So, I was originally diagnosed with Hep C back in 2010 following stabbing myself with a dirty needle when I worked for the NHS, and was later diagnosed with cirrhosis a few years later. Enetually put on the list for transplant, I was taken off the transplant list in July 2019, due to an MRI finding a clot in the Hepatic portal vein, have had 2 drainages of ascites in the past, although nothing in the last 2 years due to the upping of the dosages of Frusemide and Eplerenone. The clot itself is being treated with a daily dose of Rivaroxaban, although the clot hasn`t changed size in all that time, and my blood results are OK (I can`t remember the figures, unfortunately) and was told in December that my Child`s-Pugh score is b9
I`m presuming that I am still considered to have a decompensated liver, and all that that implies
I have tried talking to my consultant during phone consultations and through email, but, while she is an excellent doctor, her `bed-side manner` is non-existent, and I feel I`m just getting a run-around.
I don`t feel sick in any way, I try to eat healthily, I don`t drink any more, not that I drank much before my diagnosis, and its breaking my heart that I may have to leave behind my wife in a year or so, and how will she cope?
So, is there anything else I can do, or is that it for me?