How long have I got, and can I change it?

[TonyHarrison]

So, I was originally diagnosed with Hep C back in 2010 following stabbing myself with a dirty needle when I worked for the NHS, and was later diagnosed with cirrhosis a few years later. Enetually put on the list for transplant, I was taken off the transplant list in July 2019, due to an MRI finding a clot in the Hepatic portal vein, have had 2 drainages of ascites in the past, although nothing in the last 2 years due to the upping of the dosages of Frusemide and Eplerenone. The clot itself is being treated with a daily dose of Rivaroxaban, although the clot hasn`t changed size in all that time, and my blood results are OK (I can`t remember the figures, unfortunately) and was told in December that my Child`s-Pugh score is b9

I`m presuming that I am still considered to have a decompensated liver, and all that that implies

I have tried talking to my consultant during phone consultations and through email, but, while she is an excellent doctor, her `bed-side manner` is non-existent, and I feel I`m just getting a run-around.

I don`t feel sick in any way, I try to eat healthily, I don`t drink any more, not that I drank much before my diagnosis, and its breaking my heart that I may have to leave behind my wife in a year or so, and how will she cope?

So, is there anything else I can do, or is that it for me?

[Hidden]

Hi Tony,

If you are in the UK you could call our nurse led helpline on Monday on 0800 652 7330 10am to 3pm and we could have a chat?

For all specific medical advice you do need to get through to speak to your consultant and GP, although we appreciate it is hard to do that at present.

Best wishes

Trust1