Physical 'dips'..

I have 'dips' in my physical well being. To me they come on with no warning. I've been fine for a few weeks, and as the day has gone on, I've felt low emotionally, lack of energy, and I can feel a slight ascities build up. I know this will pass in a day or so, or even after a really good sleep, but I find it so frustrating and upsetting. My consultants agree that this is a 'cycle' that I will go through. When I feel like this, I just wanna cry and hide away.

I would like to know, how many of you experience this?

A little back history...

I'm 36. I have Budd Chari Syndrome (diagnosed around 13/14 years ago). I've always been very healthy and stable up until last year when I was taken very unwell. I am now in a transplant clinic and transplant is the next step for recovery, although I am not yet actively on the transplant list. Recently diagnoses with mild hepatic encephalopathy.

[Hidden]

Hello,

Many people with a liver issue do seem to suffer with cyclical periods of feeling great and then not so great. Often there does not appear to be a triggering factor for either, it can, as you say, be very frustrating. I am glad that you are under the wings of a transplant centre, they will take into account your quality of life (Hepatic encephalopathy definitely comes into this category)as well as things like blood results.

Take care, keep us posted.

regards