CLDF National Conference and Family W... - Children's Liver ...

Children's Liver Disease Foundation

2,041 members710 posts

CLDF National Conference and Family Weekend

2 Replies

We’re holding our National Conference and Family Weekend on Saturday 24th and Sunday 25th September 2016.

The CLDF National Conference is a place to:-

•Share with other families and young people in an informal setting

•Meet with many of the UK's childhood liver disease specialists

•Learn about treatments, new research, psychological and social issues in childhood liver disease

•Discover how CLDF can support your journey with childhood liver disease

After listening to feedback from previous years, a new venue has been chosen to host the event - Chesford Grange in Kenilworth (CV8 2LD) near Warwick. We hope that families who have joined us before and those who join us for the first time will enjoy the new conference format and venue.

The event will start at 9am on Saturday morning and the conference and trip will end by 5pm. For those who’d like to stay for the evening meal or are staying overnight, dinner will be served at 6.30pm.

As well as the main conference on Saturday 24th September, there’ll be an option for those attending to join us for an evening meal and to stay overnight at Chesford Grange. Following your feedback, we’ve made this event a family weekend and arranged some accommodation (for immediate family staying with children under 18 only) on a first come first served basis. The evening will provide the opportunity to meet with other families in a relaxed, informal environment following a full day.

Entertaining the children and young people…

Whilst parents are enjoying the conference, children and young people over 8 years old will be whisked away to Drayton Manor for a day of fun and there is a crèche for children under 8 years old. Babies and children are not allowed into any of the conference sessions so that delegates can listen without distraction.

Payments/Deposits…

All of the events over the conference weekend are heavily subsidised by the Charity to ensure that everyone who would like to can attend. Payment will be required at the time of booking and fees for the event are as follows:-

Conference - £10 per delegate

Trip to Drayton Manor (8 to 18 year olds only) - £10 per child with liver condition/transplant and/or per sibling

Crèche (under 8s) - £5 per child with liver condition/transplant and/or per sibling

Evening Meal - £10 per group (can include extended family) or £5 per medical professional

Accommodation - £40 per group (refundable after the conference on request)

Please note accommodation is for immediate family only (i.e. parent(s)/carer(s) staying with a child(ren) with a liver condition/sibling(s)). Extended family members, medical professionals and non-UK residents will need to book their own accommodation directly with Chesford Grange

Visit childliverdisease.org/What-...

2 Replies
CeeJay12 profile image
CeeJay12

Yes, will certainly look at booking on the conference. Sadly, we won't bring our teenage daughter with us. She suffered a stroke 12mths ago & is unable to go on any theme park rides now. Am looking forward to meeting other parents as our daughter has just been diagnosed with PSC and also Alpha-1 liver diseases

Beanzy profile image
Beanzy

We have just booked and really looking forward to the conference 😀

Not what you're looking for?

You may also like...

Alpha 1 ATD

Hi, My name is Christine, my son Reece was born with Alpha 1 ATD. He was diagnosed at the age of 7...
ChristineB profile image

New biliary atresia family, looking for support and community

On September 7th my 11 week old son has the Hida scan and on September 10th he had the Kasai...

Billirubin levels in patients with alagille syndrome

Hi everyone, We've been to doctors yesterday, my 8 months old daughter has been diagnosed with...
Dina1986 profile image

Query for liver transplant

My daughter had kasai at 52 days but seems like that has failed and now doctors are insisting for...

Distended abdomen

Hello Do all children with liver complaints have large abdomens? My daughter was born at 34weeks...

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.