can help!

Ducksoup profile image
Ducksoup

One thing almost everyone in our community agrees with is that doctors in the US and elsewhere tend to dismiss the problem of fatigue. I would like a forum in which we could 1) share our stories, tricks, tools for regaining ooomph, as it were, and 2) urge a far greater focus on this debilitating symptom on the part of t oncologists and researchers.

tclementi profile image
tclementi in reply toDucksoup

Good topic! I have made note of it and will do our best to include it. Maybe we could even have a Forum Friday dedicated to fatigue?

brian_in_Seattle profile image
brian_in_Seattle

I'd like some suggestions on dealing with chemo-induced or CLL related fatigue. Thanks!

tclementi profile image
tclementi in reply tobrian_in_Seattle

Great suggestion! I will put it on our list.

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.