New tinnitus tone - please help :( : Hi everyone... - Tinnitus UK

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New tinnitus tone - please help :(

Izzy_D profile image
73 Replies

Hi everyone,

I first developed tinnitus in 2016. I had a terrible time when I first got it and felt suicidal. I was at my wits end back then. I am not a weak person, I just felt like I couldn't go on like that anymore. I used to drive around the streets to drown it out.

Eventually, I managed to get some form of normality with it. It took a long time.... a lot of anxiety, a lot of lost sleep and worry. It went to a level I could bear. I then had many years of it being in the background. Sometimes the volume would go up but it always went back to the base line.

However, 10 days ago I developed a new sound. It is horrific! worse than what I had before, it's playing on top of the original sound. This is a low humming like a violin low, it can be intense and it can just be there..... playing like a song you want to turn off. It's worse at night and I am not sleeping. I am beginning have to thoughts again where I feel helpless and worried. I am anxious, trying to work but all I can think about it 'what if this keeps getting worse and I can't ever get back to normal'.

I remember watching a video online of a woman in Holland. She said she got tinnitus and she managed it but some years later it was worse and she wanted to end her life. She ended her life because of it and it freaked me out when I saw this online video years ago and I have always thought what if I ended up like her, new sounds - new volume and here I am..... I am so scared.

I don't know what to do. I don't have any hearing loss, I had all the tests and all's fine with my hearing.

Any advice would be welcome because I am so frightened :(

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Izzy_D profile image
Izzy_D
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73 Replies
doglover1973 profile image
doglover1973

Hi Izzy. Take a deep breath. I know that when you get a new sound it feels like going back to square one. This happened to me in the Spring. I got a low hum - which can also rumble - on top of the high pitched hiss. What you need to remember is this .. If you can get to grips with T once then you can do it again so there's nothing to fear . The new sound only seems so bad because it's new. In time it won't be the threat it is now. You're going to be OK.

Izzy_D profile image
Izzy_D in reply to doglover1973

Basically, it won't go away.... is essentially the situation. I have to just get used to this :( I can't.....

doglover1973 profile image
doglover1973 in reply to Izzy_D

T doesn't usually go away but you can learn to live with it. Think back to the coping strategies you used first time round. Use them again. Just take one day at a time. One hour at a time if you need to. T isn't going to win. You are .

*I've edited my post. Hopefully the new wording is better *

Izzy_D profile image
Izzy_D in reply to doglover1973

not being awkward or dismissive but I can't believe you have said it isn't going away because no one knows that. I wouldn't tell anyone that, my GP told me it would never change and it did actually, it went pretty low and manageable but new sounds, people have said on this forum they come and they can go.

doglover1973 profile image
doglover1973 in reply to Izzy_D

I'm sorry. I didn't mean to upset you. Perhaps it will go away. No one knows - as you say. I just wouldn't want to give anyone false hope.

Izzy_D profile image
Izzy_D in reply to doglover1973

I know T won't go away, I have had it 7 years. But this new noise, I need to hope it will go back how it was. I have spent the evening at work thinking I am stuck with it and have been upset. Just feel helpless and this is not the person I am.

doglover1973 profile image
doglover1973 in reply to Izzy_D

Hi Izzy. I'm sorry. I chose my words so badly . I wouldn't upset anyone if I could help it. Let's hope your T will go back to how it was. There's every chance it might especially as you've had other new sounds come and go. I hope you're OK this morning.

Izzy_D profile image
Izzy_D in reply to doglover1973

it prob won’t go, and don’t worry I am just super sensitive at the moment. Thanks for relying. It means a lot x

Izzy_D profile image
Izzy_D

Are you saying that new noises are there to stay? because that doesn't seem to be the case for all people? What do you think causes new noises? because I have had new sounds that lasted a day or two, but they went away. This is 11 days now, but you're saying I am stuck with it. I feel more stressed now and I know you're trying to help but you don't know it's there forever?

Suz_2 profile image
Suz_2 in reply to Izzy_D

hi - i have had severe T for 1 year now and it changed in tone and volume in April after a 40min MRI ( very loud) , and then got worse again in June after a high anxiety event.

Have u had any loud noise incidents or high anxiety recently that could hv caused yr T to change or any other changes that u can think of.

Have u tried sound therapy ? CBT ? the OTO app is the best for CBT therapies. Rewiring Tinnitus is a good book that i have just purchased

Like doglover said - the sound seems worse at moment coz its new and the volume will probably ease off - this happened to me

Izzy_D profile image
Izzy_D in reply to Suz_2

Hi Suz, yea, very anxious at the moment about the interest rates going up, my mortgage set to go up and everything feels overwhelming. Started after I had a meltdown about that :(

Suz_2 profile image
Suz_2 in reply to Izzy_D

Sorry to hear this Izzy , sounds like a very stressful situation

I am looking into diet and supplements at moment to see what can help and what doesnt help for tinnitus. If u speak to GP they would offer anti dep/anx which may or may not help ( avoid the SSRI's though)

NATURAL ANTI -DEPS/ANX : maybe a natural anti anxiety supplement ( before bedtime ) may help you at moment - I have found that Valerian works an hour or so after taking but i would only take quarter or half of the tab/ capsule and not every day . . I use Valerian when my T volume is really loud as I hv found it takes the edge off it , and is good for anxiety - but i dont use it too often as i found it lowered my Blood pressure as well ( which maybe a slight benefit if u are very stressed) I wouldnt use it longterm. OR try 5 -HTP which is a natural anti-dep- try a low amount to see if it works/helps - I would try these 2 at separate times not at same time. You can find these on British-Supplements.net and all their products are additive free

Also Gingko Biloba / Vit B12 / Magnesium L Threonate may help as well -and can be taken with one of the above natural anti-deps as there are no interactions.

You would need to check any interactions between the above mentioned supplements (Valerian especially) with any medications, if u are taking any .

Izzy_D profile image
Izzy_D in reply to Suz_2

Hiya, it's not so much the volume - it's the sound. I have had spikes before and that's volume and they've always settled when I chill out. This feels very different and that is my main worry. Read horror stories about people committing suicide because it got worse and they couldn't stop it.

Suz_2 profile image
Suz_2 in reply to Izzy_D

hi Izzy -I have read horror stories as well and had all these fears and thoughts about my T getting worse (louder) and not being able to 'live' with it . There are also many, many success stories of people with horrendous T who improved and manage their T , quite often by finding new ways and methods. We have to focus on how we can improve and manage the T and this avoids the downward slope.

I would say look after yr self 1st above everything else while u are going through this difficult time - through diet, therapies and chilling - watch feel good programmes on TV (that are of interest to u ) - take time to go for autumn walks in parks or country - even take some time off work, if u feel u need to - look into new ways to deal with life's problems ( easier said than done , i know)

My T came on out of the blue , just over a year ago - it was a multi mid tone buzzing sound. It did change in April after the scan and then again in June after high anxiety - and became more high pitched and solid intense tone and also hissing all over the head - each time it changed i became distressed and shocked and worried - and after about 3 weeks my brain sort of got used to it and I could accept it much more. Its the volume of it, that bothers me the most

I found online, examples of the wide range of T sounds that people can experience - thetinnitusclinic.co.uk/abo... / tinnitus.org.uk/faqs/what-d...

Izzy_D profile image
Izzy_D in reply to Suz_2

Julian Cowan-Hill talks about the stress response being the main trigger for T. The problem is, does tinnitus cause the stress or does stress cause the tinnitus? I have often wondered why, at stressy points in my life, the t didn't alter yet recently - it has.

I didn't sleep well last night (again). Took me 3 hours to get to sleep. Tried masking the sound, but the tinnitus tries to compete with the sounds and ranks up the volume in my ear. So I tried meditation but you can't stop thinking about the noise and find calm and listen to the guided meditation app when there's a screeching going on. I did try though.

I think the biggest prob was that when I went to bed, I wasn't tired and I was anxious about the T, so I was already anticipating it all and it was bad. It only felt more manageable when I was getting sleeping (around 4am) when I relented to it and got some peace as the higher tones were as loud.

You mentioned your tones had changed. In the beginning, I found that a lot and it eventually did settle to something I could forget most of the day.

I have had this since 2016, the tones have been the same for years and then this new low hum appears and it does make me panic - worry - stress, what else will happen, will more tones appear. What if, what if, what if.

I hate not having control :( I hate to think it decides what it does.

Suz_2 profile image
Suz_2 in reply to Izzy_D

yes its both - stress can cause T and T can cause stress ( although stress may not be original cause ) but it can make T worse. I walk every day for about 30 or 45 mins to and around a green area near where i live - this makes me tired at bedtime and without doing this i would hardly sleep. I use very low volume ocean sound at night coz if sounds are too loud it pushing up my T

What did Audiologist say about the new sound ? Sound therapy and the psychol therapies are of course beneficial but i think we have to look into other aspects as well - I know i have to be careful with the volume of sound therapy and white noise seems to aggravate my T. I am looking into diet and supplements at moment to see if anything can help. I was eating too much bread and oats ( and cakes) which i have reduced and i think there is some improvement. Avoid foods and drinks with too many additives ( esp Sulphites).

It all takes time as u know .

Izzy_D profile image
Izzy_D in reply to Suz_2

I haven't seen an audiologist. Best the GP could offer me was an appointment with a nurse! I am not going. Waste of time :(

Izzy_D profile image
Izzy_D in reply to Suz_2

have you tried Gingko? I used to take it. May start again.....

Suz_2 profile image
Suz_2 in reply to Izzy_D

i havent tried Gingko but have read it can help someT sufferers

Happyrosie profile image
Happyrosie

as doglover has said, you’ve done it before and will do it again - habituate. In my experience of being on this site, doglover is a person whose empathetic nature shines through.

Maybe there are, too, some different strategies you haven’t yet tried.

There’s a sort of “training module” on the British Tinnitus Association website called “Take on Tinnitus” which you might like to go through and see whether something resonates with you (pit take on tinnitus into their search box, as the website isn’t the easiest to explore).

A helpful book by a doc who suffered from T called “tinnitus, from tyrant to friend” might be a good read, too.

A further thought - your doc has been through the tests with you, so as to speak - tell him or her how you are feeling about this. They could suggest therapies to help you.

Kkj92 profile image
Kkj92

Could it be an ear infection changing the tone? Ive had tinnitus for a while which like you has caused lots of anxiety. I began to feel ok and the tone changed in one ear to something unbearable. I had a GP appointment for something else and while there asked them to look into my ear and i had an ear infection which took a few weeks to calm down.

Hope youre ok x

Monty969 profile image
Monty969

Hi Izzy

Apparently there are lots of treatments available so you would be wise to go to a tinnitus clinic/specialist who can help you choose a suitable treatment.

It's pointless trying to solve tinnitus by yourself.

In the interim, the only thing I can suggest is, if you do in fact have normal hearing, is to have background music playing 24/7 (preferably classical (try Classic FM)) and that might distract your brain.

Play it 24/7 - preferably through loudspeakers (earplugs or buds tend to irritate me after a while).

Play it at the lowest volume you can hear comfortably without straining to hear it - you don't want to focus on the background music but your brain will perceive it. Over time your brain will get used to a non-quiet baseline and hopefully turn the auditory gain down.

Shells1 profile image
Shells1

I wish we all lived near each other we could meet and at least we would understand eachother when i tell my friends they just dont understand, why would they?

Suz_2 profile image
Suz_2 in reply to Shells1

I have thought the same sometimes - that it would be good to meet other T sufferers. Where do u live Shells? I live in Aberdeen, which is probably too far away from most people on this forum

Shells1 profile image
Shells1 in reply to Suz_2

I live in Bexhill east sussex

camino9 profile image
camino9 in reply to Shells1

I live in Australia. Dang..

rabbits65 profile image
rabbits65 in reply to Shells1

hi Shells , I too live in Bexhill on sea , East Sussex , So I am able to meet up if you like. I have had tinnitus for two years. I live 2 miles from the seafront, let’s hope you see my message.

BTADaisy profile image
BTADaisyPartner in reply to Shells1

Hi Shells1 and Suz26! Have either of you attended one of our Support Groups?

Suz26: unfortunately your closest group is Inverness, however, we do have a number of Online Support Groups that run on different days throughout the month tinnitus.org.uk/online-supp...

Shells1: Pembury is your closest face-to-face group tinnitus.org.uk/pembury-tin... They're currently doing online meet-ups following the pandemic

Camino9: one of our Online Support Groups meets on a Saturday at 10.00am GMT which could work for your time difference in Aus eventbrite.co.uk/e/third-sa...

Have a look and take care x

Suz_2 profile image
Suz_2 in reply to BTADaisy

thnx Pat - i shall check the online support group at some point

TinnitusUKPat profile image
TinnitusUKPatPartner

Hi Izzy

Can't add that much to what has been said here other than to comment on the video of the Dutch woman that you mentioned earlier.

She had tinnitus AND hyperacusis, which I think is key. She was struggling with those issues, with depression too and made a decision to end her life as a result of a complicated set of circumstances which she couldn't see a resolution to. To counterpoint, there are people who have equally complex sound tolerance disorders, a hearing loss and recover from them to lead normal lives.

A lot of people read these stories online and become fearful that this is a commonplace outcome of having tinnitus. It isn't.

If it were, you can be certain that more funding for research and treatments would be in the pipeline than has been the case to this point.

Negative online accounts can stoke our anxieties and fears and make us believe that they are somehow an inevitable outcome, regardless of whether the person's circumstances echo our own.

There's just no reason to look at a story like this and say that it's likely to happen to us - if we're mired in depression or anxiety, we might take a worst case scenario and take it to be a common experience. That's more a sign that our thoughts are being driven by stress than it is a guarantee that something is going to affect us.

Other people have different experiences which are just as valid - tinnitus.org.uk/Listing/Cat... - and I would encourage you to take a look at them.

Izzy_D profile image
Izzy_D in reply to TinnitusUKPat

thanks for that mate - really appreciate all you said there.

Karlos99 profile image
Karlos99

sorry to hear you’re going through such a tough time. You can’t control tinnitus but you can control how you respond to it. Like you my tinnitus increased massively about 7 months ago and I felt exactly like you. Once I got used to it again it became easier and your brain will adjust and coping becomes much easier. On particularly tough days I use a headphone in one ear playing distracting sounds. You want to still be able to hear your tinnitus though. Also I use a sleep headband at night. Things will improve and you will cope better. New sounds take a while to get to grips with but try to stay positive.

Good luck.

Izzy_D profile image
Izzy_D in reply to Karlos99

How long have you had it and has the volume gone back down for you?

My volume hasn't changed, the sound has. So there's a new tone going on - hence my stress levels going through the roof. Volume fluctuations I have found are par for course with T, had so many spikes in volume but it came back down to being able to get on with my day and not hear it all the time. I have a new tone - which I fear the worst.

Karlos99 profile image
Karlos99 in reply to Izzy_D

I’ve had it about 6 years. Wasn’t very intrusive until about 7-8 months ago. Woke up and it was horrendous. Really loud high pitched. Didn’t think I’d be able to cope. I was really struggling, stressed and not sleeping. Then I just knew I had to calm down my reaction to it. Did breathing exercises and used sound devices and kept telling myself the sound was unimportant. Gradually the sound lowered and my brain also accepted it. You’ll get there. Stay strong.

Izzy_D profile image
Izzy_D in reply to Karlos99

has it gone back to what it used to be?

Karlos99 profile image
Karlos99 in reply to Izzy_D

no but you learn to manage what tinnitus throws at you.

Izzy_D profile image
Izzy_D

I have always found, in the past, when the volume went up, it decreased - it always did. It was loud for a week or two, maybe even a month but it soon subsided. It fluctuates though, sometimes it's there, squealing away and other times, barely audible. The silence of a room is the worse by far....

The new tone, that's the difference for me. I have had spikes in volume, it went down. It was usually stressed and when I chilled out it slipped back to the original noise.

Fridays_Child_62 profile image
Fridays_Child_62

A new tinnitus tone is always unsettling and I don't blame you for feeling anxious. When something is new and unpleasant, it freaks us out and we panic. My ears seem volatile these days, so I am no stranger to this feeling.

My usual T is high-pitched but I have occasionally experienced low-pitched or medium-pitched T. This sometimes comes to me while I'm still, often in bed and has even woken me up, but disappears when I move around and I get the distinct impression it is connected with blood-flow. Do you suffer from bad circulation? A few years ago I also had a faint low-frequency motor-like noise which seemed to be connected with a physical vibration in my ear, probably muscular - it disappeared of its own accord after a few weeks. So, sometimes these things come and go, eventually.

In terms of coping with this new sound now, could you mentally associate it with something in the real world that is not exactly unpleasant and that you would normally put up with? I'm thinking of a motor or home appliance that you normally wouldn't pay much attention to and wouldn't bother you. And remember that the brain does get used to constant noise and learns to ignore it, so try not to think in too drastic terms. This is all easy for me to say, I know, but you will get through this, I'm sure.

Izzy_D profile image
Izzy_D in reply to Fridays_Child_62

Thanks for this. I have it 12 days now, it's so annoying and the new noise is worrying me because I keep thinking what if more noises appear, it's already bad enough. The low humming is new - no idea what brought it on, but I am super stressed atm with everything that's going on :((((

Fridays_Child_62 profile image
Fridays_Child_62 in reply to Izzy_D

I think you should really resist going down the 'what if' path, as it isn't productive - very difficult, I know, as I am a worrier too. Even your new tone may be temporary. A lot of people say meditation helps them cope with tinnitus - have you tried it?

AldoArgentina profile image
AldoArgentina

Hello! I had very loud T for years, with extremely crazy spikes with suicidal thoughts! I began to search frantically on the web because science does not give me any answer.

If you TRY ALL of this, I'm sure in two month you’ll be much better!!

1.- Mother tincture of Passinflower plant at night, but you don,t have to take medicine for sleep! 

2.- Magnesium L-Threonate (only this Magnesium works well with T.) in the morning and five hours before sleep.

3.- GABA with Gingko Biloba before breakfast and two green tea Matcha per day but not after 5 pm.

4.- Control your blood pressure and detects if you snore or have cervical problems.

Keep in touch and best wishes!!

Izzy_D profile image
Izzy_D in reply to AldoArgentina

Are you much better by doing all this x

AldoArgentina profile image
AldoArgentina in reply to Izzy_D

Yes, greatly better. I have no more T peaks and the hum is lower with extremely low periods!

Izzy_D profile image
Izzy_D in reply to AldoArgentina

was the hum something new you got or was that always there? I am just trying to figure out whether mine will go or if the new sound will stay :(

AldoArgentina profile image
AldoArgentina in reply to Izzy_D

We can't figure out anything related with our T. Plainly and simply, some of our brains went crazy!

AldoArgentina profile image
AldoArgentina in reply to Izzy_D

In the meanwhile, did you try Otin Lucas white noise masking sounds? You might find one that suits you.

Izzy_D profile image
Izzy_D in reply to AldoArgentina

I did try, yes but the T played up because it was competing against the sound of the masking :( drove me crazy

AldoArgentina profile image
AldoArgentina in reply to Izzy_D

Because was not the sound for your T. You must find one that is very similar to your T, and the volume has to be just lower than T, if not, better is nothing.

Suz_2 profile image
Suz_2 in reply to Izzy_D

hi Izzy - i am trying the L- theanine (which was suggested to me by AldoArgentina) instead of the Green Match tea ( which has caffeine) . Its is good for anxiety according to lots of info online - i bought this one NutraVita L- theanine -i took one last night it did help me to sleep. I didnt take the full capsule - i opened the capsule and put about 1/3 into glass then sort of fitted the capsule back together - this maybe better than Valerian ( which u hv to be careful with)

chris-104 profile image
chris-104

Hi, my heart goes out to you, what you need to help those negative thoughts now is hope, please check out / Google Lenire/ also Google The Tinnitus Clinic they are based in the UK, Lenire is a new Tinnitus treatment brought to the Market by i believe an Irish Company, read the positive reviews left by Tinnitus suffers, it will give you hope and that in itself will be a great help, get involved dont give up, im in the process of making an appointment myself.

Hope that helps.

Izzy_D profile image
Izzy_D in reply to chris-104

They prob charge a fortune though mate....

chris-104 profile image
chris-104 in reply to Izzy_D

I think 2.5K, price of a 2 week family holliday, or a small second hand Car, i know which i would prefer, what price health, lifes poor without it?

chris-104 profile image
chris-104 in reply to chris-104

Plus you can pay monthly, they are reputable, its not Snake Oil, please visit the site and read the reviews, its encouraging and thats a huge help in our path to confidence we will be ok.

ArtyPants46 profile image
ArtyPants46

Hi Izzy, poor you. I really feel for you. The violin sound must be awful.

My T recently got a lot louder after covid and I’m feeling quite depressed about it. I also suffer from dizziness 24/7 to some degree which means when I lie in bed at night my head is buzzing and the room spins. When I walk down the street, it feels like I’m walking on a mattress. My buzzy, wobbly world! I often feels nauseous too. My diagnosis is chronic vestibular migraine but who really knows what is causing it? When I think think about the combination of symptoms, which never really truly go away, it makes me feel down.

There is no real respite but miraculously I have learned to sleep again and you will too. I find that once you can sleep again that gives you strength. I find solace when I’m swimming. Or walking in the woods. Or watching a really good film. Or cuddling/thinking about my family.

I found myself googling ‘tinnitus and suicide’ just the other day because I was so sure many people with T must think about it. It was just out of curiosity really.

But then I thought about all the things I love life and the important people in my life. I don’t want this to beat me. I’m going to try and stop fighting it and accept it. I found that was key the first time around.

It sounds like you are in a crisis mode right now and having been there myself I would say, give it time. Give yourself a big hug, look in the mirror and tell yourself you can do this, it will get better. Deep breaths, practise some self care whether that’s a bath, yoga, swim or massage. More deep breaths. Drink water. Write a list of the things you love and keep adding to it. Add big things and little things you love.

If you get really down, reach out to the Samaritans or Tinnitus Association when they are open. I have done both in the past and it was helpful. We are all here in a similar boat. Life of worth living. You will get through this! Sending good vibes.

Izzy_D profile image
Izzy_D in reply to ArtyPants46

Hi. I am sorry to hear about the symptoms you have - that sounds bloody awful! the dizziness sounds dreadful when you are dealing with tinnitus too. I am sorry :(

I have heard a lot of stories about tinnitus worsening after covid but these are all people who had the vaccine. Did you have it? I didn't have the vaccine for that very reason and when I spoke to my GP, she said "don't get it" she actually told me she wasn't having it and said don't have it if you don't want it and she said to me that people have complained about t getting worse after it and it wasn't worth the risk but as it happened, I have landed another tone that's ramped up the whole problem!

I did get to a level with it, but it's never OK, I am never like "oh well, cool - I accept you" but I learned to tune it out and it did get quieter, and also at night, in the silence - it backed off too but now - wow, it has come back and it's making itself known! it is a menace!!

Izzy_D profile image
Izzy_D in reply to ArtyPants46

This may not help but the GP also told me that patients who complained about covid related spikes actually found a few months later it was back to normal again and I can say that happened to my friend who has T from being a DJ and she had it a manageable level but she had the vaccine and it ramped up her tinnitus and she wasn't sleeping. She told me she was annoyed and wished she'd not had the vaccine (she's had covid 3 times now btw!) anyway, her t is back to low again and she's fine. She told me it lasted about 6 weeks and it leveled off.

x

bluebell71 profile image
bluebell71

hi Izzy

You have already come a long way with tinnitus by coping and managing the noises you were used to.

I’ve had T for a long time now and still get frightened if I have a new sound/tone, During May this year my T became horrendous previously I was happy to accept the noises I’ve had for years. I was scared I couldn’t cope but somehow I have, it’s taken until two weeks ago to be at a level which I accept again…,,

Your tinnitus will quieten down in my experience it always does, it may take time. My noises are still irritating, humming pulsating roaring but somehow I manage to distract my thoughts away from the noises.

Wishing you all the best

Jean 😊

Izzy_D profile image
Izzy_D in reply to bluebell71

That is the worry - that the new noise won't go :( do you have noises that come and go?

bluebell71 profile image
bluebell71 in reply to Izzy_D

in my experience Izzy the new noises/sounds have always gone back to my acceptable level. It is a struggle to get through but you will get there, I’ve had horrendous T through the Summer months this year I am now back to my acceptable level.

I’m not happy about having T and dearly wish I had a quiet mind, I have accepted the noises like you that I’m comfortable with, when other sounds change my norm I get anxious frightened and upset. I definitely have noises that come and go, my tinnitus goes up and down all day and my new noises over my head and in both ears have settled back to just my left ear which I am pleased with which I accept.

Stay with positive thoughts your tinnitus given time will return to a more comfortable level mine always does

All the best Izzy

Jean😊

Izzy_D profile image
Izzy_D in reply to bluebell71

thanks Jean, really appreciate your message.

Two weeks in with louder and new t noises. Just hope it settles and I can feel okay again. It really is a struggle.

When you got new noises / sounds, how long did they stick around x

bluebell71 profile image
bluebell71 in reply to Izzy_D

it can vary Issy I’ve had new noises that have lasted weeks and longer but my tinnitus has always gone back to my acceptable level given time it always does

Have faith keep positive thoughts that puts your tinnitus in its place, enjoy your life Izzy, look for distractions which will give you a break from the noises.

Take care and keep safe x

Izzy_D profile image
Izzy_D in reply to bluebell71

Presumably the noises went down for you? stress deffo makes it worse - I know because I am a cat on a hot tin roof atm!!!!!!!

Wish you healing and all the best xx

Persevere99 profile image
Persevere99

Hi Izzy

T IS NOTHING, COMPARED

Any problem, T included, will get different reactions from different people.

I had T which I rated at 50, for 10 years, ending 5 years ago.

I had to use clonazepam to get to sleep.

Then, fortunately/unfortunately, I came across entirely by chance, on a website, some very scary tales of people being tortured before being murdered.

So, I considered myself SO lucky just to have T to deal with, compared to the above.

And, straightaway my T rating fell to Zero. And I haven’t needed clonazepam to get to sleep since then.

Of course, ‘something’ is there, but it doesn’t bother me at all anymore, as I now rate it as Zero. I count myself SO lucky to have just T to deal with.

Please see my own post on T which explains the above in more detail.

All the best!

Persevere99

surviveT profile image
surviveT in reply to Persevere99

not sure what u mean about yr T rating - is that volume or just annoyance/ awareness? Rated at 50 ? 50 out of what? Did u hv loud tinnitus at that time , as this would be very difficult for the volume to drop after reading about something worse than T. I saw yr earlier post a few weeks ago - Glad this worked out for u - even though its a bit strange

Persevere99 profile image
Persevere99 in reply to surviveT

Hi surviveT

Yes, 50 out of 100 was my previous rating. That’s when I was always monitoring my T and feeling sorry for myself, to have this nasty noise to deal with, especially at bedtime.

So, self absorption over T, or anything else, is not helpful, as it makes you feel like the unluckiest person on the planet.

So, helicopter up and see what others have to deal with (the very cruel deaths I read about for example) and for sure, you will see your T in a lesser light.

This was when, 5 years ago, I reevaluated the rating I gave my T from 50 to Zero.

Therefore, it’s gone, not because the ‘noise’ has reduced, but because I no longer pay any attention to it at all.

Hope this helps.

Persevere99

Izzy_D profile image
Izzy_D in reply to Persevere99

with respect, you can't say T is nothing compared to xyz - it's all relative to how that individual feels. There will always be others worse off - of course there will.

My mum and best friend died in the space of 5 months of each other then my job made me redundant (this was 6 years ago) 3 huge losses and I felt pretty shit - as anyone would but, as you said, there's always someone getting tortured in another country so it's all okay and I shouldn't feel sad/upset?

Come on mate, that's maybe how you look at the world but we are allowed to feel upset and comparing how a person feels against another person's trauma is nonsensical.

I am more than aware there are far worse tragedies in the world. I have a job that requires me to work with the most vulnerable in society, so trust me when I say, I see sadness a lot but I am still allowed to get pissed off and have days when I am down or upset without feeling guilty that someone else has it worse.

I am not someone who wallows in self pity, nor am I a drama queen. I am a good person who does a lot for others. I have hit a rocky patch with my tinnitus and just needed a bit of kindness not to be reminded or world tragedy; that really doesn't help.

Persevere99 profile image
Persevere99 in reply to Izzy_D

Hi Izzy

I hear what you say. Sorry to hear about the deaths of your mother and friend and getting redundant.

My point is this. For 10 years I rated my T very high, at 50, as if it was the end of the world. I over did it for sure. Took clonazepam to get me to sleep.

Then, 5 years ago, on seeing the extreme suffering others have gone through, I said to my self ‘ Come on X, your T is nothing, compared, to this’.

And, that did it, immediately. I was able to rerate my T to Zero, where it belongs on a scale of the afflictions that humans have to deal with.

I remember, as a teenager, agonising over spots on my face, before I went out. As if, nothing could be worse than this.

However, compared to others’ suffering, it was nothing at all.

Thanks

Persevere99

Izzy_D profile image
Izzy_D in reply to Persevere99

I hear you....

Do you think your tinnitus has gone quieter due to you reacting less to it?

Persevere99 profile image
Persevere99 in reply to Izzy_D

Hi Izzy

I don’t pay any attention at all to T anymore. So I can’t say if it’s louder or quieter, like I used to before, on an hourly basis.

Also, this may help? T is an imaginary sound. The most powerful microphone on earth will not pick up any sound at all - it’s subjective.

Another helpful tip? My wife always says this to me - X, make a long long list of what’s going well in your life and for sure, when you get to 20 plus points or so, what was previously bothering you will fade into insignificance.

And, I also repeat this phrase - T is nothing, compared. I find that very helpful.

All the best

Persevere99

PABLR profile image
PABLR

You seem upset when people tell you that it's probably not going away, but also admit that you know it won't go away. It's hard to get used to more sounds, but hopefully you will. Ten days is maybe soon to know if it's going to be with you permanently or not, but tinnitus is a nasty beast and needs adapting to, as much too often it is there to stay once it starts. Like you I hear multiple sounds. My original sound was a high whine in my left ear. I then had a fairly catastrophic hearing loss that fortunately proved to be temporary, but the tinnitus that came with it was not. Like you my second sound in the left ear was a low buzzy hum. I also have a high pitched whine in my right ear and a surround sound that I can't pinpoint. When the new sounds started it was horrendous, but I was able to adapt, mainly by keeping busy. And busy didn't have to be noisy busy, just anything that holds my attention, so I will read for an hour or two and when I finish, realise I have hardly noticed the tinnitus during that time. Or I sew, or walk, or swim. Whatever it is, as long as I concentrate it I can more or less block the tinnitus out. I do sometimes have pulsatile tinnitus, mainly in my left ear, and that is the only one that changes. It's easy to say, much harder to do, but try to avoid thinking about the worst case scenario. I have had the occasional virtually unmanageable day, but in general I just concentrate on coping with what I have, not what I might have in the future.

Izzy_D profile image
Izzy_D in reply to PABLR

Many people have had sounds come and go. I do not have any hearing loss - my tinnitus was caused through a stressful time. Based on Julian Cowan Hill's theory - he advocates that tinnitus (for people like me who have no hearing loss and are highly anxious) is a stress response.

I have had hearing tests, I passed a medical for employment which required a hearing test. There is absolutely nothing wrong with my hearing. What you are describing you have is different. You have evident hearing loss - and that is a different thing altogether. Stress reduction won't reduce your tinnitus. I know, from previous experience, stress reduction has brought the volume of my T right down.

I was asking about a new tone, if others had gotten a new tone and it went away. Some have said above yes, some have said no.

doglover1973 profile image
doglover1973 in reply to Izzy_D

I have minimal hearing loss in one ear and profound loss in the other. Stress reduction makes a difference to both of them. T can spike with or without hearing loss . T can settle with or without hearing loss.

TinnitusUKPat profile image
TinnitusUKPatPartner

Hi Izzy_D

It would be lovely to be able to answer questions like "Will a new tinnitus tone go away" with 100% certainty, but as you've pointed out elsewhere in the thread, there are lots of variables which get in the way of that.

If tinnitus isn't related to hearing loss, and is mostly associated with stress, then we're looking more towards psychological interventions to help us reduce our stressors, help us to manage anxiety and focus on what is the most likely underlying trigger for our tinnitus.

The one thing that we do have some control over, more so than issues like hearing loss, decisions made by politicians or the behaviours of other people, is how we think about tinnitus.

We don't have to be unrealistic and view it as something fantastic but we also need not view it as the enemy - something we need to fight against. We can view it as a sound - one which we habituated to previously, when we had no real evidence that we would able to. The only difference between your first sound and this one is time. This one's newer. That's it.

You don't have a hearing loss, so it isn't being caused by that. Most likely, as you identify, your stresses are what is driving your distress about this noise.

The stress is the thing to look at - it's what you can control. Why are you worried by it? Because you think it won't change - that it will stick around? Do you have more evidence of that or more evidence that you habituated to a previous sound and lived with it normally?

You've cited the 'what if's' of tinnitus as being frightening, which I understand. My question is - why do the what if's have to be negative? What if, based on your previous experience, this is the shock of the new and the new noise fades into the background when your stress levels drop?

Which one do you have more lived experience of?

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