Twitching

[Lavender-Pearl]

Has anyone had experience of twitching while sleeping with Cirrhosis, my husband has recently started this and I am worried that it is because his HE is getting worse, thank you in advance.

[Yosemit]

What part of body?

[Lavender-Pearl in reply to Yosemit]

Thank you for taking the time to respond. His legs I think as it is when he is asleep, his jerking wakes me and keeps me awake until it stops. I am worried it is a sign of worsening HE, as he falls asleep when sat down in the afternoon and evening. He generally goes to bed at 9pm and can sleep on until 9 or 10am the next day.

[Ewife]

Yes, my husband does this, but less so since he started Rifaxomin so I've always thought it was linked. Sometimes it's woken me up and I've thought he was having a seizure at first - but its definately not a fit thankfully. Since he started rifaxomin, it only happens if he's neglected himself a bit the day before/been busy/ not had normal toilet habits or drunk enough water.Hope that helps

Ewife

[Hidden]

I've just been diagnosed F3 & mild fatty liver, S1. The hepatologist thinks its autoimmune.

I thought I was going mad lately so thank you for posting this!!! Not every time I'm falling asleep but I do this weird quick shuddering/twitching thing I've never done before when I'm nodding off.

Looking back and now I know some things about liver disease there were signs for well over a year. My sleep is appalling.

My husband says I jerk and do what he calls high-jinks all through the night. Its ended up we've had to sleep separately sometimes.

[Dogbot]

My wife would be the best to answer this question I know I did I don’t think it’s to do with HE but I’m not a doctor. Stay safe All

Dogbot 🐶🌈Dave

[BritishLiverTrust8 Moderator British Liver Trust]

Dear Lavender-Pearl

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

[Lavender-Pearl in reply to BritishLiverTrust8]

Thank you I think I will.

[Fibro2021]

There is definitely a relationship between muscle twitching and hepatic encephalopathy. Is your husband on medication (rifaximin and lactulose) for hepatic encephalopathy?

[Lavender-Pearl in reply to Fibro2021]

Thank you for your reply, Yes both since last November and there was a marked improvement but now this and there are things he is forgetting again, however not as bad as last year when he thought we were all going mad bless him.

[Harriet-sarah]

I have it I have end of life liver disease waiting for transplant, and I twitch in bed, the alcohol may be effecting his nervous system, it did mine. Get him to docs to investigate

[Lavender-Pearl in reply to Harriet-sarah]

Thank you for your reply I will get in touch with his consultant.