Hepatic Encephalopathy suddenly much w... - British Liver Trust

British Liver Trust

36,465 members17,956 posts

Hepatic Encephalopathy suddenly much worse

OminousCloud profile image
4 Replies

hi, I’m looking for some advice about my Dad. He has chronic liver disease - cirrhosis - and has lived with it for 20 years. Lately he has had hepatic encephalopathy that is getting steadily worse, and is on Lactulose.

over the last week he has suddenly got much, much worse with confusion, unsteadiness, speech problems. He is in hospital - they have ruled out a UTI but say they have identified a problem from blood tests - I don’t know what, my Mum is there but they haven’t told her much.

Does anyone know why his symptoms would suddenly worsen despite no UTI? Would this be treatable? Thank you.

Written by
OminousCloud profile image
OminousCloud
To view profiles and participate in discussions please or .
Read more about...
4 Replies
BritishLiverTrust3 profile image
BritishLiverTrust3AdministratorBritish Liver Trust

Dear OminousCloud,

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

We also facilitate a range of virtual support groups for people living with a liver condition (and their families and carers).

If you [are in the UK and] would find it helpful to speak to others with shared experience, you can register to join a group here

britishlivertrust.org.uk/vi...

Best wishes

British Liver Trust

CHanse profile image
CHanse

hi, I’ve seen my freind who has HE go into a few overt episodes and has bounced back after getting daily enemas. Sometimes the lactulose isn’t enough to control the build up of toxins. Is your dad also on Rifaximine? If not it would be worth asking it to be added to his daily meds. Food can also play a part in going into an episode as too much processed food can be difficult for the liver to process. Hopefully the hospital will be able to put him right and get him back on track.

jenngrady profile image
jenngrady

Sometimes Lactulose isn't enough to clear the toxins. I agree with the enemas because it would clear the system and the underlying cause of the HE. But your Dad needs Rifaximin (Xifaxin). My Dad was on it for about two years and it works like no other for HE. If he hasn't been already, I would suggest looking into a "Tap" where they drain the excess fluid and then Xifaxin every day until the symptoms become under control. Also Google the "Liver Loving Diet" for other helpful tips that will help.

OminousCloud profile image
OminousCloud

thank you so much for all the responses, he is coming out of hospital today, they have given him a prescription- I’m not sure what, hopefully rifaximin. He and my Mum are in France which makes everything so much harder.

You may also like...

Hepatic Encephalopathy

care for my husband, Michael who now has decompensated cirrhosis. He recently had a bleed, we...

Hepatic Encephalopathy

Does anyone know how long it would take to get a Hepatic encephalopathy diagnosis? My pal was...

Hepatic Encephalopathy

communicate. He is now on lactulose and antibiotics again and he seems much better. My concerns are...

Hepatic Encephalopathy

diagnosed with cirrhosis earlier this year and the last 3 weeks have been a nightmare! He has had...

Hepatic encephalopathy

My dad has decompensated liver disease and is awaiting a liver transplant. He is currently in...